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Workshop on Disability in America: A New Look: Summary and Background Papers (2006)

Chapter: Appendix A Workshop Agenda and Participants

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Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
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A
Workshop Agenda and Participants

INSTITUTE OF MEDICINE WORKSHOP ON DISABILITY IN AMERICA

August 1, 2005

AGENDA

8:30

Welcomes and Introductions

 

Alan Jette, Ph.D., Chair

Institute of Medicine Committee on Disability in America

 

Jose Cordero, M.D.

Director, National Center on Birth Defects and Development Centers for Disease Control and Prevention

 

Steven Tingus, M.S.

Director, National Institute for Disability and Rehabilitation Research

 

Michael Weinrich, M.D.

National Center for Medical Rehabilitation Research

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

8:45

Disability Concepts, Models, and Measures

 

Issues and Questions Involving Adults

Gale Whiteneck, Ph.D.

Director of Research

Craig Hospital

 

Issues and Questions Involving Children and Adolescents

Rune Simeonsson, Ph.D.

Professor of Education

University of North Carolina

 

Research on Environmental Factors

Julie Keysor, Ph.D.

Assistant Professor of Physical Therapy

Boston University Sargent College of Health and Rehabilitation Sciences

 

Discussion

10:20

Break

10:45

Trends in Disability

 

Trends in Disability in Late Life

Vicki Freedman, Ph.D.

Professor of Health Systems and Policy

School of Public Health

University of Medicine and Dentistry of New Jersey

 

Trends in Disability in Midlife

Jay Bhattacharya, Ph.D.

Assistant Professor of Medicine

Center for Primary Care and Outcomes Research

Stanford University

 

Trends in Disability in Early Life

Ruth E.K. Stein, M.D.

Professor of Pediatrics

Albert Einstein College of Medicine/Children’s Hospital at Montefiore

 

Discussion

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

Noon

Lunch

1:00

Aspects of Disability Across the Life Span

 

Risk Factors for Disability in Late Life

Jack Guralnik, M.D., Ph.D.

Chief, Epidemiology and Demography Section

National Institute on Aging

 

Transitions for Adolescents with Disabilities

John G. Reiss, Ph.D.

Chief, Division of Policy and Program Affairs

Institute for Child Health Policy

University of Florida College of Medicine

 

Discussion

2:00

Secondary Health Conditions: Concepts, Data, and Examples (Part I)

 

Overview

Margaret A. Turk, M.D.

Professor of Physical Medicine and Rehabilitation

State University of New York Upstate Medical University

 

Secondary Health Conditions and Aging with Disability: Consumer Perspective

June Kailes, M.S.W.

Disability Policy Consultant

 

Effects of Exercise on Specific Secondary Conditions

James H. Rimmer, Ph.D., Professor

Director, Center on Health Promotion Research for Persons with Disabilities

University of Illinois at Chicago

 

Discussion

3:30

Break

3:50

Secondary Health Conditions (Part II)

 

Secondary Conditions with Spinal Cord Injury

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

 

William A. Bauman, M.D.

Professor of Medicine and Rehabilitation Medicine

Mount Sinai School of Medicine

 

Depression as a Secondary Condition in Adults with Disability

Bryan Kemp, Ph.D.

Professor of Medicine and Psychology

University of California, Irvine

 

Preventing the Progression of Secondary Conditions with Developmental Disabilities

Tom Seekins, Ph.D.

Director

University of Montana Rural Institute

 

Discussion

 

Adjourn

WORKSHOP PARTICIPANTS

Registrants

Gerald Adler

Office of Research

Centers for Medicare and Medicaid Services

U.S. Department of Health and Human Services

Noreen M. Aziz

Senior Program Director

Division of Cancer Control & Population Sciences

National Cancer Institute

National Institutes of Health

M. Nell Bailey

Rehabilitation Engineering and

Assistive Technology Society of North America

Laura Beckwith

Executive Director

Helen Keller Foundation

Helena Berger

Chief Operating Officer

American Association of People with Disabilities

Janis Berman

March of Dimes

Edward Brann

Director

Division of Human Development and Disability

Centers for Disease Control and Prevention

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

Ruth Brannon

Associate Director

Division of Research Sciences

National Institute on Disability and Rehabilitation Research

Hazel Breland

Occupational Therapist

University of Pittsburgh

Ethel Briggs

Executive Director

National Council on Disability

Tricia Brooks

Director of Government Relations

Christopher Reeve Foundation

Mary Cerreto

Associate Professor of Family Medicine

Boston University

Daofen Chen

Program Director of Systems and Cognitive Neuroscience

National Institute of Neurological Disorders and Stroke

Barney Cohen

Director, Committee on Population

National Academies

Jose Cordero

Director

National Center on Birth Defects and Developmental Disabilities

Deborah Cotter

Senior Legislative Assistant

Public Policy Office

American Psychological Association

David Coulter

Associate Professor, Neurology

Harvard Medical School

John Crews

Lead Scientist, Disability and Health

Centers for Disease Control and Prevention

M. Doreen Croser

Executive Director

American Association on Mental Retardation

Diane Damiano

Research Associate Professor of Neurology

Washington University

Representative, American Academy for Cerebral Palsy and Developmental Medicine

Gerben DeJong

Senior Fellow

National Rehabilitation Hospital

Robert Demichelis II

Legislative Liaison

Brain Injury Association of America

Brian Denger

Director of Education

Parent Project Muscular Dystrophy

Ketki Desai

Graduate student researcher of occupational therapy

University of Pittsburgh

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

John Ditunno

Project Director

Rehabilitation Medicine

Regional Spinal Cord Injury Center of the Delaware Valley

Thomas Jefferson University

Sheila Fitzgerald

President

American Association of Occupational Health Nurses

Karen Flippo

Executive Director

National Association of Councils on Developmental Disabilities

Bruce M. Gans

Kessler Rehabilitation Corporation

Turner Goins

Associate Professor

West Virginia University

Suzanne Goldberg

National Heart, Lung, and Blood Institute

National Institutes of Health

Martin Gould

Director of Research and Technology

National Council on Disability

Andrew Guccione

Senior Vice President

Division of Practice and Research

American Physical Therapy Association

Kenneth Harwood

Director

American Physical Therapy Association

Ann A. Hohmann

Chief

Methods & Disablement Program

National Institute of Mental Health

Ann Huston

Executive Director

American Therapeutic Recreation Association

George Jesien

Executive Director

Association of University Centers on Disabilities

Maureen Kameda

Association of Occupational Health Professionals

Chapter Member, Virginia

Anne M. Kennedy

Muscular Dystrophy Association

Anju Khubchandani

Disability Issues Officer

Public Interest Directorate

American Psychological Association

Robert Klein

Statistician

Office of the Actuary

U.S. Department of Veterans Affairs

Pamela Larsen

Associate Dean/Director

University of North Carolina at Charlotte

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

Paul Lipkin

Chair

Council on Children with Disabilities

American Academy of Pediatrics

Don Lollar

Senior Research Scientist

Centers for Disease Control and Prevention

Elizabeth Lopez

Substance Abuse & Mental Health Services Administration

U.S. Department of Health and Human Services

Michael Manganiello

Senior Vice President, Government Relations

Christopher Reeve Foundation

Donna Martinez

Graduate Student

The George Washington University

Dennis Matthews

American Board of Physical Medicine and Rehabilitation

Michael McGeary

Study Director

Institute of Medicine

Merle McPherson

Director

Division of Services for Children with Special Needs

U.S. Department of Health and Human Services

J. Mark Melhorn

American Academy of Orthopedic Surgeons

John Melvin

Thomas Jefferson University

Justin Moore

Director

Congressional Affairs

American Physical Therapy Association

Charles Moseley

Director of Special Projects

National Association of State Directors of Developmental Disabilities Services

Margaret Nygren

Technical Assistance Director

Association of University Centers on Disability

Susan Palsbo

Principal Research Associate

Center for Health Policy, Research & Ethics

D.E.B. Potter

Senior Survey Statistician

Agency for Healthcare Research and Quality

Susan Prokop

Associate Advocacy Director

Paralyzed Veterans of America

Louis Quatrano

National Center for Medical Rehabilitation Research

National Institutes of Health

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

Anne P. Rohall

Director

Government Relations

National Association of Councils on Developmental Disabilities

Paddy Rossbach

President and CEO

Amputee Coalition of America

Peter Rzeszotarski

Acting Associate Director

Centers for Disease Control and Prevention

Judith Sangl

Health Scientist Administrator

Agency for Healthcare Research and Quality

Harvey Schwartz

Senior Adviser for Priority Populations

Agency for Healthcare Research and Quality

Arthur Sherwood

Science and Technology Advisor

National Institute on Disability and Rehabilitation Research

U.S. Department of Education

Nancy Shinowara

Program Director

National Center for Medical Rehabilitation Research

National Institute of Child Health and Human Development

National Institutes of Health

Elizabeth Skidmore

Assistant Professor

Department of Occupational Therapy

University of Pittsburgh

Frederick Somers

Executive Director

American Occupational Therapy Association

Karen Steinberg

Senior Science and Public Health Official (Acting)

Coordinating Center for Health Promotion

Centers for Disease Control and Prevention

Donald Stockford

Program Analyst

Veterans Health Administration

U.S. Department of Veterans Affairs

Kathy Sykes

Senior Adviser

Aging Initiative

U.S. Environmental Protection Agency

Kate Tiedeman

Intern

Aging Initiative

U.S. Environmental Protection Agency

Steven Tingus

Director

National Institute on Disability and Rehabilitation Research

U.S. Department of Education

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

Nancy White

President

Foundation of Physical Therapy

John Whyte

Director of Research

Moss Rehabilitation Research Institute

Carolyn Zollar

Vice President

Government Relations and Policy Development

American Medical Rehabilitation Providers Association

Presenters

William A. Bauman

Director

Spinal Cord Damage Research Center

Jay Bhattacharya

Assistant Professor of Medicine

Stanford University

Vicki A. Freedman

Professor

Department of Health Systems and Policy

School of Public Health

University of Medicine and Dentistry of New Jersey

Jack Guralnik

Acting Chief

Laboratory of Epidemiology, Demography and Biometry

National Institute of Aging

June Kailes

Disability Policy Consultant

Associate Director

Adjunct Associate Professor

Center for Disability Issues and the Health Professions

Western University of Health Sciences

Bryan Kemp

Clinical Professor of Medicine and Psychology

Director, Gerontology Program

University of California, Irvine

Director, Rehabilitation Research and Training Center on Aging with Disability

Rancho Los Amigos National Rehabilitation Center

John G. Reiss

Chief, Division of Policy and Program Affairs

Institute for Child Health Policy

Associate Professor of Pediatrics and of Epidemiology and Health Policy Research

University of Florida College of Medicine

James H. Rimmer

Professor and Director

National Center on Physical Activity and Disability and Rehabilitation Engineering

Research Center on Recreational Technologies and Exercise Physiology

University of Illinois at Chicago

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

Tom Seekins

Director

RTC: Rural

Professor of Psychology

University of Montana

Rune J. Simeonsson

Professor of Education

Frank Porter Graham

Child Development Center

University of North Carolina– Chapel Hill

Ruth E.K. Stein

Professor of Pediatrics and Vice Chair

Department of Pediatrics

Albert Einstein College of Medicine

Margaret A. Turk

Professor

Physical Medicine & Rehabilitation

State University of New York Upstate Medical Center

Michael Weinrich

Director

National Center for Medical Rehabilitation Research

National Institute of Child Health and Human Development

Gale Whiteneck

Director of Research

Craig Hospital

IOM Committee (as of workshop date)

Alan M. Jette, Committee Chair

Director

Health & Disability Research Institute

Boston University

Elena Andresen

Professor and Chief

Epidemiology Division

Department of Health Services Research, Management, and Policy

University of Florida Health Sciences Center

Dudley S. Childress

Professor of Biomedical Engineering and Physical Medicine and Rehabilitation

McCormick School of Engineering and Feinberg School of Medicine

Northwestern University

Vicki A. Freedman

Professor

Department of Health Systems and Policy

School of Public Health

University of Medicine and Dentistry of New Jersey

Patricia Hicks

Director

Continuity of Care Clinic

University of Texas Southwestern Medical School

University of Texas Southwestern Medical Center at Dallas

Lisa I. Iezzoni

Professor of Medicine

Harvard University and Beth Israel Deaconess Medical Center

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×

June Isaacson Kailes

Associate Director

Center for Disability Issues and the Health Professions

Western University of Health Sciences

Laura Mosqueda

Director of Geriatrics

Professor of Family Medicine

University of California, Irvine School of Medicine

P. Hunter Peckham

Donnell Professor of Biomedical Engineering and Orthopedics

Case Western Reserve University

James Marc Perrin

Professor of Pediatrics

Harvard Medical School and Massachusetts General Hospital

IOM Staff

Marilyn J. Field, Study Director

Afrah Ali, Senior Program Assistant

Andrew Pope, Director,

Board on Health Sciences Policy

Linda G. Martin, Scholar in Residence

Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 39
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 40
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 41
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 42
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 43
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 44
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 45
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 46
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 47
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 48
Suggested Citation:"Appendix A Workshop Agenda and Participants." Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press. doi: 10.17226/11579.
×
Page 49
Next: Appendix B Conceptual Models of Disability: Past, Present, and Future--Gale Whiteneck »
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Beginning in late 2004, the IOM began a project to take a new look at disability in America. It will review developments and progress since the publication of the 1991 and 1997 Institute reports. For technical contracting reasons, the new project was split into two phases. During the limited first phase, a committee appointed by IOM planned and convened a 1-day workshop to examine a subset of topics as background for the second phase of project. As was agreed upon with the sponsor of the workshop, the Centers for Disease Control and Prevention (CDC), the topics were:

  • methodological and policy issues related to the conceptualization, definition, measurement, and monitoring of disability and health over time;
  • trends in the amount, types, and causes of disability;
  • disability across the age spectrum and in the context of normal aging; and
  • secondary health conditions.

The phase-one workshop was held in Washington, D.C. on August 1, 2005. Its participants included researchers, clinicians, social service professionals, policy experts, and consumer representatives and advocates. The meeting agenda and list of participants are included in Appendix A. Workshop on Disability in America: A New Look- Summary and Background Papers summarizes the workshop presentations and discussions. The background papers prepared for the workshop are included in Appendixes B through O. Some papers were submitted and circulated in advance of the meeting, whereas others were first presented at the meeting. The analyses, definitions, and views presented in the papers are those of the paper authors and are not necessarily those of the IOM committee. Likewise, the discussion summary is limited to the views of the workshop participants.

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