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Abbrevations and Acronyms AAHRPP Association for the Accreditation of Human Research Protection Programs AAMC Association of American Medical Colleges ACC American College of Cardiology AHA American Heart Association AHIMA American Health Information Management Association AHRQ Agency for Healthcare Research and Quality AOD Accounting of disclosure ASCO American Society for Clinical Oncology BA Business associate CaBIG Cancer Biomedical Informatics Grid CCW Chronic Conditions Warehouse CDC Centers for Disease Control and Prevention CMS Centers for Medicare & Medicaid Services DES Diethylstilbestrol DUA Data use agreement ELSO Extracorporeal Life Support Organization EPHI Electronic protected health information EPHR Electronic personal health records EU European Union 

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 BEYOND THE HIPAA PRIVACY RULE FDA Food and Drug Administration FOIA Freedom of Information Act GAO Government Accountability Office GINA Genetic Information Nondiscrimination Act HAS Health Assessment Survey HEW U.S. Department of Health, Education and Welfare HHS U.S. Department of Health and Human Services HIC Health information custodians HIPAA Health Insurance Portability and Accountability Act HIT Health information technology HMAC Keyed-hash message authentication code HMO Health maintenance organization HMORN HMO Research Network ICMJE International Committee of Medical Journal Editors ICU Intensive care units INTERMACS Interagency Registry for Mechanically Assisted Circulatory Support IOM Institute of Medicine IPC Information and Privacy Commissioner IRB Institutional Review Board JHU Johns Hopkins University NAACCR North American Association of Central Cancer Registries NCAB National Cancer Advisory Board NCI National Cancer Institute NCVHS National Committee on Vital and Health Statistics NIH National Institutes of Health NIST National Institute of Standards and Technology NPDB National Practitioner Data Bank NTD Neural tube birth defects OCR Office for Civil Rights OECD Organisation for Economic Co-operation and Development OHRP Office for Human Research Protections PCPS Partners for Child Passenger Safety PDA Personal digital assistant

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 ABBREVIATIONS AND ACRONYMS PHI In HIPAA, protected health information; in PHIPA, personal health information PHIPA Personal Health Information Protection Act PRIM&R Public Responsibility in Medicine and Research REB Research ethics board SACHRP Secretary’s Advisory Committee on Human Research Protections SELECT Selenium and Vitamin E Cancer Prevention Trial SMOG Simple Measure of Gobbledegook UDE Unique data elements UNOS United Network for Organ Sharing VA U.S. Department of Veterans Affairs

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