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Protecting Participants and Facilitating Social and Behavioral Sciences Research

Status: Available Now

Size: 276 pages, 6x9

Publication Year:2003

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Authors:
Constance F. Citro, Daniel R. Ilgen, and Cora B. Marrett, Editors, Panel on Institutional Review Boards, Surveys, and Social Science Research, National Research Council
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Description:
Institutional review boards (IRBs) are the linchpins of the protection systems that govern human participation in research. In recent years, high-profile cases have focused attention on the weaknesses of the procedures for protecting participants in medical research. The ...
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Table of Contents
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Front Matter	i-xviii
Executive Summary	1-8	(skim)
1 Introduction	9-22	(skim)
2 Basic Concepts	23-58	(skim)
3 Regulatory History	59-80	(skim)
4 Enhancing Informed Consent	81-112	(skim)
5 Enhancing Confidentiality Protection	113-142	(skim)
6 Enhancing the Effectiveness of Review: Minimal-Risk Research	143-164	(skim)
7 System Issues	165-182	(skim)
References	183-190	(skim)
Appendix A: Tracing Changes in Regulatory Language	191-216	(skim)
Appendix B: Organizations and Resources for Human Research Participant Protection	217-220	(skim)
Appendix C: Agenda for Panel's First Meeting	221-224	(skim)
Appendix D: Selected Studies of IRB Operations: Summary Descriptions	225-234	(skim)
Appendix E: Confidentiality and Data Access Issues for Institutional Review Boards	235-252	(skim)
Biographical Sketches of Panel Members and Staff	253-258	(skim)

Description

Institutional review boards (IRBs) are the linchpins of the protection systems that govern human participation in research. In recent years, high-profile cases have focused attention on the weaknesses of the procedures for protecting participants in medical research. The issues surrounding participants protection in the social, behavioral, and economic sciences may be less visible to the public eye, but they are no less important in ensuring ethical and responsible research.

This report examines three key issues related to human participation in social, behavioral, and economic sciences research: (1) obtaining informed, voluntary consent from prospective participants: (2) guaranteeing the confidentiality of information collected from participants, which is a particularly challenging problem in social sciences research; and (3) using appropriate review procedures for minimal-risk research.

Protecting Participants and Facilitating Social and Behavioral Sciences Research will be important to policy makers, research administrators, research sponsors, IRB members, and investigators. More generally, it contains important information for all who want to unsure the best protection for participants and researchers alike in the social, behavioral, and economic sciences.

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