Appendix G
Workshop Participants

Direct-to-Consumer Genetic Testing: A Cross-Academies Workshop

The National Academies

Washington, DC

August 31-September 1, 2009


Tanya Agurs-Collins, National Institutes of Health National Cancer Institute

Vincent Allen, Jr., National Institutes of Health National Human Genome Research Institute

Richard Apostol

Neeraj Arora, National Institutes of Health National Cancer Institute

Suresh Arya, National Institutes of Health

Ronald Bailey, Reason Magazine

Judith Benkendorf, American College of Medical Genetics

Barbara Bernhardt, Penn Center for the Integration of Genetic Health Care Technologies

Barbara Biesecker, National Institutes of Health

Laura Bishop, Kennedy Institute of Ethics, Georgetown University

Juli Bollinger, Genetics and Public Policy Center

Vence Bonham, National Institutes of Health National Human Genome Research Institute

Malorye Branca, Nature Biotechnology

Stan Brull, Center for Bioethics, University of Pennsylvania

Kee Chan, Boston University

Ashadeep Chandrareddy, Tufts Medical Center

Ralph Coates, Centers for Disease Control

Jennifer Costello, U.S. Government Accountability Office

Arkendra De, U.S. Food and Drug Administration

Maria Della Rocca, Genetic and Rare Diseases Information Center

Tania Diaz



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Appendix G Workshop Participants Direct-to-Consumer Genetic Testing: A Cross-Academies Workshop The National Academies Washington, DC August 31-September 1, 2009 Tanya Agurs-Collins, National Institutes of Health National Cancer Institute Vincent Allen, Jr., National Institutes of Health National Human Genome Research Institute Richard Apostol Neeraj Arora, National Institutes of Health National Cancer Institute Suresh Arya, National Institutes of Health Ronald Bailey, Reason Magazine Judith Benkendorf, American College of Medical Genetics Barbara Bernhardt, Penn Center for the Integration of Genetic Health Care Technologies Barbara Biesecker, National Institutes of Health Laura Bishop, Kennedy Institute of Ethics, Georgetown University Juli Bollinger, Genetics and Public Policy Center Vence Bonham, National Institutes of Health National Human Genome Research Institute Malorye Branca, Nature Biotechnology Stan Brull, Center for Bioethics, University of Pennsylvania Kee Chan, Boston University Ashadeep Chandrareddy, Tufts Medical Center Ralph Coates, Centers for Disease Control Jennifer Costello, U.S. Government Accountability Office Arkendra De, U.S. Food and Drug Administration Maria Della Rocca, Genetic and Rare Diseases Information Center Tania Diaz 

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0 APPENDIX G Jennifer Dolan, University of Pennsylvania Health System Britt Erickson, Chemical & Engineering News Cathy Fomous, National Institutes of Health Office of Biotechnology Activities Keolu Fox, National Institutes of Health Santhi Ganesh, National Institutes of Health Susan Hahn, University of Miami Patrick Hanaway, Genova Diagnostics Karen Hanson, U.S. Food and Drug Administration Sarah Harding, National Institutes of Health National Human Genome Research Institute Emily Harris, National Institutes of Health National Institute of Dental and Craniofacial Research Erin Heath, American Association for the Advancement of Science Laura Hercher, Sarah Lawrence College Joan H. Marks Human Genetics Program Christine Hodakievic, U.S. Government Accountability Office Gillian Hooker, Georgetown University / Lombardi Comprehensive Cancer Center Sandra Howard, U.S. Department of Health and Human Services Office of the Assistant Secretary for Planning and Evaluation Jordanna Joaquina, AccessDNA Sarah Kalia, National Institutes of Health Graduate Partnership Program Pei Koay, Center for Contemporary History and Policy, Chemical Heritage Foundation Kenneth Kornman, Interleukin Genetics Vinayak Kottoor, Johns Hopkins University Alanna Kulchak, Rahm Kaiser Permanente Marcie Lambrix, Case Western Reserve University Jane Lee, National Institutes of Health / Johns Hopkins University Jennifer Leib, HealthFutures, LLC Marcella McSorley, Global Clinical Solutions, Inc. Radha Menon, U.S. Food and Drug Administration Richard Merrill, University of Virginia Isis Mikhail, National Institutes of Health National Cancer Institute Francisco Murillo, U.S. Food and Drug Administration Melanie Myers, University of Cincinnati and Cincinnati Children’s Hospital Medical Center

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 APPENDIX G Vivian Ota Wang, National Institutes of Health National Nanotechnology Coordination Office Belen Pappa Paul Partha, Interleukin Genetics Andre Pilon, National Institutes of Health National Human Genome Research Institute Susan Poland, Kennedy Institute of Ethics, Georgetown University Tabitha Powledge, National Association of Science Writers Andrew Pratt, Center for American Progress Edward Ramos, National Institutes of Health Erin Ramos, National Institutes of Health National Human Genome Research Institute John Richardson, National Society of Genetic Counselors Roslyn Rodriguez, University of the Philippines, Philippine General Hospital Michael Rugnetta, Center for American Progress Leah Sansbury, National Institutes of Health National Cancer Institute Amanda Sarata, Congressional Research Service Sheri Schully, National Institutes of Health National Cancer Institute Joan Scott, Genetics and Public Policy Center Mona Shah, American Cancer Society Cancer Action Network Fay Shamanski, College of American Pathologists Celia Sharp Artemis Simopoulos, The Center for Genetics Nutrition and Health Amanda Singleton, National Institutes of Health Jennifer Smith, FDA Week Pothur Srinivas, National Institutes of Health Rebecca Sutphen, Moffitt Cancer Center at the University of South Florida Melanie Swan, MS Futures Group Zivana Tezak, Office of In Vitro Diagnostic Device Evaluation and Safety, Center for Devices and Radiological Health, U.S. Food and Drug Administration Christopher Wade, National Institutes of Health National Human Genome Research Institute Lan-Hsiang Wang, National Institutes of Health National Heart, Lung and Blood Institute Kay Wanke, National Institutes of Health Edward Winstead, National Institutes of Health National Cancer Institute Emily Wold, U.S. Government Accountability Office Kristi Zonno, Genetic Alliance

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