Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.
National Research Council and Institute of Medicine. 2005. Ethical Considerations for Research on Housing-Related Health Hazards Involving Children. Washington, DC: The National Academies Press. https://doi.org/10.17226/11450.
Chapters | skim | |
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Front Matter | i-xx | |
Executive Summary | 1-12 | |
1 Introduction | 13-23 | |
2 Housing and Health | 24-40 | |
3 Grimes v. Kennedy Krieger Institute: Revisiting the Ethical Issues | 41-61 | |
4 Characteristics of Housing Health Hazards Research | 62-75 | |
5 Community Involvement | 76-98 | |
6 Parental Permission, Consent, and Payment | 99-123 | |
7 Researchers' Responsibilities | 124-144 | |
8 Research Oversight | 145-162 | |
References | 163-188 | |
Appendix Biographical Sketches of Committee Members and Staff | 189-196 |
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