| ||||||||||||||||||||||||||||||||||||||
|
||||||||||||||||||||||||||||||||||||||
| Copyright © 2009. National Academy of Sciences. All rights reserved. Terms of Use and Privacy Statement |
Below are the first 10 and last 10 pages of uncorrected machine-read text (when available) of this chapter, followed by the top 30 algorithmically extracted key phrases from the chapter as a whole.
Intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text on the opening pages of each chapter.
Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.
Do not use for reproduction, copying, pasting, or reading; exclusively for search engines.
OCR for page 69
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
Appendix: Workshop Materials
AGENDA
THURSDAY, NOVEMBER 4, 1999
8:30 a.m.
WELCOME/INTRODUCTIONS/GOALS OF THE WORKSHOP
Edward Perrin, University of Washington, Workshop Chair
Margaret Hamburg, Assistant Secretary for Planning and Evaluation, DHHS, and Co-chair, DHHS Data Council
Edward Sondik, Director, National Center for Health Statistics and DHHS Statistical Advisor
8:45–9:30 a.m.
OVERVIEW PAPER/PRESENTATION
8:45 a.m.
Health Statistics: Past, Present, and Future
Presenter: Dorothy Rice, University of California, San Francisco
This session will provide an overview and historical perspective on the elements of the nation’s health statistics system.
• Who has used health statistics, and what have their information needs been?
• How do the various producers of health data
OCR for page 70
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
and statistics collectively comprise the nation’s health statistics system?
• What have been some of the main challenges (technical, operational, resources, etc.) in producing health statistics? Have health statistics been fully utilized? Have they been responsive to information needs? What efforts have been made to deal with limitations in the health statistics system? How successful have they been?
9:10 a.m.
Comments from invited discussant
Janet Norwood, former U.S. Commissioner of Labor Statistics
9:20 a.m.
Questions/Discussion
9:30–11:45 a.m.
BACKGROUND PAPERS/PRESENTATIONS
9:30 a.m.
Health Statistics Systems in Other Countries
Jennifer Zelmer, Canadian Institute for Health Information
This presentation will be based on a paper comparing how different countries organize their health statistics systems. The focus will be on Canada, Australia, and the United Kingdom. The paper will identify common models, trends, and future directions in the evolution of the vision for and management of national health statistics in these countries. (NCVHS commissioned paper)
9:45 a.m.
From National Health Statistics to Health Information Systems
Charlyn Black, University of Manitoba
This presentation will be based on a paper discussing key assumptions and critical components of a health information system; outlines the importance of being able to make
OCR for page 71
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
links across key areas and to examine various types and levels of investment in medical care for different populations; describes the Manitoba experience with the POPULIS system; and discusses possibilities for developing such systems in the future. (NCVHS commissioned paper)
10:00 a.m.
Discussion
10:30–10:45 a.m.
Break
10:45 a.m.
The Numbers We Need: Health Statistics and Health Policy
Richard Kronick, University of California at San Diego
This presentation will focus on the health statistics needed for improving health policy, emphasizing the financing and delivery of care to the uninsured, and policy concerning managed care. The need for timely and detailed measurement of health-related quality of life will be considered. (NCVHS commissioned paper)
11:00a.m.
The Children’s Health Insurance Program and Other Efforts to Respond to Children’s Health Needs
Lorraine Klerman, University of Alabama at Birmingham
This presentation will use the State Children’s Health Insurance Program (SCHIP) to illustrate the role health statistics played in determining a need for SCHIP and developing its provisions. Also discussed will be the health statistics that policy makers at the state and federal levels believe will be essential to demonstrate the impact of SCHIP. The need for additional statistics about children’s health status and use of services will be considered. (NCVHS commissioned paper)
OCR for page 72
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
11:15 a.m.
Discussion
11:45 a.m.–1:00p.m.
Lunch
1:00–5:00 p.m.
DEVELOPMENTS SHAPING FUTURE NEEDS FOR HEALTH STATISTICS
Moderator: Edward Perrin, Workshop Chair
In each session, these 15-minute presentations will highlight new developments, changing priorities, newly emerging concerns, and specific opportunities and challenges for the health statistics system in the 21st century. The presentations are intended to combine a “visionary” consideration of these issues with observations on how current research or operational experience relates to these views of the future.
1:00 p.m.
Health Status and the Determinants of Health
• Population-based assessments of health status, surveillance of illness, assessing well-being (positive health, psychosocial aspects of health, physical environment)
• Presentations:
Determinants of health: Clyde Hertzman, University of British Columbia
Positive health: Burton Singer, Princeton University
Disease and risk factor surveillance: David Fleming, Oregon Health Division
Health status assessment/instruments: Robert Kaplan, University of California at San Diego
2:00 p.m.
Discussion
OCR for page 73
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
2:20 p.m.
Organization, Delivery, and Financing of Health Services
• Supporting the management and analysis of the organization, delivery, and financing of personal and population-based health services and their relationship to health status and health outcomes
• Presentations:
Health economics: Joseph Newhouse, Harvard University
Health system change: Merwyn Greenlick, Oregon Health Sciences University
Proprietary databases: Jacqueline Kosecoff, Protocarey Inc.
3:20 p.m.
Discussion
3:40–4:00 p.m.
Break
4:00 p.m.
The Data Policy and Technology Environment
• Innovations in information technology for collecting, analyzing, and disseminating health data; issues of privacy, confidentiality, and security of health data
• Presentations:
Survey methods: Sandra Berry, RAND
Information technologies: William Eddy, Carnegie Mellon University
Data policy issues: John Eisenberg, Agency for Healthcare Research and Quality
Privacy and confidentiality issues: George Duncan, Carnegie Mellon University
5:00 p.m.
Discussion
5:20 p.m.
ADJOURN
OCR for page 74
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
FRIDAY, NOVEMBER 5, 1999
8:15–9:45 a.m.
PANEL DISCUSSION
Changing Roles and Responsibilities in the Health Statistics System
Moderator: Edward Perrin, Workshop Chair
This panel will bring together panelists from several segments of the health statistics system to address priorities for
• changes in the health statistics system to meet new and continuing information needs and to respond to changing roles and responsibilities;
• research to respond to changing needs in the health statistics system.
Panelists will be asked to present for discussion specific proposals regarding steps that might be taken to meet evolving needs for health statistics. Panelists should consider needs/requirements of users and producers of health statistics and should draw on the background papers, the previous day’s discussions, and their own experiences in framing their proposals.
The moderator will guide the discussion toward specific conclusions that can contribute to framing an overall agenda for steps to ready the health statistics system for the 21 st century.
Panelists (from federal, state, local, and private sectors)
Edward Sondik, Director, National Center for Health Statistics, and DHHS Statistical Advisor
John Lumpkin, Illinois Department of Public Health
OCR for page 75
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
Kenneth Thorpe, Rollins School of Public Health, Emory University
Eileen Peterson, United Health Group
9:45–10:00 a.m.
Break
10:00 a.m.–1:15 p.m.
WRAP-UP SESSION
Developing an Agenda for the Health Statistics System in the 21st Century
Moderator: Edward Perrin, Workshop Chair
10:00–10:15 a.m.
Reviewing the Issues
Presenter: Miron Straf, Director (on leave), Committee on National Statistics
This session will provide a brief overview of the key issues covered during the workshop sessions, setting the stage for discussion of opportunities for change and research needs.
10:15–11:15 a.m.
Comments from Invited Discussants
Invited discussants will reflect on implications of emerging health data needs for the health statistics system (15 minutes each).
Discussants:
Dorothy Rice, University of California, San Francisco
Richard Kronick, University of California at San Diego
Daniel Friedman, Massachusetts Department of Public Health
Michael Wolfson, Statistics Canada
11:15–1:15 p.m.
Identifying Opportunities for Change and Research Needs
Discussion by all workshop participants to outline
• an agenda for key changes to respond to needs across the health statistics system
OCR for page 76
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
• a research agenda to respond to needs across the health statistics system
• priorities for HHS and its agencies engaged in health statistics activities
1:15 p.m.
ADJOURN
OCR for page 77
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
PAPERS PRESENTED
The workshop papers were commissioned by the U.S. National Committee on Vital and Health Statistics (NCVHS). They are available at: <http://www.ncvhs.hhs.gov/hsvision/visiondocuments.html>.
“Recent Developments in Health Information: An International Perspective,” Jennifer Zelmer, Shazeen Virani, and Richard Alvarez, Canadian Institute for Health Information.
“From Health Statistics to Health Information Systems: A New Path for The 21st Century,” Charlyn Black, Noralou Roos, and Leslie Roos, University of Manitoba.
“Numbers We Need: Health Statistics and Health Policy,” Richard Kronick, Department of Family and Preventive Medicine, University of California, San Diego.
“The State Children’s Health Insurance Program: A Case Study,” with additional material on data needs in the area of child health, Lorraine V.Klerman, Department of Maternal and Child Health, School of Public Health, University of Alabama at Birmingham.
“Building Robust Statistical Systems for Health,” Daniel Melnick, Dan Melnick Research, Inc.
OCR for page 78
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
PARTICIPANTS
Presenters and Discussants
Edward B.Perrin (Workshop Chair), University of Washington, and Member, Committee on National Statistics
Sandra H.Berry, RAND, Santa Monica, California
Charlyn Black, University of Manitoba
George Duncan, Carnegie Mellon University
William F.Eddy, Carnegie Mellon University, and Member, Committee on National Statistics
John M.Eisenberg, Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services
David W.Fleming, Oregon Health Division
Daniel J.Friedman, Massachusetts Department of Public Health
Merwyn R.Greenlick, Oregon Health Sciences University
Margaret Hamburg, U.S. Department of Health and Human Services
Clyde Hertzman, University of British Columbia
Robert M.Kaplan, University of California at San Diego
Lorraine V.Klerman, University of Alabama, Birmingham
Jacqueline Kosecoff, Protocare Inc., Santa Monica, California
Richard Kronick, University of California, San Diego
John R.Lumpkin, Illinois Department of Public Health
Joseph P.Newhouse, Harvard University
Janet L.Norwood, former U.S. Commissioner of Labor Statistics
Eileen Peterson, Center for Health Care Policy and Evaluation, United Health Group
Alonzo Plough,* Seattle-King County Health Department
Dorothy P.Rice, School of Nursing, University of California, San Francisco
Burton H.Singer, Office of Population Research, Princeton University
Edward Sondik, National Center for Health Statistics, U.S. Department of Health and Human Services
Kenneth E.Thorpe, Rollins School of Public Health, Emory University
Michael C.Wolfson, Statistics Canada
Jennifer Zelmer, Canadian Institute for Health Information
*
Unable to attend workshop, but graciously sent presentation materials that were distributed and discussed among workshop particpants.
OCR for page 79
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
Invited Guests
Ross Arnett, Agency for Health Care Policy and Research
Ruth Berkelman, Centers for Disease Control and Prevention, U.S. Department of Health and Human Services
Linda Blankenbaker, National Center for Health Statistics, U.S. Department of Health and Human Services
James Bost, National Committee for Quality Assurance
Lisa Broitman, National Center for Health Statistics, U.S. Department of Health and Human Services
Claire Broome, Centers for Disease Control and Prevention, U.S. Department of Health and Human Services
Brett Brown, Child Trends, Inc.
Olivia Carter-Pokras, Division of Policy and Data, Office of Minority Health, National Institutes of Health, U.S. Department of Health and Human Services
Kathryn Coltin, Harvard Pilgrim Health Care
Linda K.Demlo, National Center for Health Statistics, U.S. Department of Health and Human Services
John Drabok, U.S. Department of Health and Human Services
Rachel Duguay, The Lewin Group
J.Michael Fitzmaurice, Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services
Manning Feinleib, Johns Hopkins School of Public Health
Daniel J.Friedman, Bureau of Health Statistics, Research and Evaluation, U.S. Department of Health and Human Services
Dan Gaylin, U.S. Department of Health and Human Services
Marsha Gold, Mathematica Policy Research
Marthe Gold, City University of New York Medical School
Donald Goldstone, Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services
Marjorie S.Greenberg, National Center for Health Statistics, U.S. Department of Health and Human Services
Jan Heinrich, U.S. General Accounting Office
Gerry Hendershot, National Center for Health Statistics, U.S. Department of Health and Human Services
Betsy L.Humphreys, National Library of Medicine, U.S. Department of Health and Human Services
OCR for page 80
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
Edward Hunter, National Center for Health Statistics, U.S. Department of Health and Human Services
William Hven, The Lewin Group
Raynard Kington, National Center for Health Statistics, U.S. Department of Health and Human Services
Mary Grace Kovar, National Opinion Research Center, Washington, DC
Andrew Kram, National Committee on Vital and Health Statistics
Thomas Louis, RAND, Arlington, VA, and Member, Committee on National Statistics
Jennifer Madans, National Center for Health Statistics, U.S. Department of Health and Human Services
Daniel Melnick, Dan Melnick Research, Inc.
Michael Millman, U.S. Department of Health and Human Services
Leyla Mohadjer, Westat, Rockville, MD
Robert S.Murphy, Westat, Rockville, MD
Paul Newacheck, University of California, San Francisco
Roy Gibson Parrish, Centers for Disease Control and Prevention, Atlanta
Steve Perente, University of Minnesota
Mark Rothstein, National Committee on Vital and Health Statistics
Patricia Ruggles, U.S. Department of Health and Human Services
James Scanlon, U.S. Department of Health and Human Services
Susan Schechter, U.S. Office of Management and Budget
Paul Scheible, National Compensation Survey
Elliot M.Stone, Massachusetts Health Data Consortium, Inc.
Michael Stoto, The George Washington University
Daniel Waldo, Health Care Financing Administration, U.S. Department of Health and Human Services
Elizabeth Ward, National Committee on Vital and Health Statistics
Robert Weinzimer, National Center for Health Statistics, U.S. Department of Health and Human Services
National Academies’ Staff
Miron L.Straf, Committee on National Statistics, National Research Council
Andrew A.White, Committee on National Statistics, National Research Council
Terri Scanlan, Committee on National Statistics, National Research Council
OCR for page 81
Toward a Health Statistics System for the 21st Century: Summary of a Workshop
Agnes Gaskin, Committee on National Statistics, National Research Council
Jane Durch, Institute of Medicine
Maria Hewitt, Institute of Medicine
Margarita Hurtado, Institute of Medicine
Gooloo Wunderlich, Institute of Medicine
Jonathan Zaff, Committee on Population, National Research Council
Representative terms from entire chapter:
national statistics
Items in cart [4]
