TABLE C-2 Other Recommendations of Potential Relevance




Ensuring Quality Cancer Care (IOM, 1999)

Recommendation 9 Services for the un- and underinsured should be enhanced to ensure entry to, and equitable treatment within, the cancer care system.

Recommendation 10 Studies are needed to find out why specific segments of the population (e.g., members of certain racial or ethnic groups, older patients) do not receive appropriate cancer care. These studies should measure provider and individual knowledge, attitudes, and beliefs, as well as other potential barriers to access to care.

Data Systems

Ensuring Quality Cancer Care (IOM, 1999)

Recommendation 7 A cancer data system is needed that can provide quality benchmarks for use by systems of care (such as hospitals, provider groups, and managed care systems).

Enhancing Data Systems to Improve the Quality of Cancer Care (IOM and NRC, 2000)

Recommendation 2 Congress should increase support to CDC for the National Program of Cancer Registries (NPCR) to improve the capacity of states to achieve complete coverage and timely reporting of incident cancer cases. NPCR’s primary purpose is cancer surveillance, but NPCR, together with SEER, has great potential to facilitate national, population-based assessments of the quality of cancer care through linkage studies and by serving as a sample frame for special studies.

Recommendation 3 Private cancer-related organizations should join the American Cancer society and the American College of Surgeons to provide financial support for the National Cancer Data Base. Expanded support would facilitate efforts underway to report quality benchmarks and performance data to institutions providing cancer care.

Recommendation 4 Federal research agencies (e.g., NCI, CDC, AHRQ, Health Care Financing Administration) should support research and demonstration projects to identify new mechanisms to organize and finance the collection of data from cancer care quality studies. Current data systems tend to be hospital based, while cancer care is shifting to outpatient settings. New models are needed to capture entire episodes of care, irrespective of the setting of care.

Recommendation 5 Federal research agencies (e.g., National Institutes of Health, Food and Drug Administration, CDC, VA) should support public private partnerships to develop technologies, including computer-based patient record systems and intranet-based communication systems, that will improve the availability, quality, and timeliness of clinical data relevant to assessing quality of cancer care.

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