Protecting Participants and Facilitating Social and Behavioral Sciences Research

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Protecting Participants and Facilitating Social and Behavioral Sciences Research (2003)
Committee on National Statistics (CNSTAT)
Board on Behavioral, Cognitive, and Sensory Sciences and Education (BCSSE)

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82

Front Matter (R1-R18)

Executive Summary (1-8)

1 Introduction (9-22)

2 Basic Concepts (23-58)

3 Regulatory History (59-80)

4 Enhancing Informed Consent (81-112)

5 Enhancing Confidentiality Protection (113-142)

6 Enhancing the Effectiveness of Review: Minimal-Risk Research (143-164)

7 System Issues (165-182)

References (183-190)

Appendix A: Tracing Changes in Regulatory Language (191-216)

Appendix B: Organizations and Resources for Human Research Participant Protection (217-220)

Appendix C: Agenda for Panel's First Meeting (221-224)

Appendix D: Selected Studies of IRB Operations: Summary Descriptions (225-234)

Appendix E: Confidentiality and Data Access Issues for Institutional Review Boards (235-252)

Biographical Sketches of Panel Members and Staff (253-258)