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OCR for page 96
Appendix B
Information on Selected Variables
INFORMATION ON SELECTED VARIABLES
dataset:
LSOA
site of death:
cause of death:
demographics:
SES
household:
household composition (age, relationship)
social supports:
social history
illnesses:
list of 13 serious conditions
physical symptoms:
physical function:
6 ADLS, 6 IADLs, mobility, falling, dizziness, incontinence
psychological symptoms:
quality of life:
cognition:
health services utilization support services:
satisfaction with care:
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family care:
helpers with key activities
out-of-pocket costs:
INFORMATION ON SELECTED VARIABLES
dataset:
NMFS
site of death:
cause of death:
demographics:
SES
household:
relationship of people living with
social supports:
illnesses:
hypertension, heart attack, angina, stroke, Alzheimer, dementia, mental health, diabetes, cancer, asthma, emphysema, bronchitis, cirrhosis, arthritis
physical symptoms:
physical function:
mobility, ADL, IADL
psychological symptoms:
quality of life:
cognition:
trouble understanding, remembering, recognizing, problem behaviors
health services utilization support services:
satisfaction with care:
family care:
did family members help/live with/help pay for care
out-of-pocket costs:
decedent funds and family expenses includes “help at home”
INFORMATION ON SELECTED VARIABLES
dataset:
NHANES
site of death:
cause of death:
demographics:
SES
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household:
delineates all members of household
social supports:
illnesses:
extensive list of conditions
physical symptoms:
extensive pain questionnaire
physical function:
difficulty doing 19 activities
psychological symptoms:
quality of life:
cognition:
self reported memory problems or confusion
health services utilization support services:
satisfaction with care:
family care:
out-of-pocket costs:
INFORMATION ON SELECTED VARIABLES
dataset:
MEPS
site of death:
cause of death:
demographics:
SES
household:
social supports:
illnesses:
respondent lists conditions for each family member
physical symptoms:
pain
physical function:
ADL, IADL, mobility questions
psychological symptoms:
feeling anxious or blue
quality of life:
cognition:
memory loss, confusion, decision making, supervision for safety
health services utilization support services:
satisfaction with care:
general satisfaction, experience any difficulty, delay or lack of care
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family care:
detail info about caregivers
out-of-pocket costs:
purchased medicines; alternative care (total expenditures only)
INFORMATION ON SELECTED VARIABLES
dataset:
MDS
site of death:
cause of death:
demographics:
SES
household:
marital status; lived alone prior to adm
social supports:
family involvement; contact with relatives and close friends
illnesses:
checklist plus open ICD coding
physical symptoms:
pain, shortness of breath
physical function:
ADLS specificially and pattern
psychological symptoms:
mood, psychological well-being
quality of life:
cognition:
memory, skills, delirium
health services utilization support services:
satisfaction with care:
family care:
out-of-pocket costs:
INFORMATION ON SELECTED VARIABLES
dataset:
PSID
site of death:
cause of death:
demographics:
SES
household:
relationships
social supports:
illnesses:
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physical symptoms:
physical function:
basic needs like dressing, bathing , eating
psychological symptoms:
quality of life:
cognition:
health services utilization support services:
satisfaction with care:
family care:
out-of-pocket costs:
incl paid paid nurse/aide coming to home
INFORMATION ON SELECTED VARIABLES
dataset:
OASIS
site of death:
cause of death:
demographics:
SES
household:
spouse, other family, friend, paid help
social supports:
illnesses:
diagnostic codes
physical symptoms:
pain, shortness of breath, nausea, bowel function
physical function:
ADLS, IADS
psychological symptoms:
“emotional” problems
quality of life:
cognition:
alter, requires prompting, requires assistance, confused
health services utilization support services:
satisfaction with care:
family care:
who is caring, what types of assistance
out-of-pocket costs:
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INFORMATION ON SELECTED VARIABLES
dataset:
NDI
site of death:
cause of death:
demographics:
SES
household:
social supports:
illnesses:
physical symptoms:
physical function:
psychological symptoms:
quality of life:
cognition:
health services utilization support services:
satisfaction with care:
family car :
out-of-pocket costs:
INFORMATION ON SELECTED VARIABLES
dataset:
NHHCS
site of death:
cause of death:
demographics:
SES
household:
family, nonfamily
social supports:
illnesses:
primary or other diagnoses
physical symptoms:
physical function:
receives help from this agency regarding ADLs, IADLs
psychological symptoms:
quality of life:
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cognition:
health services utilization support services:
satisfaction with care:
family care:
relationship to primary caregiver
out-of-pocket costs:
only as primary or secondary source of payment
INFORMATION ON SELECTED VARIABLES
dataset:
NNHS
site of death:
cause of death:
demographics:
SES
household:
before adm to facility
social supports:
illnesses:
primary and “other” diagnoses
physical symptoms:
physical function:
ADLs, limited IALDs
psychological symptoms:
quality of life:
cognition:
health services utilization support services:
satisfaction with care:
family care:
out-of-pocket costs:
INFORMATION ON SELECTED VARIABLES
dataset:
MCBS
site of death:
cause of death:
demographics:
SES
household:
persons staying in the household
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social supports:
illnesses:
long list
physical symptoms:
physical function:
6 ADLs, 6 IADLs
psychological symptoms:
quality of life:
cognition:
memory, making decisions, concentrating
health services utilization support services:
satisfaction with care:
general satisfaction, availability, convenience, information received, costs, etc.
family care :
who helps with ADLs/IADLs
out-of-pocket costs:
equipment, prescriptions, alterations to house
INFORMATION ON SELECTED VARIABLES
dataset:
NHIS
site of death:
cause of death:
demographics:
SES
household:
relationships among all in household
social supports:
illnesses:
“have you ever been told” broad domains:
cardiovascular disease, respiratory conditions, etc.
physical symptoms:
fatigue, tiredness, pain
physical function:
single item about “major activity limitation”; ADLs, IADLs, Nagi
psychological symptoms:
depression, anxiety, emotional problem
quality of life:
cognition:
limited by difficulty remembering or confusions
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health services utilization support services:
satisfaction with care:
family care:
out-of-pocket costs:
how much spent for medical care (exc hlth insurance, over counter
INFORMATION ON SELECTED VARIABLES
dataset:
NHEFS
site of death:
cause of death:
demographics:
SES
household:
# in household
social supports:
illnesses:
ever had; doctor ever told arthritis, heart attack, stroke, diabetes, cancer, fx hip, osteoporosis, etc.
physical symptoms:
just arthritis (swelling, stiffness, pain)
physical function:
Katz ADL; Rosow-Breslau, and Fries Functional
psychological symptoms:
quality of life:
cognition:
health services utilization support services:
satisfaction with care:
family care:
out-of-pocket costs:
INFORMATION ON SELECTED VARIABLES
dataset:
Medicare
site of death:
cause of death:
demographics:
SES
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household:
social supports:
illnesses:
only as inferred from diagnostic codes on visits and stays
physical symptoms:
physical function:
psychological symptoms:
quality of life:
cognition:
health services utilization support services:
satisfaction with care:
family care:
out-of-pocket costs:
INFORMATION ON SELECTED VARIABLES
dataset:
NLTCS
site of death:
cause of death:
demographics:
SES
household:
identification of caregiver
social supports:
how many times did see/talk with friends
illnesses:
does … now have [30] conditions
physical symptoms:
physical function:
6 ADLs; 7 IADLs; Nagi items on range of motion and impairment; activity list
psychological symptoms:
confusion or emotional problem
quality of life:
cognition:
mini mental
health services utilization support services:
satisfaction with care:
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family care:
many details about who helps with ADLs and IADLs
out-of-pocket costs:
who pays for help with ADLs/IADLs; payment for nursing home, homecare
INFORMATION ON SELECTED VARIABLES
dataset:
AHEAD
site of death:
cause of death:
demographics:
SES
household:
spouse, children, other
social supports:
asked in HRS 1994 module
illnesses:
major illnesses; severity reflected in type and intensity of care
physical symptoms:
pain, shortness of breath, fatigue
physical function:
difficulty with 12 physical tasks; if + then asked difficulty with 6 personal care activities
psychological symptoms:
CESD used in HRS 1994
quality of life:
14 questions on AHEAD Wave 1
cognition:
dementia screening instrument, memory, reasoning
health services utilization support services:
satisfaction with care:
family care :
living with, assisting ADLS
out-of-pocket costs:
nursing home, prescriptions, in-home medical care, assistance with ADLs and IADLS
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