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B Workshop Agenda and Participants Workshop on Pediatric Health and Health Care Quality Measurement and Information Needs Agenda March 23, 2010 WORKSHOP GOALS: • To highlight unmet measurement and information needs from a broad group of data users • To gather information to support the development of a framework, a subset of measures, and a data system for child health and health care quality measures • To illustrate innovative and exemplary data collection efforts to support the development of a framework for a comprehensive data support system WORKSHOP ORGANIZATION: The workshop will be comprised of four sessions featuring speaker presentations followed by panel discussions (15 minutes per speaker pre- sentation; 30 minutes for each panel discussion). The panels are organized to hear the perspectives of four major stake- holder groups: PANEL 1: Patients and Parents PANEL 2: Providers PANEL 3: Payers PANEL 4: Policy makers 239
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240 CHILD AND ADOLESCENT HEALTH PROGRAM: 8:40A Welcome Remarks Gordon H. DeFriese, Ph.D., Committee Chair Panel 1: Patients and Parents 8:55A – 9:40A Moderator: Maxine Hayes, M.D., M.P.H., State Health Officer, State of Washington, Department of Health, Committee Member Nora Wells, M.Ed., Director of Research Activities, Family Voices Darcy Gruttadaro, J.D., Director of the Child and Adolescent Action Center, National Alliance on Mental Illness Judith Thierry, D.O., M.P.H., Maternal and Child Health Coordinator, Office of Clinical and Preventive Services, Indian Health Service, U.S. Department of Health and Human Services Panel 1 Discussion 9:40A – 10:10A Panel 2: Providers 10:30A – 11:15A Moderator: Glenn Flores, M.D., Judith and Charles Ginsburg Chair in Pediatrics, Department of Pediatrics, University of Texas Southwestern Medical Center at Dallas, Committee Member Linda Juszczak, D.N.Sc., M.P.H., M.S., C.P.N.P., Executive Director, National Association of School- Based Health Care Ed Schor, M.D., Vice President, State High Performance Health Systems Program, The Commonwealth Fund Xavier Sevilla, M.D., Chief of Pediatrics, Manatee County Rural Health Services, Inc., Whole Child Pediatrics, and Chair, American Academy of Pediatrics Steering Committee on Quality Improvement and Management Panel 2 Discussion 11:15A – 11:45A
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241 APPENDIX B Panel 3: Payers 11:45A – 12:30P Moderator: Alan Weil, J.D., M.P.P., Executive Director, National Academy for State Health Policy, Committee Member Russell Frank, M.S., CHIP Director, Vermont Department of Health Foster Gesten, M.D., Medical Director, Office of Health Insurance Programs, New York State Department of Health Sandeep Wadhwa, M.D., M.B.A., Medicaid Director and Chief Medical Officer, Colorado Department of Health Care Policy and Financing Panel 3 Discussion 12:30P – 1:00P Panel 4: Policy makers 2:00P – 2:45P Moderator: Claire Brindis, Dr.P.H., Executive Director, Philip R. Lee Institute for Health Policy Studies and for the National Adolescent Health Information and Innovation Center, University of California, San Francisco, Committee Member Richard G. Kronick, Ph.D., Deputy Assistant Secretary for Health Policy, U.S. Department of Health and Human Services Don Schwarz, M.D., M.P.H., Deputy Mayor and Health Commissioner, City of Philadelphia Joe Thompson, M.D., M.P.H., Surgeon General, Office of the Surgeon General, State of Arkansas Panel 4 Discussion 2:45P – 3:15P 3:15P – 3:50P Public Comments 3:50P – 4:00P Closing Remarks and Adjournment Gordon H. DeFriese, Ph.D., Committee Chair
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242 CHILD AND ADOLESCENT HEALTH PARTICIPANT LIST Committee Members: Gordon H. DeFriese, Ph.D. (Chair), Cecil G. Sheps Center for Health Service Research, University of North Carolina at Chapel Hill Paula A. Braveman, M.D., M.P.H., Center on Social Disparities in Health, University of California, San Francisco Claire D. Brindis, Dr.P.H., Philip R. Lee Institute for Health Policy Studies, University of California, San Francisco Barbara J. Burns, Ph.D., Department of Psychiatry and Behavioral Sciences, Duke University School of Medicine Glenn Flores, M.D., Department of Pediatrics, University of Texas Southwestern Medical Center at Dallas Gary L. Freed, M.D., M.P.H., Department of Pediatrics, University of Michigan Health Systems Deborah A. Gross, D.N.Sc., Department of Acute and Chronic Care, Johns Hopkins School of Nursing Maxine Hayes, M.D., M.P.H., State of Washington, Department of Health Charles J. Homer, M.D., M.P.H., National Initiative for Children’s Healthcare Quality Kevin B. Johnson, M.D., M.S., Department of Biomedical Informatics and Department of Pediatrics, Vanderbilt University School of Medicine Genevieve Kenney, Ph.D., The Urban Institute Marie C. McCormick, M.D., Sc.D., Department of Society, Human Development and Health, School of Public Health, Harvard University Kathryn M. McDonald, M.M./M.B.A., Center for Primary Care and Outcomes Research, Stanford University School of Medicine Michael J. O’Grady, Ph.D., Health Policy and Evaluation Department, National Opinion Research Corporation at the University of Chicago Alan R. Weil, J.D., M.P.P., National Academy for State Health Policy Alan M. Zaslavsky, Ph.D., Department of Health Care Policy, Harvard Medical School Workshop Presenters: Russell Frank, M.S., Vermont Department of Health Foster Gesten, M.D., Office of Health Insurance Programs, New York State Department of Health
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243 APPENDIX B Darcy Gruttadaro, J.D., Child and Adolescent Action Center, National Alliance for the Mentally Ill Linda Juszczak, D.N.Sc., M.S., M.P.H., National Assembly on School- Based Health Care Richard G. Kronick, Ph.D., Office of Health Policy, HHS Office of the Assistant Secretary for Planning and Evaluation Edward L. Schor, M.D., The Commonwealth Fund Donald F. Schwarz, M.D., M.P.H., City of Philadelphia Xavier Sevilla, M.D., Manatee County Rural Health Services Inc., Whole Child Pediatrics Judith Thierry, D.O., M.P.H., F.A.A.P., Maternal and Child Health, HHS Indian Health Service Joseph W. Thompson, M.D., M.P.H., Center for Health Improvement, State of Arkansas Sandeep Wadhwa, M.D., M.B.A., Colorado Department of Health Care Policy and Financing Nora Wells, M.S.Ed., Family Voices National Academies Staff: Rosemary Chalk, Study Director Patti Simon, Program Officer Pamella Atayi, Senior Program Assistant Chelsea Bodnar, Christine Mirzayan Science and Technology Policy Fellow Wendy Keenan, Program Associate Julienne Palbusa, Research Assistant Registered Attendees: Jennifer Burks, Health Resources and Services Administration Tim S. Bushfield, U.S. Government Accountability Office Barbara A. Dailey, Centers for Medicare and Medicaid Services Maushami DeSoto, Agency for Healthcare Research and Quality Denise Dougherty, Agency for Healthcare Research and Quality Elaine Duffee, Engelberg Center for Health Care Reform Sarah Edwards, The National Academies, Christine Mirzayan Science and Technology Policy Fellow Michael Ellwood, National Association of Children’s Hospitals and Related Institutions Gerry Fairbrother, Cincinnati Children’s Hospital Medical Center Richard Fenton, National Association of State Medicaid Directors Patricia Franklin, National Association of Pediatric Nurse Practitioners
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244 CHILD AND ADOLESCENT HEALTH Rita Munley Gallagher, American Nurses Association Mengfei Huang, The National Academies, Christine Mirzayan Science and Technology Policy Fellow David Keller, HHS Office of the Assistant Secretary for Planning and Evaluation Kristina Krasnov, The National Academies, Christine Mirzayan Science and Technology Policy Fellow Marcia Lillie-Blanton, The George Washington University Hannah S. Locke, U.S. Government Accountability Office Susan L. Lukacs, Centers for Disease Control and Prevention Patricia MacTaggart, The George Washington University Nick Manetto, B&D Consulting Jessica L. McAuliffe, Cincinnati Children’s Hospital Medical Center Poornima Nayak, American Public Human Services Association Sarah Hudson Scholle, National Committee for Quality Assurance Ellen Schwalenstocker, National Association of Children’s Hospitals and Related Institutions Katie Sellers, Association of State and Territorial Health Officials Alan E. Simon, Centers for Disease Control and Prevention Jan Strozer, National Assembly on School-Based Health Care Caroline Taplin, HHS Office of the Assistant Secretary for Planning and Evaluation Tatiana Zenzano, HHS Office of Public Health and Science