A
Workshop Agenda and Participants
INSTITUTE OF MEDICINE WORKSHOP ON DISABILITY IN AMERICA
August 1, 2005
AGENDA
8:30 |
Welcomes and Introductions |
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Alan Jette, Ph.D., Chair Institute of Medicine Committee on Disability in America |
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Jose Cordero, M.D. Director, National Center on Birth Defects and Development Centers for Disease Control and Prevention |
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Steven Tingus, M.S. Director, National Institute for Disability and Rehabilitation Research |
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Michael Weinrich, M.D. National Center for Medical Rehabilitation Research |
8:45 |
Disability Concepts, Models, and Measures |
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Issues and Questions Involving Adults Gale Whiteneck, Ph.D. Director of Research Craig Hospital |
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Issues and Questions Involving Children and Adolescents Rune Simeonsson, Ph.D. Professor of Education University of North Carolina |
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Research on Environmental Factors Julie Keysor, Ph.D. Assistant Professor of Physical Therapy Boston University Sargent College of Health and Rehabilitation Sciences |
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Discussion |
10:20 |
Break |
10:45 |
Trends in Disability |
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Trends in Disability in Late Life Vicki Freedman, Ph.D. Professor of Health Systems and Policy School of Public Health University of Medicine and Dentistry of New Jersey |
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Trends in Disability in Midlife Jay Bhattacharya, Ph.D. Assistant Professor of Medicine Center for Primary Care and Outcomes Research Stanford University |
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Trends in Disability in Early Life Ruth E.K. Stein, M.D. Professor of Pediatrics Albert Einstein College of Medicine/Children’s Hospital at Montefiore |
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Discussion |
Noon |
Lunch |
1:00 |
Aspects of Disability Across the Life Span |
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Risk Factors for Disability in Late Life Jack Guralnik, M.D., Ph.D. Chief, Epidemiology and Demography Section National Institute on Aging |
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Transitions for Adolescents with Disabilities John G. Reiss, Ph.D. Chief, Division of Policy and Program Affairs Institute for Child Health Policy University of Florida College of Medicine |
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Discussion |
2:00 |
Secondary Health Conditions: Concepts, Data, and Examples (Part I) |
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Overview Margaret A. Turk, M.D. Professor of Physical Medicine and Rehabilitation State University of New York Upstate Medical University |
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Secondary Health Conditions and Aging with Disability: Consumer Perspective June Kailes, M.S.W. Disability Policy Consultant |
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Effects of Exercise on Specific Secondary Conditions James H. Rimmer, Ph.D., Professor Director, Center on Health Promotion Research for Persons with Disabilities University of Illinois at Chicago |
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Discussion |
3:30 |
Break |
3:50 |
Secondary Health Conditions (Part II) |
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Secondary Conditions with Spinal Cord Injury |
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William A. Bauman, M.D. Professor of Medicine and Rehabilitation Medicine Mount Sinai School of Medicine |
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Depression as a Secondary Condition in Adults with Disability Bryan Kemp, Ph.D. Professor of Medicine and Psychology University of California, Irvine |
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Preventing the Progression of Secondary Conditions with Developmental Disabilities Tom Seekins, Ph.D. Director University of Montana Rural Institute |
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Discussion |
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Adjourn |
WORKSHOP PARTICIPANTS
Registrants
Gerald Adler
Office of Research
Centers for Medicare and Medicaid Services
U.S. Department of Health and Human Services
Noreen M. Aziz
Senior Program Director
Division of Cancer Control & Population Sciences
National Cancer Institute
National Institutes of Health
M. Nell Bailey
Rehabilitation Engineering and
Assistive Technology Society of North America
Laura Beckwith
Executive Director
Helen Keller Foundation
Helena Berger
Chief Operating Officer
American Association of People with Disabilities
Janis Berman
March of Dimes
Edward Brann
Director
Division of Human Development and Disability
Centers for Disease Control and Prevention
Ruth Brannon
Associate Director
Division of Research Sciences
National Institute on Disability and Rehabilitation Research
Hazel Breland
Occupational Therapist
University of Pittsburgh
Ethel Briggs
Executive Director
National Council on Disability
Tricia Brooks
Director of Government Relations
Christopher Reeve Foundation
Mary Cerreto
Associate Professor of Family Medicine
Boston University
Daofen Chen
Program Director of Systems and Cognitive Neuroscience
National Institute of Neurological Disorders and Stroke
Barney Cohen
Director, Committee on Population
National Academies
Jose Cordero
Director
National Center on Birth Defects and Developmental Disabilities
Deborah Cotter
Senior Legislative Assistant
Public Policy Office
American Psychological Association
David Coulter
Associate Professor, Neurology
Harvard Medical School
John Crews
Lead Scientist, Disability and Health
Centers for Disease Control and Prevention
M. Doreen Croser
Executive Director
American Association on Mental Retardation
Diane Damiano
Research Associate Professor of Neurology
Washington University
Representative, American Academy for Cerebral Palsy and Developmental Medicine
Gerben DeJong
Senior Fellow
National Rehabilitation Hospital
Robert Demichelis II
Legislative Liaison
Brain Injury Association of America
Brian Denger
Director of Education
Parent Project Muscular Dystrophy
Ketki Desai
Graduate student researcher of occupational therapy
University of Pittsburgh
John Ditunno
Project Director
Rehabilitation Medicine
Regional Spinal Cord Injury Center of the Delaware Valley
Thomas Jefferson University
Sheila Fitzgerald
President
American Association of Occupational Health Nurses
Karen Flippo
Executive Director
National Association of Councils on Developmental Disabilities
Bruce M. Gans
Kessler Rehabilitation Corporation
Turner Goins
Associate Professor
West Virginia University
Suzanne Goldberg
National Heart, Lung, and Blood Institute
National Institutes of Health
Martin Gould
Director of Research and Technology
National Council on Disability
Andrew Guccione
Senior Vice President
Division of Practice and Research
American Physical Therapy Association
Kenneth Harwood
Director
American Physical Therapy Association
Ann A. Hohmann
Chief
Methods & Disablement Program
National Institute of Mental Health
Ann Huston
Executive Director
American Therapeutic Recreation Association
George Jesien
Executive Director
Association of University Centers on Disabilities
Maureen Kameda
Association of Occupational Health Professionals
Chapter Member, Virginia
Anne M. Kennedy
Muscular Dystrophy Association
Anju Khubchandani
Disability Issues Officer
Public Interest Directorate
American Psychological Association
Robert Klein
Statistician
Office of the Actuary
U.S. Department of Veterans Affairs
Pamela Larsen
Associate Dean/Director
University of North Carolina at Charlotte
Paul Lipkin
Chair
Council on Children with Disabilities
American Academy of Pediatrics
Don Lollar
Senior Research Scientist
Centers for Disease Control and Prevention
Elizabeth Lopez
Substance Abuse & Mental Health Services Administration
U.S. Department of Health and Human Services
Michael Manganiello
Senior Vice President, Government Relations
Christopher Reeve Foundation
Donna Martinez
Graduate Student
The George Washington University
Dennis Matthews
American Board of Physical Medicine and Rehabilitation
Michael McGeary
Study Director
Institute of Medicine
Merle McPherson
Director
Division of Services for Children with Special Needs
U.S. Department of Health and Human Services
J. Mark Melhorn
American Academy of Orthopedic Surgeons
John Melvin
Thomas Jefferson University
Justin Moore
Director
Congressional Affairs
American Physical Therapy Association
Charles Moseley
Director of Special Projects
National Association of State Directors of Developmental Disabilities Services
Margaret Nygren
Technical Assistance Director
Association of University Centers on Disability
Susan Palsbo
Principal Research Associate
Center for Health Policy, Research & Ethics
D.E.B. Potter
Senior Survey Statistician
Agency for Healthcare Research and Quality
Susan Prokop
Associate Advocacy Director
Paralyzed Veterans of America
Louis Quatrano
National Center for Medical Rehabilitation Research
National Institutes of Health
Anne P. Rohall
Director
Government Relations
National Association of Councils on Developmental Disabilities
Paddy Rossbach
President and CEO
Amputee Coalition of America
Peter Rzeszotarski
Acting Associate Director
Centers for Disease Control and Prevention
Judith Sangl
Health Scientist Administrator
Agency for Healthcare Research and Quality
Harvey Schwartz
Senior Adviser for Priority Populations
Agency for Healthcare Research and Quality
Arthur Sherwood
Science and Technology Advisor
National Institute on Disability and Rehabilitation Research
U.S. Department of Education
Nancy Shinowara
Program Director
National Center for Medical Rehabilitation Research
National Institute of Child Health and Human Development
National Institutes of Health
Elizabeth Skidmore
Assistant Professor
Department of Occupational Therapy
University of Pittsburgh
Frederick Somers
Executive Director
American Occupational Therapy Association
Karen Steinberg
Senior Science and Public Health Official (Acting)
Coordinating Center for Health Promotion
Centers for Disease Control and Prevention
Donald Stockford
Program Analyst
Veterans Health Administration
U.S. Department of Veterans Affairs
Kathy Sykes
Senior Adviser
Aging Initiative
U.S. Environmental Protection Agency
Kate Tiedeman
Intern
Aging Initiative
U.S. Environmental Protection Agency
Steven Tingus
Director
National Institute on Disability and Rehabilitation Research
U.S. Department of Education
Nancy White
President
Foundation of Physical Therapy
John Whyte
Director of Research
Moss Rehabilitation Research Institute
Carolyn Zollar
Vice President
Government Relations and Policy Development
American Medical Rehabilitation Providers Association
Presenters
William A. Bauman
Director
Spinal Cord Damage Research Center
Jay Bhattacharya
Assistant Professor of Medicine
Stanford University
Vicki A. Freedman
Professor
Department of Health Systems and Policy
School of Public Health
University of Medicine and Dentistry of New Jersey
Jack Guralnik
Acting Chief
Laboratory of Epidemiology, Demography and Biometry
National Institute of Aging
June Kailes
Disability Policy Consultant
Associate Director
Adjunct Associate Professor
Center for Disability Issues and the Health Professions
Western University of Health Sciences
Bryan Kemp
Clinical Professor of Medicine and Psychology
Director, Gerontology Program
University of California, Irvine
Director, Rehabilitation Research and Training Center on Aging with Disability
Rancho Los Amigos National Rehabilitation Center
John G. Reiss
Chief, Division of Policy and Program Affairs
Institute for Child Health Policy
Associate Professor of Pediatrics and of Epidemiology and Health Policy Research
University of Florida College of Medicine
James H. Rimmer
Professor and Director
National Center on Physical Activity and Disability and Rehabilitation Engineering
Research Center on Recreational Technologies and Exercise Physiology
University of Illinois at Chicago
Tom Seekins
Director
RTC: Rural
Professor of Psychology
University of Montana
Rune J. Simeonsson
Professor of Education
Frank Porter Graham
Child Development Center
University of North Carolina– Chapel Hill
Ruth E.K. Stein
Professor of Pediatrics and Vice Chair
Department of Pediatrics
Albert Einstein College of Medicine
Margaret A. Turk
Professor
Physical Medicine & Rehabilitation
State University of New York Upstate Medical Center
Michael Weinrich
Director
National Center for Medical Rehabilitation Research
National Institute of Child Health and Human Development
Gale Whiteneck
Director of Research
Craig Hospital
IOM Committee (as of workshop date)
Alan M. Jette, Committee Chair
Director
Health & Disability Research Institute
Boston University
Elena Andresen
Professor and Chief
Epidemiology Division
Department of Health Services Research, Management, and Policy
University of Florida Health Sciences Center
Dudley S. Childress
Professor of Biomedical Engineering and Physical Medicine and Rehabilitation
McCormick School of Engineering and Feinberg School of Medicine
Northwestern University
Vicki A. Freedman
Professor
Department of Health Systems and Policy
School of Public Health
University of Medicine and Dentistry of New Jersey
Patricia Hicks
Director
Continuity of Care Clinic
University of Texas Southwestern Medical School
University of Texas Southwestern Medical Center at Dallas
Lisa I. Iezzoni
Professor of Medicine
Harvard University and Beth Israel Deaconess Medical Center
June Isaacson Kailes
Associate Director
Center for Disability Issues and the Health Professions
Western University of Health Sciences
Laura Mosqueda
Director of Geriatrics
Professor of Family Medicine
University of California, Irvine School of Medicine
P. Hunter Peckham
Donnell Professor of Biomedical Engineering and Orthopedics
Case Western Reserve University
James Marc Perrin
Professor of Pediatrics
Harvard Medical School and Massachusetts General Hospital
IOM Staff
Marilyn J. Field, Study Director
Afrah Ali, Senior Program Assistant
Andrew Pope, Director,
Board on Health Sciences Policy
Linda G. Martin, Scholar in Residence