Cover Image

PAPERBACK
$48.00



View/Hide Left Panel

A
Workshop Agenda and Participants

INSTITUTE OF MEDICINE WORKSHOP ON DISABILITY IN AMERICA

August 1, 2005

AGENDA

8:30

Welcomes and Introductions

 

Alan Jette, Ph.D., Chair

Institute of Medicine Committee on Disability in America

 

Jose Cordero, M.D.

Director, National Center on Birth Defects and Development Centers for Disease Control and Prevention

 

Steven Tingus, M.S.

Director, National Institute for Disability and Rehabilitation Research

 

Michael Weinrich, M.D.

National Center for Medical Rehabilitation Research



The National Academies | 500 Fifth St. N.W. | Washington, D.C. 20001
Copyright © National Academy of Sciences. All rights reserved.
Terms of Use and Privacy Statement



Below are the first 10 and last 10 pages of uncorrected machine-read text (when available) of this chapter, followed by the top 30 algorithmically extracted key phrases from the chapter as a whole.
Intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text on the opening pages of each chapter. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

Do not use for reproduction, copying, pasting, or reading; exclusively for search engines.

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers A Workshop Agenda and Participants INSTITUTE OF MEDICINE WORKSHOP ON DISABILITY IN AMERICA August 1, 2005 AGENDA 8:30 Welcomes and Introductions   Alan Jette, Ph.D., Chair Institute of Medicine Committee on Disability in America   Jose Cordero, M.D. Director, National Center on Birth Defects and Development Centers for Disease Control and Prevention   Steven Tingus, M.S. Director, National Institute for Disability and Rehabilitation Research   Michael Weinrich, M.D. National Center for Medical Rehabilitation Research

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers 8:45 Disability Concepts, Models, and Measures   Issues and Questions Involving Adults Gale Whiteneck, Ph.D. Director of Research Craig Hospital   Issues and Questions Involving Children and Adolescents Rune Simeonsson, Ph.D. Professor of Education University of North Carolina   Research on Environmental Factors Julie Keysor, Ph.D. Assistant Professor of Physical Therapy Boston University Sargent College of Health and Rehabilitation Sciences   Discussion 10:20 Break 10:45 Trends in Disability   Trends in Disability in Late Life Vicki Freedman, Ph.D. Professor of Health Systems and Policy School of Public Health University of Medicine and Dentistry of New Jersey   Trends in Disability in Midlife Jay Bhattacharya, Ph.D. Assistant Professor of Medicine Center for Primary Care and Outcomes Research Stanford University   Trends in Disability in Early Life Ruth E.K. Stein, M.D. Professor of Pediatrics Albert Einstein College of Medicine/Children’s Hospital at Montefiore   Discussion

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers Noon Lunch 1:00 Aspects of Disability Across the Life Span   Risk Factors for Disability in Late Life Jack Guralnik, M.D., Ph.D. Chief, Epidemiology and Demography Section National Institute on Aging   Transitions for Adolescents with Disabilities John G. Reiss, Ph.D. Chief, Division of Policy and Program Affairs Institute for Child Health Policy University of Florida College of Medicine   Discussion 2:00 Secondary Health Conditions: Concepts, Data, and Examples (Part I)   Overview Margaret A. Turk, M.D. Professor of Physical Medicine and Rehabilitation State University of New York Upstate Medical University   Secondary Health Conditions and Aging with Disability: Consumer Perspective June Kailes, M.S.W. Disability Policy Consultant   Effects of Exercise on Specific Secondary Conditions James H. Rimmer, Ph.D., Professor Director, Center on Health Promotion Research for Persons with Disabilities University of Illinois at Chicago   Discussion 3:30 Break 3:50 Secondary Health Conditions (Part II)   Secondary Conditions with Spinal Cord Injury

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers   William A. Bauman, M.D. Professor of Medicine and Rehabilitation Medicine Mount Sinai School of Medicine   Depression as a Secondary Condition in Adults with Disability Bryan Kemp, Ph.D. Professor of Medicine and Psychology University of California, Irvine   Preventing the Progression of Secondary Conditions with Developmental Disabilities Tom Seekins, Ph.D. Director University of Montana Rural Institute   Discussion   Adjourn WORKSHOP PARTICIPANTS Registrants Gerald Adler Office of Research Centers for Medicare and Medicaid Services U.S. Department of Health and Human Services Noreen M. Aziz Senior Program Director Division of Cancer Control & Population Sciences National Cancer Institute National Institutes of Health M. Nell Bailey Rehabilitation Engineering and Assistive Technology Society of North America Laura Beckwith Executive Director Helen Keller Foundation Helena Berger Chief Operating Officer American Association of People with Disabilities Janis Berman March of Dimes Edward Brann Director Division of Human Development and Disability Centers for Disease Control and Prevention

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers Ruth Brannon Associate Director Division of Research Sciences National Institute on Disability and Rehabilitation Research Hazel Breland Occupational Therapist University of Pittsburgh Ethel Briggs Executive Director National Council on Disability Tricia Brooks Director of Government Relations Christopher Reeve Foundation Mary Cerreto Associate Professor of Family Medicine Boston University Daofen Chen Program Director of Systems and Cognitive Neuroscience National Institute of Neurological Disorders and Stroke Barney Cohen Director, Committee on Population National Academies Jose Cordero Director National Center on Birth Defects and Developmental Disabilities Deborah Cotter Senior Legislative Assistant Public Policy Office American Psychological Association David Coulter Associate Professor, Neurology Harvard Medical School John Crews Lead Scientist, Disability and Health Centers for Disease Control and Prevention M. Doreen Croser Executive Director American Association on Mental Retardation Diane Damiano Research Associate Professor of Neurology Washington University Representative, American Academy for Cerebral Palsy and Developmental Medicine Gerben DeJong Senior Fellow National Rehabilitation Hospital Robert Demichelis II Legislative Liaison Brain Injury Association of America Brian Denger Director of Education Parent Project Muscular Dystrophy Ketki Desai Graduate student researcher of occupational therapy University of Pittsburgh

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers John Ditunno Project Director Rehabilitation Medicine Regional Spinal Cord Injury Center of the Delaware Valley Thomas Jefferson University Sheila Fitzgerald President American Association of Occupational Health Nurses Karen Flippo Executive Director National Association of Councils on Developmental Disabilities Bruce M. Gans Kessler Rehabilitation Corporation Turner Goins Associate Professor West Virginia University Suzanne Goldberg National Heart, Lung, and Blood Institute National Institutes of Health Martin Gould Director of Research and Technology National Council on Disability Andrew Guccione Senior Vice President Division of Practice and Research American Physical Therapy Association Kenneth Harwood Director American Physical Therapy Association Ann A. Hohmann Chief Methods & Disablement Program National Institute of Mental Health Ann Huston Executive Director American Therapeutic Recreation Association George Jesien Executive Director Association of University Centers on Disabilities Maureen Kameda Association of Occupational Health Professionals Chapter Member, Virginia Anne M. Kennedy Muscular Dystrophy Association Anju Khubchandani Disability Issues Officer Public Interest Directorate American Psychological Association Robert Klein Statistician Office of the Actuary U.S. Department of Veterans Affairs Pamela Larsen Associate Dean/Director University of North Carolina at Charlotte

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers Paul Lipkin Chair Council on Children with Disabilities American Academy of Pediatrics Don Lollar Senior Research Scientist Centers for Disease Control and Prevention Elizabeth Lopez Substance Abuse & Mental Health Services Administration U.S. Department of Health and Human Services Michael Manganiello Senior Vice President, Government Relations Christopher Reeve Foundation Donna Martinez Graduate Student The George Washington University Dennis Matthews American Board of Physical Medicine and Rehabilitation Michael McGeary Study Director Institute of Medicine Merle McPherson Director Division of Services for Children with Special Needs U.S. Department of Health and Human Services J. Mark Melhorn American Academy of Orthopedic Surgeons John Melvin Thomas Jefferson University Justin Moore Director Congressional Affairs American Physical Therapy Association Charles Moseley Director of Special Projects National Association of State Directors of Developmental Disabilities Services Margaret Nygren Technical Assistance Director Association of University Centers on Disability Susan Palsbo Principal Research Associate Center for Health Policy, Research & Ethics D.E.B. Potter Senior Survey Statistician Agency for Healthcare Research and Quality Susan Prokop Associate Advocacy Director Paralyzed Veterans of America Louis Quatrano National Center for Medical Rehabilitation Research National Institutes of Health

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers Anne P. Rohall Director Government Relations National Association of Councils on Developmental Disabilities Paddy Rossbach President and CEO Amputee Coalition of America Peter Rzeszotarski Acting Associate Director Centers for Disease Control and Prevention Judith Sangl Health Scientist Administrator Agency for Healthcare Research and Quality Harvey Schwartz Senior Adviser for Priority Populations Agency for Healthcare Research and Quality Arthur Sherwood Science and Technology Advisor National Institute on Disability and Rehabilitation Research U.S. Department of Education Nancy Shinowara Program Director National Center for Medical Rehabilitation Research National Institute of Child Health and Human Development National Institutes of Health Elizabeth Skidmore Assistant Professor Department of Occupational Therapy University of Pittsburgh Frederick Somers Executive Director American Occupational Therapy Association Karen Steinberg Senior Science and Public Health Official (Acting) Coordinating Center for Health Promotion Centers for Disease Control and Prevention Donald Stockford Program Analyst Veterans Health Administration U.S. Department of Veterans Affairs Kathy Sykes Senior Adviser Aging Initiative U.S. Environmental Protection Agency Kate Tiedeman Intern Aging Initiative U.S. Environmental Protection Agency Steven Tingus Director National Institute on Disability and Rehabilitation Research U.S. Department of Education

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers Nancy White President Foundation of Physical Therapy John Whyte Director of Research Moss Rehabilitation Research Institute Carolyn Zollar Vice President Government Relations and Policy Development American Medical Rehabilitation Providers Association Presenters William A. Bauman Director Spinal Cord Damage Research Center Jay Bhattacharya Assistant Professor of Medicine Stanford University Vicki A. Freedman Professor Department of Health Systems and Policy School of Public Health University of Medicine and Dentistry of New Jersey Jack Guralnik Acting Chief Laboratory of Epidemiology, Demography and Biometry National Institute of Aging June Kailes Disability Policy Consultant Associate Director Adjunct Associate Professor Center for Disability Issues and the Health Professions Western University of Health Sciences Bryan Kemp Clinical Professor of Medicine and Psychology Director, Gerontology Program University of California, Irvine Director, Rehabilitation Research and Training Center on Aging with Disability Rancho Los Amigos National Rehabilitation Center John G. Reiss Chief, Division of Policy and Program Affairs Institute for Child Health Policy Associate Professor of Pediatrics and of Epidemiology and Health Policy Research University of Florida College of Medicine James H. Rimmer Professor and Director National Center on Physical Activity and Disability and Rehabilitation Engineering Research Center on Recreational Technologies and Exercise Physiology University of Illinois at Chicago

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers Tom Seekins Director RTC: Rural Professor of Psychology University of Montana Rune J. Simeonsson Professor of Education Frank Porter Graham Child Development Center University of North Carolina– Chapel Hill Ruth E.K. Stein Professor of Pediatrics and Vice Chair Department of Pediatrics Albert Einstein College of Medicine Margaret A. Turk Professor Physical Medicine & Rehabilitation State University of New York Upstate Medical Center Michael Weinrich Director National Center for Medical Rehabilitation Research National Institute of Child Health and Human Development Gale Whiteneck Director of Research Craig Hospital IOM Committee (as of workshop date) Alan M. Jette, Committee Chair Director Health & Disability Research Institute Boston University Elena Andresen Professor and Chief Epidemiology Division Department of Health Services Research, Management, and Policy University of Florida Health Sciences Center Dudley S. Childress Professor of Biomedical Engineering and Physical Medicine and Rehabilitation McCormick School of Engineering and Feinberg School of Medicine Northwestern University Vicki A. Freedman Professor Department of Health Systems and Policy School of Public Health University of Medicine and Dentistry of New Jersey Patricia Hicks Director Continuity of Care Clinic University of Texas Southwestern Medical School University of Texas Southwestern Medical Center at Dallas Lisa I. Iezzoni Professor of Medicine Harvard University and Beth Israel Deaconess Medical Center

OCR for page 39
Workshop on Disability in america A new look: Summary and background papers June Isaacson Kailes Associate Director Center for Disability Issues and the Health Professions Western University of Health Sciences Laura Mosqueda Director of Geriatrics Professor of Family Medicine University of California, Irvine School of Medicine P. Hunter Peckham Donnell Professor of Biomedical Engineering and Orthopedics Case Western Reserve University James Marc Perrin Professor of Pediatrics Harvard Medical School and Massachusetts General Hospital IOM Staff Marilyn J. Field, Study Director Afrah Ali, Senior Program Assistant Andrew Pope, Director, Board on Health Sciences Policy Linda G. Martin, Scholar in Residence