National Academies Press: OpenBook

Eliminating Health Disparities: Measurement and Data Needs (2004)

Chapter: Appendix B Workshop on Improving Racial and Ethnic Data in Health

« Previous: Appendix A Descriptions of National Health and Health Care Surveys
Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×

Appendix B
Workshop on Improving Racial and Ethnic Data in Health

AGENDA

December 12-13, 2002

Thursday, December 12, 2002

10:00

Welcome and Introductions

Edward Perrin, University of Washington (Panel Chair)

Andrew White, Committee on National Statistics

James Scanlon, Office of Science and Data Policy, Office of the Assistant Secretary for Planning and Evaluation, Department of Health and Human Services

10:15

The Importance of Collecting Data on Race, Ethnicity, and Socioeconomic Status

Session Chair: David Williams, University of Michigan (Panel Member)

Authors: Nicole Lurie and Allen Fremont, RAND

10:45

Discussants:

Olivia Carter-Pokras, University of Maryland

Gem Daus, Asian and Pacific Islander American Health Forum

11:15

Open Discussion

Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×

11:30

Legal Aspects of Race and Ethnicity Data Collection (Including Privacy Issues)

Session Chair: William Kalsbeek, University of North Carolina, Chapel Hill (Panel Member)

11:30

Legal Framework: Mara Youdelman, National Health Law Program

12:00

Privacy Issues: Moya Gray, Director, Hawaii Office of Information Practices

12:30

Open Discussion

1:45

Race and Ethnicity Data Collection by Private Organizations

Session Chair: L. Carl Volpe, WellPoint Health Networks Inc. (Panel Member)

1:45

General Overview—Collection of Data on Race/Ethnicity of Patients by Hospitals, Medical Groups, and Health Plans

Author: David Nerenz, Michigan State University

2:15

The Collection of Race and Ethnicity Data by Health Plans

Author: Carmella Bocchino, American Association of Health Plans

3:00

Discussants:

Eileen Peterson, United Health Group

Romana Hasnain-Wynia, Health Research and Education Trust

Andrew Webber, National Committee for Quality Assurance

4:00

Open Discussion

Moderator: Edward Perrin, University of Washington (Panel Chair)

Friday, December 13

8:30

Race and Ethnicity Data Collection by States

Session Chair: Denise Love, National Association of Health Data Organizations (Panel Member)

Authors: Sara Singer and Jeff Geppert, Stanford University; Jay Buechner, Rhode Island; Wu Xu, Utah; Walter Suarez, Minnesota; and Lorin Ranbom, Ohio

9:00

Discussants:

Dan Friedman, Massachusetts Department of Public Health

Carla Edwards, Florida Agency for Health Care Administration

David Solet, Public Health, Seattle and King County

Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×

9:30

Open Discussion

10:00

Attendee Comments on Race and Ethnicity Data Collection

Session Chair: Anthony D’Angelo, Computercraft (Panel Member)

Workshop attendees were invited to sign up to give brief comments on the collection of racial and ethnic data

11:15

Perspectives of Data Users

Session Chair: Jonathan Skinner, Dartmouth College (Panel Member)

Panelists:

Matthew Snipp, Stanford University

Rhonda BeLue, Metro Nashville Public Health Department

Marian Gornick, Consultant, Health Services Research

WORKSHOP PARTICIPANTS LIST

Presenters

Edward Perrin (Panel Chair), University of Washington

Rhonda BeLue, Metro Nashville Public Health Department

Carmella Bocchino, American Association of Health Plans

Jay Buechner, Rhode Island Department of Health

Olivia Carter-Pokras, University of Maryland, Baltimore Campus

Anthony D’Angelo, Computercraft

Gem Daus, Asian and Pacific Islander American Health Forum

Carla Denise Edwards, Florida Agency for Health Care Administration

Allen Fremont, RAND

Dan Friedman, Massachusetts Department of Public Health

Jeffrey Geppert, Stanford University

Marian Gornick, Health Services Research

Moya Gray, Hawaii Office of Information Practices

Romana Hasnain-Wynia, Health Research and Education Trust

William Kalsbeek, University of North Carolina, Chapel Hill

Denise Love, National Association of Health Data Organizations

Nicole Lurie, RAND

David Nerenz, Michigan State University

Eileen Peterson, United Health Group

Lorin Ranbom, Ohio Department of Health

James Scanlon, Office of Science and Data Policy, Department of Health and Human Services

Sara Singer, Stanford University

Jonathan Skinner, Department of Economics, Dartmouth College

Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×

Matthew Snipp, Stanford University

David Solet, Public Health, Seattle and King County

Walter Suarez, Minnesota Department of Health

L. Carl Volpe, Strategic Health Partnership, WellPoint Health Networks Inc.

Andrew Webber, National Committee for Quality Assurance

Andrew White, Committee on National Statistics, National Academies

David Williams, Department of Sociology, University of Michigan

Wu Xu, Utah, Department of Health

Mara Youdelman, National Health Law Program

Invited Guests

Steven Auerbach, Health Resources and Services Administration

Roman Baez, Dental School Multicultural Programs

John Burton, Council on African American Affairs, Inc.

Audrey Burwell, Department of Health and Human Services

Shari Campbell, Bureau of Primary Health Care

Marcia Changkit, National Cancer Institute

Kenneth Chu, Center for Reduce Cancer Health Disparities

Beverly Colman-Miller,

Pam Curry, DHHS Office of Counter Terrorism and Pediatric Drug Development

Charles Daly, Bureau of Primary Health Care

Shelia Davis, Summit Health Institute for Research and Education

Shirley Delaleu, Council on African American Affairs, Inc.

Elaine Elinksy, Elinsky Consulting

Roland Garcia, National Cancer Institute

Kenneth Gerlach, Cancer Surveillance Branch

Linda Greenberg, Centers for Medicare and Medicaid Services

Robert Hahn, Centers for Disease Control and Prevention

Jan Heffernan, National Institutes of Health

Katherine Hollinger, Office of Women’s Health, FDA

Diane Hopkins, U.S. Department of Health and Human Services

Jin In, U.S. Department of Health and Human Services

Debbie Jackson, National Center for Health Statistics, CDC

K.A. Jagannathan, DHHS Administration for Children and Families

Cheedy Jaja, Indiana University Center for Bioethics

Yvonne Johns, DHHS Office of Minority Health

Steve Jones II, United States Congress

Evelyn Kappeler, DHHS Office of Population Affairs

Onelio Lopez, U.S. Department of Health and Human Services

Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×

Jennifer Madans, Centers for Disease Control

Diane Makuc, National Center for Health Statistics

Jennifer Malat, University of Cincinnati

Mildred Martinez, Kaiser Permanente

Donielle Newell, Council on African American Affairs, Inc.

Ly Nguyen, Morgan State University

Edna Paisano, DHHS Office of Public Health

JoAnn Pappalardo, DHHS Office of Public Health

Sharyn Parks, National Center for Injury Prevention and Control

William Rodriguez, DHHS Office of Counter Terrorism and Pediatric Drug Development

Beatrice Rouse, Substance Abuse Mental Health Services Administration

Theodore Small Jr., Council on African American Affairs, Inc.

Bryon Sogie-Thomas, National Medical Association

Edward Sondik, Centers for Disease Control

Irene Tsai, Kaiser Permanente

Luz Vega, District of Columbia Department of Health

Irene Zimmerman, Washington Association of Professional Anthropologists

NRC Staff

Michele Ver Ploeg, Committee on National Statistics

Jamie Casey, Committee on National Statistics

Tanya Lee, Committee on National Statistics

Andrew White, Committee on National Statistics

Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×
Page 179
Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×
Page 180
Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×
Page 181
Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×
Page 182
Suggested Citation:"Appendix B Workshop on Improving Racial and Ethnic Data in Health." National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press. doi: 10.17226/10979.
×
Page 183
Next: Appendix C Recommendations on the Use of Socioeconomic Position Indicators to Better Understand Racial Inequalities in Health »
Eliminating Health Disparities: Measurement and Data Needs Get This Book
×
Buy Paperback | $60.00 Buy Ebook | $48.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

Disparities in health and health care across racial, ethnic, and socioeconomic backgrounds in the United States are well documented. The reasons for these disparities are, however, not well understood. Current data available on race, ethnicity, SEP, and accumulation and language use are severely limited. The report examines data collection and reporting systems relating to the collection of data on race, ethnicity, and socioeconomic position and offers recommendations.

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    Switch between the Original Pages, where you can read the report as it appeared in print, and Text Pages for the web version, where you can highlight and search the text.

    « Back Next »
  6. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  7. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  8. ×

    View our suggested citation for this chapter.

    « Back Next »
  9. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!