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Appendix B Biographical Sketches of Workshop Participants David Blumenthal, M.D., M.P.P., formerly served as the National Coordina- tor for Health Information Technology under President Barack Obama. In this role he was charged with building an interoperable, private and secure nationwide health information system and supporting the widespread, meaningful use of health information technology (IT). Dr. Blumenthal re- ceived his undergraduate, medical, and public policy degrees from Harvard University and completed his residency in internal medicine at Massachu- setts General Hospital. Prior to his appointment to the administration, Dr. Blumenthal was a practicing primary care physician; Director, Institute for Health Policy; and the Samuel O. Thier Professor of Medicine and Professor of Health Policy at the Massachusetts General Hospital/Partners Health- Care System and Harvard Medical School. Dr. Blumenthal is a renowned health services researcher and national authority on health IT adoption. With his colleagues from Harvard Medical School, he authored the seminal studies on the adoption and use of health IT in the United States. He is the author of more than 200 scholarly publications, including most recently, “Heart of Power: Health and Politics in the Oval Office,” which tells the history of U.S. presidents’ involvement in health reform, from Franklin D. Roosevelt through George W. Bush. A member of the Institute of Medi- cine and a former board member and national correspondent for the New England Journal of Medicine, Dr. Blumenthal has held several leadership positions in medicine, government, and academia including Senior Vice President at Boston’s Brigham and Women’s Hospital; Executive Director of the Center for Health Policy and Management and Lecturer on Public Policy at the Kennedy School of Government; and as a professional staff 253

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254 PATIENTS CHARTING THE COURSE member on Senator Edward Kennedy’s Senate Subcommittee on Health and Scientific Research. He was the founding Chairman of AcademyHealth and served previously on the boards of the University of Chicago Health System and of the University of Pennsylvania Health System. He is recipient of the Distinguished Investigator Award from AcademyHealth, and a Doctor of Humane Letters from Rush University. Alice Bonner, Ph.D., R.N., FAANP, has been a gerontological nurse prac- titioner for the past 20 years. From 1997 to 2005 she was the Clinical Di- rector of Long Term Care and Geriatrics at the Fallon Clinic in Worcester, Massachusetts. From 2005 to 2009, Dr. Bonner was Executive Director at the Massachusetts Senior Care Foundation, an organization that works to improve the lives of older adults and persons with disabilities through research, education, and quality improvement. She is also an Assistant Pro- fessor at the Graduate School of Nursing, University of Massachusetts in Worcester, MA. Dr. Bonner is currently the Director of the Bureau of Health Care Safety and Quality at the Department of Public Health in Boston, MA. Her research interests include patient safety culture in healthcare organiza- tions, safe medication prescribing and management, and improving care transitions across settings. Kathy Buto, M.P.A., is Vice President for Health Policy, Government Affairs, at Johnson & Johnson (J&J). She has responsibility for providing policy analysis and developing positions on a wide range of issues, including the Medicare drug benefit, government reimbursement, coverage of new technologies, and regulatory requirements. In addition to reviewing how federal, state, and international government policies affect J&J products and customers, she is responsible for helping to identify areas of opportunity for J&J to take leadership in shaping healthcare policy. Prior to joining J&J, Ms. Buto was a Senior Health Adviser at the Congressional Budget Office, helping to develop the cost models for the Medicare drug benefit. Before that, she spent more than 18 years in senior positions at the Health Care Financing Administration, including Deputy Director, Center for Health Plans and Providers, and Associate Administrator for Policy. In these posi- tions, she headed the policy, reimbursement, research, and coverage func- tions for the agency, as well as managing Medicare’s fee-for-service and managed care operations. Ms. Buto received her B.A. from Douglass College and her M.P.A. from Harvard University. Michael E. Chernew, Ph.D., is a Professor in the Department of Health Care Policy at Harvard Medical School. Dr. Chernew’s research activities have focused on several areas including the causes and consequences of growth in healthcare expenditures. Ongoing work explores geographic variation in

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255 APPENDIX B spending growth and the relationship between individual and market factors in predicting rises in spending growth. Another branch of Dr. Chernew’s re- search focuses on the theory and evaluation of Value Based Insurance Design (VBID) packages that attempt to minimize financial barriers to high-value healthcare services. Several large companies have adopted these approaches, and Dr. Chernew’s ongoing work includes evaluations of these programs. Dr. Chernew received his B.A. from the University of Pennsylvania and his Ph.D. in economics from Stanford University, where his training focused on areas of applied microeconomics and econometrics. He is the Co-Editor of the American Journal of Managed Care and Senior Associate Editor of Health Services Research. Dr. Chernew is a member the Medicare Payment Advisory Commission (MedPAC), which is an independent agency established to ad- vise the U.S. Congress on issues affecting the Medicare program. He is also a member of the Congressional Budget Office’s Panel of Health Advisors and The Commonwealth Foundation’s Commission on a High Performance Health System. In 2000 and 2004, he served on technical advisory panels for the Centers for Medicare & Medicaid Services (CMS) that reviewed the assumptions used by the Medicare actuaries to assess the financial status of the Medicare trust funds. On the panels, Dr. Chernew focused on the methodology used to project trends in long-term healthcare cost growth. In 1998, he was awarded the John D. Thompson Prize for Young Investigators by the Association of University Programs in Public Health. In 1999, he received the Alice S. Hersh Young Investigator Award from the Association of Health Services Research. Both of these awards recognize overall con- tribution to the field of health services research. His 2008 article in Health Affairs “Impact of Decreasing Copayments on Medication Adherence within Disease Management Program,” was awarded the Research Award from the National Institute for Health Care Management. Dr. Chernew is a Faculty Research Fellow of the National Bureau of Economic Research, and he has served on the Editorial Boards of Health Affairs and Medical Care Research and Review. James B. Conway, M.S., is an adjunct faculty member of the Harvard School of Public Health and a Senior Fellow at the Institute for Health- care Improvement (IHI). He has served IHI as Senior Vice President from 2006–2009 and Senior Fellow from 2005 to 2006. From 1995 to 2005, he was Executive Vice President and Chief Operating Officer of Dana-Farber Cancer Institute (DFCI). Prior to joining DFCI, he had a 27-year career at Children’s Hospital, Boston in Radiology Administration, Finance, and as Assistant Hospital Director. His areas of expertise and interest include governance and executive leadership, patient safety, change management, and patient-/family-centered care. He holds an M.S. from Lesley College, Cambridge, MA. Jim is the winner of numerous awards including the 1999

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256 PATIENTS CHARTING THE COURSE ACHE Mass. Regents Award, the 2001 first Individual Leadership Award in Patient Safety by the Joint Commission on Accreditation of Healthcare Organizations and the National Committee for Quality Assurance. In 2008, he received the Picker Award for Excellence in the Advancement of Patient Centered Care and in 2009 the Mary Davis Barber Heart of Hospice Award from the Mass. Hospice and Palliative Care Federation. A Fellow of the American College of Healthcare Executives, he is a member of the Clinical Issues Advisory Council of the Massachusetts Hospital Association, and is a Distinguished Advisor to the Lucian Leape Institute for the National Patient Safety Foundation. Board service includes: Chair, The Partnership for Healthcare Excellence; board member, Winchester Hospital; member, Medically Induced Trauma Support Services (MITSS); member, Health Research and Education Trust (HRET); member NICHQ and Board of Advisors, American Cancer Society, New England Region. In government service, he is a member of the Commonwealth of Massachusetts Quality and Cost Council. Patrick Conway, M.D., M.Sc., is currently an Assistant Professor of Pe- diatrics at the University of Cincinnati College of Medicine. From 2008 to 2010, he was Chief Medical Officer at the Department of Health and Human Services (HHS) in the Office of the Assistant Secretary for Plan- ning and Evaluation, the policy division for the Office of the Secretary. In 2007–2008, Dr. Conway was a White House Fellow assigned to the Office of Secretary in HHS and the Director of the Agency for Healthcare Research and Quality. As Chief Medical Officer, he has a portfolio of work focused primarily on quality measurement and links to payment, health in- formation technology, and research and evaluation across the entire Depart- ment. He also served as the Executive Director of the Federal Coordinating Council on Comparative Effectiveness Research, coordinating investment of the $1.1 billion for this type of research in the American Reinvestment and Recovery Act Act. He was a Robert Wood Johnson Clinical Scholar and completed an M.S. focused on health services research at the University of Pennsylvania. Previously, he was a management consultant at McKin- sey & Company, serving senior management of mainly healthcare clients on strategy projects. He has published articles in journals such as Journal of the American Medical Association, New England Journal of Medicine, and Pediatrics and has given national presentations on topics including healthcare policy, quality of care, comparative effectiveness, hospitalist systems, and nurse staffing. He completed pediatrics residency at Children’s Hospital Boston. Dr. Conway is currently transitioning back to Cincinnati Children’s as Director of Hospital Medicine, leading more than 40 faculty and staff who are involved in the care of approximately a third of hospital

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257 APPENDIX B admissions to a system with more than $1 billion in revenue per year and a mission to improve outcomes for children. Helen Darling, M.A., is President of the National Business Group on Health, a nonprofit, membership organization devoted exclusively to pro- viding solutions to its employer-members’ most important healthcare prob- lems and representing large employers on health policy issues. Its 283 members, including 59 of the Fortune 100 in 2010, purchase health benefits for more than 50 million employees, retirees, and dependents. She was the 2009 recipient of the WorldatWork’s prestigious Keystone Award, in rec- ognition of sustained contributions to the field of Human Resources and Benefits. Ms. Darling serves on: the Committee on Performance Measure- ment of the National Committee for Quality Assurance (Co-chair for 10 years); the Medical Advisory Panel, Technology Evaluation Center (Blue Cross Blue Shield Association); the Boards of the National Quality Forum and the congressionally created Reagan-Udall Foundation; and the Medi- care Coverage Advisory Committee. Previously, she directed the purchasing of health benefits and disability at Xerox Corporation. Ms. Darling was health advisor to Senator David Durenberger on the Senate Finance Com- mittee. She directed three studies at the Institute of Medicine. Ms. Darling received a master’s degree in demography/sociology and a B.S. in history/ English, cum laude, from the University of Memphis. Don Eugene Detmer, M.D., M.A., is Professor Emeritus and Professor of Medical Education in the Department of Public Health Sciences at the University of Virginia, Senior Advisor to AMIA, and Visiting Professor at CHIME, University College of London. He is the Founder and Co-chair of the Blue Ridge Academic Health Group, chair of the IOM membership committee, and chair of the board of MedBiquitous. He is a member of the IOM, a lifetime Associate of the National Academies, and a fellow of AAAS, American College of Medical Informatics, American College of Sur- geons, and American College of Sports Medicine (emeritus). He sits on the Strategic Plan Work Group of the Policy Advisory Committee to the Office of the National Coordinator for HIT. He is the immediate past President and CEO of AMIA and chairs the Steering Committee of the AMIA Global Partnership Program and he is a past chairman of the IOM Board on Health Care Services, NLM Board of Regents, and the NCVHS. His M.D. degree is from the University of Kansas and his M.A. is from Cambridge University, U.K. His education and training included work at Kansas, Johns Hopkins, National Institutes of Health, Duke, IOM, and Harvard Business School. Faculty appointments have been held at University of Wisconsin-Madison, University of Utah, University of Virginia, and Cambridge University. He served as Vice-President for Health Sciences at Utah and Virginia. He

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258 PATIENTS CHARTING THE COURSE chaired the IOM committee that produced the Computer-based Patient Record reports of 1991 and 1997 and was a member of the IOM Errors and Quality Chasm reports. Dr. Detmer’s research interests include na- tional and international health information and communications policy, quality improvement, administrative medicine, vascular surgery, education of clinician-executives, and leadership of academic health sciences centers. Harvey V. Fineberg, M.D., Ph.D., is President of the Institute of Medicine. He served as Provost of Harvard University from 1997 to 2001, following 13 years as Dean of the Harvard School of Public Health. He has devoted most of his academic career to the fields of health policy and medical deci- sion making. His past research has focused on the process of policy devel- opment and implementation, assessment of medical technology, evaluation and use of vaccines, and dissemination of medical innovations. Dr. Fineberg helped found and served as President of the Society for Medical Decision Making and also served as consultant to the World Health Organization. At the Institute of Medicine, he has chaired and served on a number of panels dealing with health policy issues, ranging from AIDS to new medi- cal technology. He also served as a member of the Public Health Council of Massachusetts (1976–1979), as Chairman of the Health Care Technol- ogy Study Section of the National Center for Health Services Research (1982–1985), and as President of the Association of Schools of Public Health (1995–1996). Dr. Fineberg is co-author of the books Clinical Deci- sion Analysis, Innovators in Physician Education, and The Epidemic That Never Was, an analysis of the controversial federal immunization program against swine flu in 1976. He has co-edited several books on such diverse topics as AIDS prevention, vaccine safety, and understanding risk in society. He has also authored numerous articles published in professional journals. Dr. Fineberg is the recipient of several honorary degrees and the Joseph W. Mountin Prize from the U.S. Centers for Disease Control and Prevention. He earned his bachelor’s and doctoral degrees from Harvard University. Michael Fordis, M.D., is the founding director of the Center for Collabora- tive and Interactive Technologies at Baylor College of Medicine, Houston, Texas; the Director of the John M. Eisenberg Center for Clinical Deci- sions and Communication Sciences, the single national center supported by AHRQ for translation of comparative effectiveness research findings produced by the Effective Healthcare Program into actionable products for dissemination and use by clinicians, consumers, and policy makers to support decision making; Director of the Education Core of the AHRQ- funded Houston Center for Education and Research in Therapeutics; and the Senior Associate Dean for Continuing Medical Education and Senior Associate Dean for Continuing Medical Education at Baylor College of

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259 APPENDIX B Medicine. Dr. Fordis’ interests focus on applying technology to healthcare provider and patient learning, decision making, and behavioral change; clinical decision support; quality improvement; and development and use of resources for faculty engaged in teaching. He is nationally active in educa- tional and technology efforts, serving or having served in leadership and/or committee and task force positions for the Society for Academic Continuing Medical Education; the American Heart Association; the Association of American Medical Colleges; the Conjoint Committee for CME of the Coun- cil of Medical Specialty Societies; the Accreditation Review Committee for the Accreditation Council on Continuing Medical Education; and the MedBiquitous Consortium—the ANSI-accredited developer of information technology standards for healthcare education and competence assessment. Allan Frankel, M.D., trained as a pediatric anesthesiologist and practiced for 25 years as a cardiac and then general anesthesiologist in Boston hospitals—academic and community. He became in 1999 among the first U.S. Patient Safety Officers, helping develop the role for Harvard hospi- tals and Partners Healthcare in Boston. The focus of his research, journal publications, and 3 books has been studying effective leadership, team- work, communication and improvement to achieve operational excellence. Through his affiliation with two groups—the Institute for Healthcare Im- provement and Pascal Metrics—and through his research, he works di- rectly with hospital departments from Saudi Arabia to Scotland to Western Canada. Sherine E. Gabriel, M.D., is Professor of Medicine and of Epidemiology and the William J. and Charles H. Mayo Professor at Mayo Clinic. Her research has focused on the risks, determinants, costs, and outcomes of the rheumatic diseases, with a recent emphasis on cardiovascular comorbidity in rheumatoid arthritis. At Mayo Clinic, Dr. Gabriel serves as Co-Principal Investigator and Director of Education for the NIH-funded Center for Translational Sciences. She is also the Medical Director of the Mayo Clinic Office for Strategic Alliances and Vice-Chair of the Business Development Council. Extramurally, she serves on the Executive Board of the Observa- tional Medical Outcomes Partnership and is the recent past President of the American College of Rheumatology. Richard Gilfillan, M.D., is former President and CEO of Geisinger Health Plan (GHP) and Executive Vice President for System Insurance Operations at the Geisinger Health System. Dr. Gilfillan was responsible for Geisinger’s three managed care companies that provide a full spectrum of health ben- efit programs for individuals, employers, and Medicare beneficiaries. With $1 billion in revenues, GHP and its affiliated companies provide health

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260 PATIENTS CHARTING THE COURSE coverage to more than 225,000 members. He began his career as a fam- ily practitioner for the Georgetown University Community Health Plan. After establishing a family practice group in Massachusetts, he became Medical Director for Medigroup Central HMO, a Blue Cross of New Jersey managed care company in 1985. He was Chief Medical Officer for Inde- pendence Blue Cross from 1992 until 1995, when he became the General Manager of AmeriHealth New Jersey managed care subsidiary. Prior to joining Geisinger, Dr. Gilfillan was the Senior Vice President for National Network Management at Coventry Health Care. Dr. Gilfillan received his undergraduate and medical degrees from Georgetown University in Wash- ington, DC. He completed a family practice residency at Hennepin County Medical Center in Minneapolis. He also earned an M.B.A. from the Whar- ton School of the University of Pennsylvania. Dr. Gilfillan has served on numerous community and corporate boards. Clifford Goodman, Ph.D., is a Vice President at The Lewin Group, a health- care policy and human services consulting firm based in Falls Church, VA. He has more than 25 years of experience in such areas as health technology assessment, evidence-based health care, comparative effectiveness research, health economics, and studies pertaining to healthcare innovation, regula- tion, and payment. He directs studies and projects for an international range of government agencies; pharmaceutical, biotechnology, and medical device companies; healthcare provider institutions; and professional, industry, and patient advocacy groups. His recent work has involved such areas as oncol- ogy, cardiovascular disease, diabetes, obesity, end-stage renal disease, pan- demic influenza, follow-on biologics, systemic lupus erythematosus, wound care, low-back pain, health information technology, pharmacogenomics, diagnostic testing, organ donation and transplantation, personalized medi- cine, and policy applications of cost-effectiveness analysis. Dr. Goodman is acting director of the new Lewin Group Center for Comparative Effective- ness Research (CER). For HHS, Dr. Goodman has directed a contract for Lewin to provide a CER inventory and strategic framework for the Federal Coordinating Council for Comparative Effectiveness Research. He is chair (through May 2011) of the Medicare Evidence Development & Coverage Advisory Committee (MEDCAC) for the Centers for Medicare & Medic- aid Services. He has testified to Congress on issues pertaining to Medicare coverage of health care technology. Dr. Goodman also is a nationally rec- ognized health policy issues moderator and facilitator of expert panels and health industry advisory boards. He is a founding board member of Health Technology Assessment International and is a Fellow of the American In- stitute for Medical and Biological Engineering. He did his undergraduate work at Cornell University, received a master’s degree from the Georgia

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261 APPENDIX B Institute of Technology, and earned his doctorate from the Wharton School of the University of Pennsylvania. Joel Kupersmith, M.D., currently Chief Research and Development Officer at the Veterans Health Administration, is a graduate of New York Medical College, where he also completed his clinical residency in internal medicine. Subsequently, he completed a cardiology fellowship at Beth Israel Medical Center/Harvard Medical School. After research training in the Department of Pharmacology, Columbia College of Physicians and Surgeons, he joined the faculty of the Mt. Sinai School of Medicine where he rose to the rank of Professor and was Director of the Clinical Pharmacology section. After this he became Chief of Cardiology and V.V. Cooke Professor of Medicine at the University of Louisville and then Professor and Chairperson, Department of Medicine at the College of Human Medicine at Michigan State University. Dr. Kupersmith has been on many national and international committees involved in heart disease and on editorial boards of the American Journal of Medicine and two heart disease journals. He is a member of numer- ous professional organizations including the American Society for Clinical Investigation. Dr. Kupersmith is a winner of an Affirmative Action Award from the University of Louisville and an Alumni Association distinguished achievement award from New York Medical College. Dr. Kupersmith has also been a Visiting Scholar at the Hastings Center for Ethics. Dr. Kuper- smith was elected to the Governing Council, Medical School Section of the American Medical Association, is a member of the Association of American Medical Colleges Task Force on Fraud and Abuse, and has been a Site Visit Chair for the Liaison Committee on Medical Education. Joseph C. Kvedar, M.D., is the Founder and Director of the Center for Con- nected Health, applying communications technology and online resources to increase access and improve the delivery of quality medical services and patient care outside of the traditional medical setting. In his role with the Center for Connected Health, Dr. Kvedar is leading important research in the use of a combination of remote-monitoring technology, sensors, and online communications and intelligence to improve patient adherence, en- gagement, and clinical outcomes. Dr. Kvedar is internationally recognized for his leadership and vision in the field of connected health. Dr. Kvedar is co-editor of the book Home Telehealth: Connecting Care within the Com- munity, the first book to report on the applications of technology to deliver quality health care in the home. He is a past President and board member of the American Telemedicine Association (ATA), and in 2009, Dr. Kvedar was honored by the ATA with its Individual Leadership Award, recogniz- ing his significant contributions to connected health and telemedicine. Last

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262 PATIENTS CHARTING THE COURSE year, Mass High Tech, The Journal of New England Technology also named Dr. Kvedar an All-Star in the field of health care. Joyce Lammert, M.D., Ph.D., received her M.D. and Ph.D. from the Univer- sity of North Carolina at Chapel Hill and completed her Asthma, Allergy Fellowship at the University of Washington. She is the Chief of the Depart- ment of Medicine at Virginia Mason Medical Center in Seattle, WA, and a Clinical Associate Professor, University of Washington. She became a certified LEAN leader in 2002 and leads and sponsors many improvement events in support of the strategic goals for the organization. Dr. Lammert is a frequent speaker on the topic of physician compacts as a result of her role in leading the compact work at Virginia Mason in 2000. She is also actively involved in graduate medical education. She serves as President of the Board of NeighborCare Health. George D. Lundberg, M.D., a 1995 “pioneer” of the medical internet, Dr. Lundberg was born in Florida, grew up in rural southern Alabama and holds earned and honorary degrees from North Park College, Baylor Uni- versity, the University of Alabama (Birmingham and Tuscaloosa), the State University of New York, Syracuse, Thomas Jefferson University, and the Medical College of Ohio. He completed a clinical internship in Hawaii and a pathology residency in San Antonio. He served 11 years in the U.S. Army during the Vietnam War Era in San Francisco and El Paso. Dr. Lundberg was Professor of Pathology and Associate Director of Laboratories at the Los Angeles County/USC Medical Center for 10 years, and for 5 years was Professor and Chair of Pathology at the University of California, Davis. Dr. Lundberg has worked in tropical medicine in Central America and forensic medicine in New York, Sweden, and England. He is past President of the American Society of Clinical Pathologists. From 1982 to 1999, Dr. Lund- berg was at the American Medical Association as Editor-in- Chief, Scientific Information and Multimedia with editorial responsibility for its 39 medi- cal journals, American Medical News, and various Internet products, and JAMA. In 1999, Dr. Lundberg became Editor-in-Chief of Medscape, and the founding Editor-in-Chief of both Medscape General Medicine and CBS HealthWatch.com. In 2002, Dr. Lundberg was Special Healthcare Advisor to the Chairman and CEO of WebMD for 2 years. Later, he served as the Editor-in-Chief of The Medscape Journal of Medicine, the original open access general medical journal, and beginning in 2006, Editor-in-Chief of eMedicine from WebMD, the original open access comprehensive medi- cal textbook. A frequent lecturer, radio, television and webcasting guest and host, and a member of the Institute of Medicine, Dr. Lundberg was a Professor at Harvard University from 1993 to 2008. Dr. Lundberg left WebMD in 2009 and is now Editor-in-Chief, Cancer Commons; Editor-at-

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263 APPENDIX B Large, MedPage Today; a Consulting Professor at Stanford; and President and Board Chair of The Lundberg Institute. In 2000, the Industry Standard dubbed Dr. Lundberg “Online Health Care’s Medicine Man.” Daniel R. Masys, M.D., is Professor and Chair of the Department of Biomedical Informatics and Professor of Medicine at the Vanderbilt Uni- versity School of Medicine. Dr. Masys is an honors graduate of Princeton University (biochemistry and molecular genetics) and the Ohio State Uni- versity College of Medicine. He completed postgraduate training in internal medicine, hematology and medical oncology at the University of California, San Diego, and the Naval Regional Medical Center, San Diego. Prior to joining Vanderbilt, Dr. Masys was Director of Biomedical Informatics and Professor of Medicine at the University of California, San Diego. He also previously served as Director of the Lister Hill National Center for Bio- medical Communications, which is a research and development division of the National Library of Medicine. Dr. Masys’ research interests span a number of areas of informatics, including genome-phenome correlation us- ing electronic medical records data, the pooling and meta-analysis of HIV epidemiology data from multilingual international sources, creation of tools for clinical and translational research, and design and implementation of patient portals. Dr. Masys is an elected member of the Institute of Medicine. He is a Fellow of the American College of Physicians and the American College of Medical Informatics. He was a founding Associate Editor of the Journal of the American Medical Informatics Association, and has received numerous awards including the NIH Director’s Award and the U.S. Surgeon General’s Exemplary Service Medal. Michael McGinnis, M.D., M.P.P., is a physician, epidemiologist, and long- time contributor to national and international health programs and policy. He now is Senior Scholar and Director of the Institute of Medicine’s Round- table on Value & Science-Driven Health Care, as well as an elected IOM member. Much of his policy leadership stems from his four-administration tenure, perhaps unique among federal appointees, with continuous service through the Carter, Reagan, Bush, and Clinton administrations as the key point person for disease prevention and health promotion. Several still prominent initiatives were launched under his guidance, including the Healthy People national goals and objectives process, the Dietary Guide- lines for Americans and the U.S. Preventive Services Task Force. Interna- tionally, he served as Epidemiologist and State Director for the successful WHO smallpox eradication program in India, and more recently as Chair of the international task force to rebuild the health and human services sector in post-war in Bosnia.

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264 PATIENTS CHARTING THE COURSE Doriane Miller, M.D., is the inaugural Director of the Center for Commu- nity Health and Vitality at the University of Chicago Medical Center. The Center for Community Health and Vitality’s mission is to improve popula- tion health outcomes for residents on the south side of Chicago through community-engaged research, demonstration and service models. Prior to joining the University in January 2009, she served as National Program Director of New Health Partnerships, a demonstration project funded by The Robert Wood Johnson Foundation and the California Health Care Foundation on collaborative self-management support. Dr. Miller is also a faculty member of the Institute for Healthcare Improvement in Cambridge, MA. She joined Stroger Hospital of Cook County in March of 2005, as Associate Division Chief for General Internal Medicine, focusing her at- tention on mentoring and staff development, while serving as a community provider at Woodlawn Adult Health Center. Prior to going to Stroger, she served 2 years as the Senior Director for Quality and Clinical Research of the Health Research and Educational Trust of the American Hospital As- sociation where she focused on quality and patient safety demonstration projects. Dr. Miller also worked for 5 years as a program Vice-President at The Robert Wood Johnson Foundation where she was responsible for strategic planning and program design in the clinical quality improvement area, using clinical and community-based strategies. Programs developed under her direction include demonstration projects designed to help im- prove the quality of care for people with chronic health conditions such as asthma, diabetes, and depression. Dr. Miller’s work in the area of im- proving asthma outcomes through school and community interventions was noted by the American Academy of Asthma, Allergy and Immunology with a 2006 Special Recognition Award. Dr. Miller was a member of the 2002 Institute of Medicine committee that produced the report, Guidance for the National Healthcare Disparities Report. Dr. Miller was recognized by The Robert Wood Johnson Foundation’s Community Health Leader- ship Program in 1993 for her community-based efforts in improving the health and well-being of grandparents raising their grandchildren through an initiative called, Grandparents Who Care. Dr. Miller also brings more than 20 years of experience as a community-based primary care provider who has worked with under-served, minority populations, with a special interest in behavioral health. She served as Medical Director of the Maxine Hall Health Center of the San Francisco Department of Health, while also serving as Assistant Clinical Professor of Medicine in the Department of Medicine at San Francisco General Hospital, University of California, San Francisco. Dr. Miller received her medical degree from the University of Chicago. She completed a primary care internal medicine residency and a general medicine/clinical epidemiology fellowship at the University of California, San Francisco.

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265 APPENDIX B Farzad Mostashari, M.D., Sc.M., currently serves as a Senior Advisor for policy and programs with the Office of the National Coordinator for Health Information Technology at the U.S. Department of Health and Human Services. Previously, he served at the NYC Health Department (DOHMH) as Assistant Commissioner for the Primary Care Informa- tion Project, with the goal of encouraging and facilitating the adoption of prevention-oriented health information technology in underserved commu- nities. Dr. Mostashari also led the CDC-funded NYC Center of Excellence in Public Health Informatics, and an AHRQ-funded project focused on quality measurement at the point of care. Prior to this he established the Bureau of Epidemiology Services at the DOHMH, charged with providing epidemiologic and statistical expertise and data for decision making to the Agency. He was one of the lead investigators in the outbreaks of West Nile virus and anthrax in NYC, and among the first developers of real-time electronic disease surveillance systems nationwide. William D. Novelli, M.A., is a professor in the McDonough School of Business at Georgetown University. In addition to teaching in the M.B.A. program, he is working to establish a center for social enterprise at the school. From 2001 to 2009, he was CEO of AARP, a membership orga- nization of more than 40 million people aged 50 and older. During his tenure, the organization achieved important policy successes at national and state levels in health, financial security, good government, and other areas. It also doubled its budget, added 5 million new members, and ex- panded internationally. Prior to joining AARP, Mr. Novelli was President of the Campaign for Tobacco-Free Kids, whose mandate is to change public policies and the social environment, limit tobacco companies’ marketing and sales practices to children, and serve as a counterforce to the tobacco industry and its special interests. He now serves as Chairman of the board. Previously, he was Executive Vice President of CARE, the world’s largest private relief and development organization. He was responsible for all op- erations in the United Staes and abroad. CARE helps impoverished people in Africa, Asia, and Latin America through programs in health, agriculture, environmental protection and small business support. CARE also provides emergency relief to people in need. Earlier, Mr. Novelli co-founded and was President of Porter Novelli, now one of the world’s largest public rela- tions agencies and part of the Omnicom Group, an international marketing communications corporation. He directed numerous corporate accounts as well as the management and development of the firm. Porter Novelli was founded to apply marketing to social and health issues, and grew into an international marketing/public relations agency with corporate, not-for- profit, and government clients. He retired from the firm in 1990 to pursue a second career in public service. He was named one of the 100 most in-

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266 PATIENTS CHARTING THE COURSE fluential public relations professionals of the 20th century by the industry’s leading publication. Mr. Novelli is a recognized leader in social marketing and social change, and he has managed programs in cancer control, diet and nutrition, cardiovascular health, reproductive health, infant survival, pay increases for educators, charitable giving, and other programs in the United States and the developing world. He began his career at Unilever, a worldwide-packaged goods marketing company, moved to a major ad agency, and then served as Director of Advertising and Creative Services for the Peace Corps. In this role, Mr. Novelli helped direct recruitment efforts for the Peace Corps, VISTA, and social involvement programs for older Americans. He holds a B.A. from the University of Pennsylvania and an M.A. from Penn’s Annenberg School for Communication, and he pursued doctoral studies at New York University. He taught marketing manage- ment for 10 years in the University of Maryland’s M.B.A. program and also taught health communications there. He has lectured at many other institutions. He has written numerous articles and chapters on marketing management, marketing communications, and social marketing in journals, periodicals, and textbooks. His book, 50+: Give Meaning and Purpose to the Best Time of Your Life, was updated in 2008. Mr. Novelli serves on a number of boards and advisory committees. Todd Park joined HHS as Chief Technology Officer in August 2009. In this role, he is responsible for helping HHS leadership harness the power of data, technology, and innovation to improve the health and welfare of the nation. Mr. Park co-founded Athenahealth in 1997 and co-led its develop- ment over the following decade into one of the most innovative, socially oriented, and successful health information technology companies in the industry. Prior to Athenahealth, he served as a management consultant with Booz Allen & Hamilton, focusing on healthcare strategy, technology, and operations. Mr. Park has also served in a volunteer capacity as a Senior Fellow at the Center for American Progress, where he focused on health IT and health reform policy, and as senior healthcare advisor to Ashoka, a leading global incubator of social entrepreneurs, where he helped start a venture to bring affordable telehealth, drugs, diagnostics, and clean water to rural India. Mr. Park graduated magna cum laude and Phi Beta Kappa from Harvard College with an A.B. in economics. Murray Ross, Ph.D., is the Vice President of the Kaiser Foundation Health Plan and the Director of the Kaiser Permanente Institute for Health Policy in Oakland, CA. Kaiser Permanente (KP) is the nation’s largest private in- tegrated delivery system, providing health care to over eight million people in nine states and the District of Columbia. The Institute for Health Policy supports research, expert roundtables, and conferences intended to increase

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267 APPENDIX B understanding of policy issues and help identify solutions. Dr. Ross brings the valuable ability to absorb and synthesize complex healthcare issues, and to explain the practical implications of market developments and public policies to government leaders and healthcare industry decision makers. As a result, he is sought after as a speaker to national and international audi- ences on a wide range of healthcare topics. He holds a wealth of knowledge of the intricacies of Medicare and advises KP’s leadership on business and public policy issues arising from ongoing changes in that program. His cur- rent policy research focuses on how the U.S. health system can make more effective use of new drugs, devices, and medical procedures and how to encourage greater integration of care delivery to improve quality. Dr. Ross holds a number of internal and external advisory positions. Before joining KP in 2002, Dr. Ross spent most of his professional career as a policy advi- sor to the U.S. Congress. He served almost 5 years as the Executive Director of the Medicare Payment Advisory Commission, an influential nonpartisan agency charged with making recommendations on Medicare policy issues to the Congress. Previously, he spent 9 years at the Congressional Budget Office, most recently heading up the group charged with assessing the bud- getary impact of legislative proposals affecting the Medicare and Medicaid programs. Dr. Ross earned his doctorate in economics from the University of Maryland, College Park, and completed his undergraduate work in eco- nomics at Arizona State University. Karen R. Sepucha, Ph.D., is a Senior Scientist in the Health Decision Re- search Unit in the General Medicine Division at Massachusetts General Hospital and an Instructor in Medicine at Harvard Medical School. Her re- search and clinical interests involve developing and implementing tools and methods to improve the quality of significant medical decisions made by patients and clinicians. She focuses on situations where there is more than one medically appropriate option, and where the “best” choice depends not only on the science but also on integrating the patient’s preferences for different health outcomes. Dr. Sepucha was the medical editor for a series of five breast cancer patient decision aids (PtDAs) developed by the not- for-profit Foundation for Informed Medical Decision Making. The PtDAs have won seven media awards, and Dr. Sepucha has led the dissemination of these programs to more than 80 academic and community cancer centers across the country. Her most recent work is focused on developing instru- ments to measure the quality of decisions. The decision quality instruments assess the extent to which patients are informed, involved, and receive treat- ments that reflect what’s most important to them. Dr. Sepucha has been ac- tive in local, national, and international efforts to improve decision quality, including the International Patient Decision Aids Standards collaboration.

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268 PATIENTS CHARTING THE COURSE Diane Simmons is President and CEO of the Center for Information & Study on Clinical Research Participation, and she has extensive experience in managing a nonprofit. For more than ten years, she ran a $5 million United Way agency where she was responsible for the development and implementation of the agency’s strategic plan and she managed the func- tions of membership, marketing, programming, and finance. Prior to her involvement in running a nonprofit, she rose through the ranks of Citibank/ Citigroup to Vice President of Management Development and Training, then Chief of Staff to the head of Citibank Visa/MasterCard, and then to Vice President of Citigroup Insurance Marketing generating $80 million business income annually. Karen Smith, M.D., Ph.D., M.B.A., is Vice President of External Medical Relations (EMR) for the U.S. business of AstraZeneca PLC (AZ), head- quartered in London, England. As one of the world’s largest pharmaceuti- cal companies with healthcare sales of $29.5 billion, AZ is a leader in the research, development, manufacture, and marketing of prescription phar- maceuticals and the supply of healthcare services. Through the combined benefits of global capabilities and local market relationships, AZ is able to respond quickly and effectively to changing business needs in the targeted therapeutic areas of gastrointestinal, cardiovascular, neuroscience, respira- tory, oncology, and infection. Dr. Smith joined the company in 2007 to build and lead EMR in the creation of strategic partnerships with key orga- nizations and stakeholders across the U.S. market. EMR’s focus on clinical and scientific exchange through external relations maximizes opportunities to elevate patient health outcomes in clinical, societal, and policy arenas. Immediately prior to joining AZ, Dr. Smith held key management roles with Bristol-Myers Squibb (BMS) in Australia, Canada, and the United States. Most recently, Dr Smith was responsible for developing and man- aging post-marketing clinical trials across all brands and therapeutic areas for the BMS U.S. operation. In addition to holding executive management and medical roles within a number of large pharmaceuticals companies, she was the CEO/President of Boron Molecular, a start-up biotech com- pany focused on R&D as well as the production of biopharmaceuticals and fine chemicals. Dr. Smith has worked globally in Asia-Pacific, Japan, Canada, Australia, Europe, UK, and the United States. Dr. Smith holds an M.D. from the University of Warwick specializing in cardiology, a Ph.D. in oncology molecular genetics from the University of Washington, M.B.A. from the University of New England, and will receive her master’s degree in law this year from the University of Salford. She is a published scientist and reviewer for several clinical journals and currently holds several board seats as well as serving as the Co-Chair of the Coalition Against Major Disease, a collaboration between the biopharmaceutical industry, government agency scientists, patient groups, and other key stakeholders working together to

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269 APPENDIX B bring greater speed, efficiency, safety, and predictability to medical product development. Paul C. Tang, M.D., M.S., is an Internist and Vice President, Chief Medi- cal Information Officer at the Palo Alto Medical Foundation (PAMF) and Consulting Associate Professor of Medicine (Biomedical Informatics) at Stanford University. He received his B.S. and M.S. in electrical engineering from Stanford University and his M.D. from the University of California, San Francisco. He is Vice Chair of the federal Health Information Technol- ogy Policy Committee created by the American Recovery and Reinvestment Act and Chair of its Meaningful Use Work Group. Dr. Tang is an elected member of the IOM and serves on its Health Care Services Board. He chaired an IOM patient safety committee that published Patient Safety: A New Standard for Care and Key Capabilities of an Electronic Health Record System. Dr. Tang is a past Chair of the Board for the American Medical Informatics Association. He chairs the National Quality Forum’s (NQF) Health Information Technology Expert Panel and is a member of the NQF Consensus Standards Approval Committee. He is a member of the National Committee on Vital and Health Statistics (NCVHS) and Co- Chair of the NCVHS Quality Subcommittee. He co-chairs the Measurement Implementation Strategy Work Group of the Quality Alliance Steering Committee and chairs The Robert Wood Johnson Foundation’s National Advisory Council for ProjectHealth Design. Dr. Tang is a Fellow of the American College of Medical Informatics, the American College of Physi- cians, the College of Healthcare Information Management Executives, and the Healthcare Information and Management Systems Society. Sharon F. Terry, M.A., is President and CEO of the Genetic Alliance, a network transforming health by promoting an environment of openness centered on the health of individuals, families, and communities. She is the founding Executive Director of PXE International, a research advocacy or- ganization for the genetic condition pseudoxanthoma elasticum (PXE). Fol- lowing the diagnosis of their two children with PXE in 1994, Ms. Terry, a former college chaplain, and her husband, Patrick, founded and built a dy- namic organization that enables ethical research and policies and provides support and information to members and the public. She is at the forefront of consumer participation in genetics research, services, and policy and serves as a member of many of the major governmental advisory commit- tees on medical research, including the HIT Standards Committee for the Office of the National Coordinator for Health Information Technology, liaison to the Secretary’s Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children, and the National Advisory Council for Human Genome Research, NHGRI, NIH. She serves on the boards of GRAND Therapeutics Foundation, the Center for Information

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270 PATIENTS CHARTING THE COURSE & Study on Clinical Research Participation, The Biotechnology Institute, National Coalition of Health Professional Education in Genetics, and the Coalition for 21st Century Medicine. She is on the steering committees of Genetic Association Information Network of NHGRI, the CETT program, and the EGAPP Stakeholders Group, the editorial boards of Genetic Test- ing and Biomarkers and Biopreservation and Biobanking, and the boards of Google Health and Rosalind Franklin Society Advisory. She is the Chair of the Coalition for Genetic Fairness that was instrumental in the passage of the Genetic Information Nondiscrimination Act. She is a member of the IOM Roundtable on Translating Genomic-Based Research for Health. In 2005, she received an honorary doctorate from Iona College for her work in community engagement and haplotype mapping; in 2007 received the first Patient Service Award from the UNC Institute for Pharmacogenomics and Individualized Therapy; and in 2009 received the Research!America Distinguished Organization Advocacy Award. She has recently been named an Ashoka Fellow. Ms. Terry is a co-founder of the Genetic Alliance Bio- bank. It is a centralized biological and data (consent/clinical/environmen- tal) repository catalyzing translational genomic research on rare genetic diseases. The BioBank works in partnership with academic and industrial collaborators to develop novel diagnostics and therapeutics to better under- stand and treat these diseases. Along with the other co-inventors of the gene associated with PXE (ABCC6), she holds the patent for the invention. She co-directs a 33-lab research consortium and manages 52 offices worldwide for PXE International. Deborah Trautman, Ph.D., R.N., has held clinical and administrative leadership positions at the University of Pittsburgh Medical Center and the Johns Hopkins Medical Institutions. Most recently, she has served as the Vice President of Patient Care Services for Howard County General Hospital, part of the Johns Hopkins Health System, and as Director of Nursing for Emergency Medicine at the Johns Hopkins Hospital, and she has a Joint Appointment at the Johns Hopkins University School of Nurs- ing. She received a B.S.N. from West Virginia Wesleyan College, an M.S.N. with emphasis on education and administration from the University of Pittsburgh, and a Ph.D. in health policy from the University of Maryland’s Department of Public Policy. Her dissertation research examined emer- gency department screening for intimate partner violence, and her research interests include women’s health, healthcare disparities, violence, and clini- cal service excellence. She has authored and coauthored publications on intimate partner violence, pain management, clinical competency, change management, cardiopulmonary bypass, the use of music in the emergency department, and consolidating emergency services. As a member of the se- nior leadership at the Johns Hopkins Hospital, she represents the hospital on the Baltimore City Domestic Violence Fatality Review Team. Dr. Traut-

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271 APPENDIX B man is a Magnet Appraiser Fellow for the American Nurses Association Credentialing Center Commission on Accreditation. She previously served on the Society for Academic Emergency Medicine’s Public Health Inter- est Group, the Baltimore City Mayor’s Task Force on Domestic Violence, and the Johns Hopkins University President’s Council on Urban Health Violence Prevention Workgroup. Her health policy interests include emer- gency patient care, emergency nursing practice, women’s health, healthcare disparities, access to health care, and improving healthcare delivery. She is a 2007–2008 Robert Wood Johnson Health Policy Fellow working for the Honorable Nancy Pelosi, Speaker of the House, House of Representatives. Dale Collins Vidal, M.D., M.S., is Director of the Center for Informed Choice at The Dartmouth Institute for Health Policy and Clinical Practice and Professor of Surgery and Chief of Plastic Surgery at DHMC. As a leader in healthcare transparency and shared decision making, Dr. Vidal’s research efforts and expertise involve patients’ medical decision making and the use of health information technology systems to promote patient- centered care. She is actively engaged in a number of activities in support of shared decision making in healthcare delivery and healthcare policy reform. She has served as a member of the Agency for Healthcare Research and Quality (AHRQ) Technical Expert Panel on Formative Research to Inform the Development of Preventive Services Tools Based on USPSTF Recom- mendations for Clinicians and Consumers to improve healthcare quality. Frances M. Visco, J.D., is the first president of the National Breast Can- cer Coalition (NBCC), as well as a member of its Board of Directors and Executive Committee. Prior to NBCC, Ms. Visco was a partner in a Philadelphia law firm. In 1993, President Clinton appointed Ms. Visco as one of three members of the President’s Cancer Panel, and she was the first consumer to chair the Integration Panel of the Department of Defense Peer-Review Breast Cancer Research Program. She co-chaired the National Action Plan on Breast Cancer and served on the National Cancer Policy Board. Ms. Visco has testified before Congress, has lectured throughout the US and internationally on the politics of breast cancer issues, and has been a frequent guest on national television discussing women’s health. She has been a member of Institute of Medicine panels and has served on other policy committees, including the steering committees of the Breast Cancer International Research Group and the Experts Advisory Panel for the Universal Health Insurance Program at the New America Foundation. Ms. Visco is a more than 20-year breast cancer survivor. She is an honors graduate of St. Joseph’s University and of Villanova University School of Law, where she was an Editor of the Villanova Law Review and a Chair of the Women’s Law Caucus.

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272 PATIENTS CHARTING THE COURSE Myrl Weinberg, M.A., C.A.E., is President of the National Health Council, an umbrella organization that has served as the place where “the health community meets” for 84 years. The Council’s 105 members are national health-related organizations. Its goals are to promote quality health care for all people, to promote the importance of medical research, and to promote the role of voluntary health agencies, also called patient-based groups. Ms. Weinberg’s career has focused on health, medical research, long-term care, social security, and related issues that affect persons with chronic diseases and/or disabilities. Before joining the Council, Ms. Weinberg held numerous managerial positions at the American Diabetes Association, in- cluding serving as Vice President for Corporate Relations and Public Af- fairs. Ms. Weinberg has a long history of board and committee service, including serving as a member of the IOM Health Sciences Policy Board. She was honored to be selected to serve on the congressionally mandated IOM committee created to assess how research priorities are established at the NIH. Most recently, she served on the National Research Council/IOM Committee on the Organizational Structure of the NIH. In addition, Ms. Weinberg serves as Vice Chair of the Governing Board of the International Alliance of Patients’ Organizations. She also serves on the Roche Genetics Science and Ethics Advisory Committee and as a founding member for the Association for the Accreditation of Human Research Protection Programs. Ms. Weinberg pursued advanced graduate study at Purdue University. She holds an M.A. in special education from George Peabody College and a B.A. in psychology from the University of Arkansas. Anne F. Weiss, M.P.P., is Team Director and a Senior Program Officer at The Robert Wood Johnson Foundation. She directs the Foundation’s Quality/Equality programming, including its signature initiative, Aligning Forces for Quality. Before joining the Foundation in 1999, she was Senior Assistant Commissioner in the New Jersey Department of Health & Senior Services, where she oversaw the state’s regulation of hospitals and health plan quality. She also served as Executive Director of New Jersey’s health reform commission in the mid-1990s and led the design and implementa- tion of Health Access New Jersey, a subsidized health benefits plan. Before going to New Jersey, Ms. Weiss spent 10 years in Washington, DC, where she was a professional staff member of the U.S. Senate Committee on Finance and a Senior Examiner at the Office of Management and Budget. She began her career in the Office of the Assistant Secretary for Planning and Evaluation in the U.S. Department of Health and Human Services. Ms. Weiss holds an M.P.P. from the Kennedy School of Government at Harvard and a B.A. from Wellesley College.