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A List of Acronyms AAP American Academy of Pediatrics ABCD Assuring Better Child Health and Development ACA Patient Protection and Affordable Care Act ACE Adverse Childhood Experiences Study ACO accountable care organization ACS American Community Survey ADD attention-deficit disorder Add Health National Longitudinal Study of Adolescent Health ADHD attention-deficit/hyperactivity disorder ADL activities of daily life AHRQ Agency for Healthcare Research and Quality AMA-PPMC American Medical Association-Physician Practice Management Company ARRA American Recovery and Reinvestment Act ASQ Ages and Stages Questionnaires BINS Bayley Infant Neurodevelopmental Screens BMI body mass index BRFSS Behavioral Risk Factor Surveillance Survey CAHMI Child and Adolescent Health Measurement Initiative CAHPS Consumer Assessment of Healthcare Providers and Systems CBO Congressional Budget Office CCS Clinical Classification System 233

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234 CHILD AND ADOLESCENT HEALTH CCU critical care unit CDC Centers for Disease Control and Prevention CDHCPF Colorado Department of Health Care Policy and Financing CHICA Child Health Improvement through Computer Automation CHIP Children’s Health Insurance Program CHIPRA Children’s Health Insurance Program Reauthorization Act CHP Center for Health Policy CMS Centers for Medicare and Medicaid Services COH Children’s Optimal Health CPI Consumer Price Index CPS Current Population Survey CSHCN Children with special health care needs CWI Child Well-Being Index DRC Data Resource Center for Child and Adolescent Health DX diagnosis EBP evidence-based practice ECLS-B Early Childhood Longitudinal Study-Birth Cohort ECLS-K Early Childhood Longitudinal Study-Kindergarten Class ED emergency department EDC Education Development Center E-HIE electronic health information exchange EHR electronic health record EPA Environmental Protection Agency EPC Evidence-based Practice Center EPSDT Early and periodic screening, diagnosis and treatment ETS Educational Testing Service FAcct Foundation for Accountability FERPA Family Educational Rights and Privacy Act of 1974 FIFCFS Federal Interagency Forum on Child and Family Statistics FPL federal poverty level GIS geographic information system GSMS Great Smoky Mountains Study HCUP Healthcare Cost and Utilization Project HEDIS Healthcare Effectiveness Data and Information Set HHS U.S. Department of Health and Human Services

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235 APPENDIX A HIPAA Health Insurance Portability and Accountability Act HIT Health information technology HITECH Health Information Technology for Economic and Clinical Health HRSA Health Resources and Services Administration ICD-9 International Classification of Diseases, Ninth Revision ICD-10 International Classification of Diseases, Tenth Revision ICF International Classification of Functioning ICU intensive care unit IHS Indian Health Service IOM Institute of Medicine IQI Inpatient Quality Indicator IT information technology KID Kids’ Inpatient Database KIDS Kids Integrated Data Set MACPAC Medicaid and CHIP Payment and Access Commission MCH maternal and child health MCHB Maternal and Child Health Bureau MCO managed care organization MEPS Medical Expenditure Panel Survey MMIS Medicaid Management Information System MOU Memorandum of Understanding MSIS Medicaid Statistical Information System MST multisystemic therapy NAMCS National Ambulatory Medical Care Survey NCES National Center for Education Statistics NCHHSTP National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention (Centers for Disease Control) NCHS National Center for Health Statistics NCQA National Committee for Quality Assurance NCS National Children’s Study NDACAN National Data Archive on Child Abuse and Neglect NDI National Death Index NEDS Nationwide Emergency Department Sample NHAMC National Hospital Ambulatory Medical Care Survey NHANES National Health and Nutrition Examination Survey NHCS National Health Care Survey NHDS National Hospital Discharge Survey NHES National Household Education Surveys

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236 CHILD AND ADOLESCENT HEALTH NHHCS National Home and Hospice Care Survey NHIS National Health Interview Survey NICHQ National Initiative for Children’s Healthcare Quality NICHSR National Information Center on Health Services Research and Health Care Technology NICU neonatal intensive care unit NIH National Institutes of Health NIMH National Institute of Mental Health NIS National Immunization Survey NIS Nationwide Inpatient Sample NORC National Opinion Research Center NQF National Quality Forum NRC National Research Council NS-CSHCN National Survey of Children with Special Health Care Needs NSAF National Survey of American Families NSCAW National Survey of Child and Adolescent Well-being NSCH National Survey of Children’s Health NSECH National Survey of Early Childhood Health NSFG National Survey of Family Growth NVSS National Vital Statistics System ODD oppositional defiant disorder OMB Office of Management and Budget PCOR Primary Care and Outcomes Research PCP primary care provider PDI Pediatric Quality Indicator Pedi-QS Pediatric Data Quality System Collaborative Measure Workgroup PEDS Parents’ Evaluations of Developmental Status PELL Pregnancy to Early Life Longitudinal PHDS Promoting Healthy Development Survey PHR personal health record PQI Prevention Quality Indicator PQRI Physician Quality Reporting Initiative PRAMS Pregnancy Risk Assessment and Monitoring System PROMIS Patient-Reported Outcomes Measurement Information System PSI Patient Safety Indicator PSID Panel Survey of Income Dynamics PSQIA Patient Safety and Quality Improvement Act of 2005

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237 APPENDIX A QISMC Quality Improvement System for Managed Care QSDE Qualified State-Designated Entity QUAL Quality RIACC Rhode Island Asthma Control Coalition RICCC Rhode Island Chronic Care Collaborative RWJF Robert Wood Johnson Foundation SASD State Ambulatory Surgery Databases SCHIP State Children’s Health Insurance Program (now CHIP) SED severe emotional distress SEDD State Emergency Department Databases SEER Surveillance, Epidemiology, and End Results SID State Inpatient Databases SIDS sudden infant death syndrome SIPP Survey of Income and Program Participation SLAITS State and Local Area Integrated Telephone Survey SNAC AHRQ Subcommittee on Quality Measures for Children in Medicaid and Children’s Health Insurance Programs SNOMED Systematized Nomenclature of Medicine SSI Supplemental Security Income STD sexually transmitted disease STI sexually transmitted infection TB tuberculosis UCLA University of California, Los Angeles UCSF University of California, San Francisco WHO World Health Organization WIC Supplemental Nutrition Program for Women, Infants, and Children WISQARS™ Web-based Injury Statistics Query and Reporting System WPPSI Wechsler Preschool and Primary Scale of Intelligence YAHCS Young Adult Health Care Survey YRBS Youth Risk Behavior Survey

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