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Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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SUMMARY OF A WORKSHOP ON RESEARCH IN MULTIPLE SCLEROSIS April 5-6, 2001

Based on the Institute of Medicine report on

MULTIPLE SCLEROSIS: CURRENT STATUS AND STRATEGIES FOR THE FUTURE

prepared by Miriam Davis and Janet E. Joy

Board on Neuroscience and Behavioral Health

INSTITUTE OF MEDICINE

NATIONAL ACADEMY PRESS
Washington, D.C.

Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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    NATIONAL ACADEMY PRESS 2101 Constitution Avenue, N.W. Washington, DC 20418

    NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.

    Support for this project was provided by the National Multiple Sclerosis Society. The views presented in this report are not necessarily those of the funding agencies.

    International Standard Book Number 0-309-07569-6

    Additional copies of this report are available for sale from the National Academy Press , 2101 Constitution Avenue, N.W. , Box 285, Washington, D.C. 20055 . Call (800) 624-6242 or (202) 334-3313 (in the Washington metropolitan area), or visit the NAP's home page at www.nap.edu .

    For more information about the Institute of Medicine, visit the IOM home page at: www.iom.edu .

    Copyright 2001 by the National Academy of Sciences. All rights reserved.

    Printed in the United States of America.

    The serpent has been a symbol of long life, healing, and knowledge among almost all cultures and religions since the beginning of recorded history. The serpent adopted as a logotype by the Institute of Medicine is a relief carving from ancient Greece, now held by the Staatliche Museen in Berlin.

Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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“Knowing is not enough; we must apply. Willing is not enough; we must do.

—Goethe

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~ enlarge ~


INSTITUTE OF MEDICINE



Shaping the Future for Health
Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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    THE NATIONAL ACADEMIES

    National Academy of Sciences

    National Academy of Engineering

    Institute of Medicine

    National Research Council

    The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Academy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Bruce M. Alberts is president of the National Academy of Sciences.

    The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding engineers. It is autonomous in its administration and in the selection of its members, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. William A. Wulf is president of the National Academy of Engineering.

    The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Kenneth I. Shine is president of the Institute of Medicine.

    The National Research Council was organized by the National Academy of Sciences in 1916 to associate the broad community of science and technology with the Academy's purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Bruce M. Alberts and Dr. William A. Wulf are chairman and vice chairman, respectively, of the National Research Council.

Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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CONTENTS

Introduction 1
    Workshop Format 1
Strategies for Future Research on Disease Mechanisms 4
Strategies for Future Research on Disease Management 6
    Therapeutics 6
    Quality of Life 7
    Patients and Priority Setting 8
Building and Supporting the Research Enterprise 9
    Recruitment of Younger Researchers 9
    MS Centers and Program Projects 11
    Clinical Trials Network 12
    Protecting Against False Leads 13
Closing Remarks 13
Appendix A:     List of Report Recommendations 15
Appendix B:     IOM Committee Members and Staff 19
Appendix C:     Workshop Agenda 21
Appendix D:     Meeting Participants 23
Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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Suggested Citation:"Front Matter." Institute of Medicine. 2001. Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001. Washington, DC: The National Academies Press. doi: 10.17226/10116.
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Multiple Sclerosis: Current Status and Strategies for the Future identifies promising areas of multiple sclerosis (MS) research based on a strategic analysis of the current state of knowledge. The report was written by the Institute of Medicine (IOM) Committee on MS Research Strategies, and on April 2001, the Committee held a workshop to advance research recommended by the report. The specific goals of the workshop were to disseminate information about the report, foster collaboration, and serve as a launch pad for implementation of the report's recommendations.

Summary of a Workshop on Research in Multiple Sclerosis, April5-6,2001 presents the reports from each breakout group and summarizes the plenary session discussion. This workshop summary contains particular viewpoints attributed to individual participants or to groups of participants (including breakout groups), but does not contain statements about what "the workshop" or "all its participants" concluded.

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