Appendix G
Workshop Participants
Direct-to-Consumer Genetic Testing: A Cross-Academies Workshop
The National Academies
Washington, DC
August 31-September 1, 2009
Tanya Agurs-Collins, National Institutes of Health National Cancer Institute
Vincent Allen, Jr., National Institutes of Health National Human Genome Research Institute
Richard Apostol
Neeraj Arora, National Institutes of Health National Cancer Institute
Suresh Arya, National Institutes of Health
Ronald Bailey, Reason Magazine
Judith Benkendorf, American College of Medical Genetics
Barbara Bernhardt, Penn Center for the Integration of Genetic Health Care Technologies
Barbara Biesecker, National Institutes of Health
Laura Bishop, Kennedy Institute of Ethics, Georgetown University
Juli Bollinger, Genetics and Public Policy Center
Vence Bonham, National Institutes of Health National Human Genome Research Institute
Malorye Branca, Nature Biotechnology
Stan Brull, Center for Bioethics, University of Pennsylvania
Kee Chan, Boston University
Ashadeep Chandrareddy, Tufts Medical Center
Ralph Coates, Centers for Disease Control
Jennifer Costello, U.S. Government Accountability Office
Arkendra De, U.S. Food and Drug Administration
Maria Della Rocca, Genetic and Rare Diseases Information Center
Tania Diaz
Jennifer Dolan, University of Pennsylvania Health System
Britt Erickson, Chemical & Engineering News
Cathy Fomous, National Institutes of Health Office of Biotechnology Activities
Keolu Fox, National Institutes of Health
Santhi Ganesh, National Institutes of Health
Susan Hahn, University of Miami
Patrick Hanaway, Genova Diagnostics
Karen Hanson, U.S. Food and Drug Administration
Sarah Harding, National Institutes of Health National Human Genome Research Institute
Emily Harris, National Institutes of Health National Institute of Dental and Craniofacial Research
Erin Heath, American Association for the Advancement of Science
Laura Hercher, Sarah Lawrence College Joan H. Marks Human Genetics Program
Christine Hodakievic, U.S. Government Accountability Office
Gillian Hooker, Georgetown University / Lombardi Comprehensive Cancer Center
Sandra Howard, U.S. Department of Health and Human Services Office of the Assistant Secretary for Planning and Evaluation
Jordanna Joaquina, AccessDNA
Sarah Kalia, National Institutes of Health Graduate Partnership Program
Pei Koay, Center for Contemporary History and Policy, Chemical Heritage Foundation
Kenneth Kornman, Interleukin Genetics
Vinayak Kottoor, Johns Hopkins University
Alanna Kulchak, Rahm Kaiser Permanente
Marcie Lambrix, Case Western Reserve University
Jane Lee, National Institutes of Health / Johns Hopkins University
Jennifer Leib, HealthFutures, LLC
Marcella McSorley, Global Clinical Solutions, Inc.
Radha Menon, U.S. Food and Drug Administration
Richard Merrill, University of Virginia
Isis Mikhail, National Institutes of Health National Cancer Institute
Francisco Murillo, U.S. Food and Drug Administration
Melanie Myers, University of Cincinnati and Cincinnati Children’s Hospital Medical Center
Vivian Ota Wang, National Institutes of Health National Nanotechnology Coordination Office
Belen Pappa
Paul Partha, Interleukin Genetics
Andre Pilon, National Institutes of Health National Human Genome Research Institute
Susan Poland, Kennedy Institute of Ethics, Georgetown University
Tabitha Powledge, National Association of Science Writers
Andrew Pratt, Center for American Progress
Edward Ramos, National Institutes of Health
Erin Ramos, National Institutes of Health National Human Genome Research Institute
John Richardson, National Society of Genetic Counselors
Roslyn Rodriguez, University of the Philippines, Philippine General Hospital
Michael Rugnetta, Center for American Progress
Leah Sansbury, National Institutes of Health National Cancer Institute
Amanda Sarata, Congressional Research Service
Sheri Schully, National Institutes of Health National Cancer Institute
Joan Scott, Genetics and Public Policy Center
Mona Shah, American Cancer Society Cancer Action Network
Fay Shamanski, College of American Pathologists
Celia Sharp
Artemis Simopoulos, The Center for Genetics Nutrition and Health
Amanda Singleton, National Institutes of Health
Jennifer Smith, FDA Week
Pothur Srinivas, National Institutes of Health
Rebecca Sutphen, Moffitt Cancer Center at the University of South Florida
Melanie Swan, MS Futures Group
Zivana Tezak, Office of In Vitro Diagnostic Device Evaluation and Safety, Center for Devices and Radiological Health, U.S. Food and Drug Administration
Christopher Wade, National Institutes of Health National Human Genome Research Institute
Lan-Hsiang Wang, National Institutes of Health National Heart, Lung and Blood Institute
Kay Wanke, National Institutes of Health
Edward Winstead, National Institutes of Health National Cancer Institute
Emily Wold, U.S. Government Accountability Office
Kristi Zonno, Genetic Alliance