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OCR for page 239
B
Workshop Agenda and Participants
Workshop on Pediatric Health and Health Care Quality
Measurement and Information Needs
Agenda
March 23, 2010
WORKSHOP GOALS:
• To highlight unmet measurement and information needs from a
broad group of data users
• To gather information to support the development of a
framework, a subset of measures, and a data system for child
health and health care quality measures
• To illustrate innovative and exemplary data collection efforts to
support the development of a framework for a comprehensive
data support system
WORKSHOP ORGANIZATION:
The workshop will be comprised of four sessions featuring speaker
presentations followed by panel discussions (15 minutes per speaker pre-
sentation; 30 minutes for each panel discussion).
The panels are organized to hear the perspectives of four major stake-
holder groups:
PANEL 1: Patients and Parents
PANEL 2: Providers
PANEL 3: Payers
PANEL 4: Policy makers
239
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240 CHILD AND ADOLESCENT HEALTH
PROGRAM:
8:40A Welcome Remarks
Gordon H. DeFriese, Ph.D., Committee Chair
Panel 1: Patients and Parents
8:55A – 9:40A
Moderator: Maxine Hayes, M.D., M.P.H., State
Health Officer, State of Washington, Department of
Health, Committee Member
Nora Wells, M.Ed., Director of Research Activities,
Family Voices
Darcy Gruttadaro, J.D., Director of the Child and
Adolescent Action Center, National Alliance on
Mental Illness
Judith Thierry, D.O., M.P.H., Maternal and
Child Health Coordinator, Office of Clinical and
Preventive Services, Indian Health Service,
U.S. Department of Health and Human Services
Panel 1 Discussion
9:40A – 10:10A
Panel 2: Providers
10:30A – 11:15A
Moderator: Glenn Flores, M.D., Judith and
Charles Ginsburg Chair in Pediatrics, Department
of Pediatrics, University of Texas Southwestern
Medical Center at Dallas, Committee Member
Linda Juszczak, D.N.Sc., M.P.H., M.S., C.P.N.P.,
Executive Director, National Association of School-
Based Health Care
Ed Schor, M.D., Vice President, State High
Performance Health Systems Program, The
Commonwealth Fund
Xavier Sevilla, M.D., Chief of Pediatrics, Manatee
County Rural Health Services, Inc., Whole
Child Pediatrics, and Chair, American Academy
of Pediatrics Steering Committee on Quality
Improvement and Management
Panel 2 Discussion
11:15A – 11:45A
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241
APPENDIX B
Panel 3: Payers
11:45A – 12:30P
Moderator: Alan Weil, J.D., M.P.P., Executive
Director, National Academy for State Health Policy,
Committee Member
Russell Frank, M.S., CHIP Director, Vermont
Department of Health
Foster Gesten, M.D., Medical Director, Office
of Health Insurance Programs, New York State
Department of Health
Sandeep Wadhwa, M.D., M.B.A., Medicaid
Director and Chief Medical Officer, Colorado
Department of Health Care Policy and Financing
Panel 3 Discussion
12:30P – 1:00P
Panel 4: Policy makers
2:00P – 2:45P
Moderator: Claire Brindis, Dr.P.H., Executive
Director, Philip R. Lee Institute for Health Policy
Studies and for the National Adolescent Health
Information and Innovation Center, University of
California, San Francisco, Committee Member
Richard G. Kronick, Ph.D., Deputy Assistant
Secretary for Health Policy, U.S. Department of
Health and Human Services
Don Schwarz, M.D., M.P.H., Deputy Mayor and
Health Commissioner, City of Philadelphia
Joe Thompson, M.D., M.P.H., Surgeon General,
Office of the Surgeon General, State of Arkansas
Panel 4 Discussion
2:45P – 3:15P
3:15P – 3:50P Public Comments
3:50P – 4:00P Closing Remarks and Adjournment
Gordon H. DeFriese, Ph.D., Committee Chair
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242 CHILD AND ADOLESCENT HEALTH
PARTICIPANT LIST
Committee Members:
Gordon H. DeFriese, Ph.D. (Chair), Cecil G. Sheps Center for Health
Service Research, University of North Carolina at Chapel Hill
Paula A. Braveman, M.D., M.P.H., Center on Social Disparities in
Health, University of California, San Francisco
Claire D. Brindis, Dr.P.H., Philip R. Lee Institute for Health Policy
Studies, University of California, San Francisco
Barbara J. Burns, Ph.D., Department of Psychiatry and Behavioral
Sciences, Duke University School of Medicine
Glenn Flores, M.D., Department of Pediatrics, University of Texas
Southwestern Medical Center at Dallas
Gary L. Freed, M.D., M.P.H., Department of Pediatrics, University of
Michigan Health Systems
Deborah A. Gross, D.N.Sc., Department of Acute and Chronic Care,
Johns Hopkins School of Nursing
Maxine Hayes, M.D., M.P.H., State of Washington, Department of
Health
Charles J. Homer, M.D., M.P.H., National Initiative for Children’s
Healthcare Quality
Kevin B. Johnson, M.D., M.S., Department of Biomedical Informatics
and Department of Pediatrics, Vanderbilt University School of
Medicine
Genevieve Kenney, Ph.D., The Urban Institute
Marie C. McCormick, M.D., Sc.D., Department of Society, Human
Development and Health, School of Public Health, Harvard
University
Kathryn M. McDonald, M.M./M.B.A., Center for Primary Care and
Outcomes Research, Stanford University School of Medicine
Michael J. O’Grady, Ph.D., Health Policy and Evaluation Department,
National Opinion Research Corporation at the University of Chicago
Alan R. Weil, J.D., M.P.P., National Academy for State Health Policy
Alan M. Zaslavsky, Ph.D., Department of Health Care Policy, Harvard
Medical School
Workshop Presenters:
Russell Frank, M.S., Vermont Department of Health
Foster Gesten, M.D., Office of Health Insurance Programs, New York
State Department of Health
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243
APPENDIX B
Darcy Gruttadaro, J.D., Child and Adolescent Action Center, National
Alliance for the Mentally Ill
Linda Juszczak, D.N.Sc., M.S., M.P.H., National Assembly on School-
Based Health Care
Richard G. Kronick, Ph.D., Office of Health Policy, HHS Office of the
Assistant Secretary for Planning and Evaluation
Edward L. Schor, M.D., The Commonwealth Fund
Donald F. Schwarz, M.D., M.P.H., City of Philadelphia
Xavier Sevilla, M.D., Manatee County Rural Health Services Inc., Whole
Child Pediatrics
Judith Thierry, D.O., M.P.H., F.A.A.P., Maternal and Child Health, HHS
Indian Health Service
Joseph W. Thompson, M.D., M.P.H., Center for Health Improvement,
State of Arkansas
Sandeep Wadhwa, M.D., M.B.A., Colorado Department of Health Care
Policy and Financing
Nora Wells, M.S.Ed., Family Voices
National Academies Staff:
Rosemary Chalk, Study Director
Patti Simon, Program Officer
Pamella Atayi, Senior Program Assistant
Chelsea Bodnar, Christine Mirzayan Science and Technology Policy
Fellow
Wendy Keenan, Program Associate
Julienne Palbusa, Research Assistant
Registered Attendees:
Jennifer Burks, Health Resources and Services Administration
Tim S. Bushfield, U.S. Government Accountability Office
Barbara A. Dailey, Centers for Medicare and Medicaid Services
Maushami DeSoto, Agency for Healthcare Research and Quality
Denise Dougherty, Agency for Healthcare Research and Quality
Elaine Duffee, Engelberg Center for Health Care Reform
Sarah Edwards, The National Academies, Christine Mirzayan Science and
Technology Policy Fellow
Michael Ellwood, National Association of Children’s Hospitals and
Related Institutions
Gerry Fairbrother, Cincinnati Children’s Hospital Medical Center
Richard Fenton, National Association of State Medicaid Directors
Patricia Franklin, National Association of Pediatric Nurse Practitioners
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244 CHILD AND ADOLESCENT HEALTH
Rita Munley Gallagher, American Nurses Association
Mengfei Huang, The National Academies, Christine Mirzayan Science
and Technology Policy Fellow
David Keller, HHS Office of the Assistant Secretary for Planning and
Evaluation
Kristina Krasnov, The National Academies, Christine Mirzayan Science
and Technology Policy Fellow
Marcia Lillie-Blanton, The George Washington University
Hannah S. Locke, U.S. Government Accountability Office
Susan L. Lukacs, Centers for Disease Control and Prevention
Patricia MacTaggart, The George Washington University
Nick Manetto, B&D Consulting
Jessica L. McAuliffe, Cincinnati Children’s Hospital Medical Center
Poornima Nayak, American Public Human Services Association
Sarah Hudson Scholle, National Committee for Quality Assurance
Ellen Schwalenstocker, National Association of Children’s Hospitals and
Related Institutions
Katie Sellers, Association of State and Territorial Health Officials
Alan E. Simon, Centers for Disease Control and Prevention
Jan Strozer, National Assembly on School-Based Health Care
Caroline Taplin, HHS Office of the Assistant Secretary for Planning and
Evaluation
Tatiana Zenzano, HHS Office of Public Health and Science