National Academies Press: OpenBook

Child and Adolescent Health and Health Care Quality: Measuring What Matters (2011)

Chapter: Appendix B: Workshop Agenda and Participants

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Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
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B


Workshop Agenda and Participants

Workshop on Pediatric Health and Health Care Quality Measurement and Information Needs

Agenda

March 23, 2010


WORKSHOP GOALS:

  • To highlight unmet measurement and information needs from a broad group of data users
  • To gather information to support the development of a framework, a subset of measures, and a data system for child health and health care quality measures
  • To illustrate innovative and exemplary data collection efforts to support the development of a framework for a comprehensive data support system

WORKSHOP ORGANIZATION:

The workshop will be comprised of four sessions featuring speaker presentations followed by panel discussions (15 minutes per speaker presentation; 30 minutes for each panel discussion).

The panels are organized to hear the perspectives of four major stakeholder groups:

PANEL 1:

Patients and Parents

PANEL 2:

Providers

PANEL 3:

Payers

PANEL 4:

Policy makers

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×
PROGRAM:

8:40A

Welcome Remarks
Gordon H. DeFriese, Ph.D., Committee Chair

8:55A – 9:40A

Panel 1: Patients and Parents
Moderator: Maxine Hayes, M.D., M.P.H., State Health Officer, State of Washington, Department of Health, Committee Member

Nora Wells, M.Ed., Director of Research Activities, Family Voices
Darcy Gruttadaro, J.D., Director of the Child and Adolescent Action Center, National Alliance on Mental Illness
Judith Thierry, D.O., M.P.H., Maternal and Child Health Coordinator, Office of Clinical and Preventive Services, Indian Health Service, U.S. Department of Health and Human Services

9:40A – 10:10A

Panel 1 Discussion

10:30A – 11:15A

Panel 2: Providers
Moderator: Glenn Flores, M.D., Judith and Charles Ginsburg Chair in Pediatrics, Department of Pediatrics, University of Texas Southwestern Medical Center at Dallas, Committee Member

Linda Juszczak, D.N.Sc., M.P.H., M.S., C.P.N.P., Executive Director, National Association of School-Based Health Care
Ed Schor, M.D., Vice President, State High Performance Health Systems Program, The Commonwealth Fund
Xavier Sevilla, M.D., Chief of Pediatrics, Manatee County Rural Health Services, Inc., Whole Child Pediatrics, and Chair, American Academy of Pediatrics Steering Committee on Quality Improvement and Management

11:15A – 11:45A

Panel 2 Discussion

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×

11:45A – 12:30P

Panel 3: Payers
Moderator: Alan Weil, J.D., M.P.P., Executive Director, National Academy for State Health Policy, Committee Member

Russell Frank, M.S., CHIP Director, Vermont Department of Health
Foster Gesten, M.D., Medical Director, Office of Health Insurance Programs, New York State Department of Health
Sandeep Wadhwa, M.D., M.B.A., Medicaid Director and Chief Medical Officer, Colorado Department of Health Care Policy and Financing

12:30P – 1:00P

Panel 3 Discussion

2:00P – 2:45P

Panel 4: Policy makers
Moderator: Claire Brindis, Dr.P.H., Executive Director, Philip R. Lee Institute for Health Policy Studies and for the National Adolescent Health Information and Innovation Center, University of California, San Francisco, Committee Member

Richard G. Kronick, Ph.D., Deputy Assistant Secretary for Health Policy, U.S. Department of Health and Human Services
Don Schwarz, M.D., M.P.H., Deputy Mayor and Health Commissioner, City of Philadelphia
Joe Thompson, M.D., M.P.H., Surgeon General, Office of the Surgeon General, State of Arkansas

2:45P – 3:15P

Panel 4 Discussion

3:15P – 3:50P

Public Comments

3:50P – 4:00P

Closing Remarks and Adjournment
Gordon H. DeFriese, Ph.D., Committee Chair

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×

PARTICIPANT LIST

Committee Members:

Gordon H. DeFriese, Ph.D. (Chair), Cecil G. Sheps Center for Health Service Research, University of North Carolina at Chapel Hill

Paula A. Braveman, M.D., M.P.H., Center on Social Disparities in Health, University of California, San Francisco

Claire D. Brindis, Dr.P.H., Philip R. Lee Institute for Health Policy Studies, University of California, San Francisco

Barbara J. Burns, Ph.D., Department of Psychiatry and Behavioral Sciences, Duke University School of Medicine

Glenn Flores, M.D., Department of Pediatrics, University of Texas Southwestern Medical Center at Dallas

Gary L. Freed, M.D., M.P.H., Department of Pediatrics, University of Michigan Health Systems

Deborah A. Gross, D.N.Sc., Department of Acute and Chronic Care, Johns Hopkins School of Nursing

Maxine Hayes, M.D., M.P.H., State of Washington, Department of Health

Charles J. Homer, M.D., M.P.H., National Initiative for Children’s Healthcare Quality

Kevin B. Johnson, M.D., M.S., Department of Biomedical Informatics and Department of Pediatrics, Vanderbilt University School of Medicine

Genevieve Kenney, Ph.D., The Urban Institute

Marie C. McCormick, M.D., Sc.D., Department of Society, Human Development and Health, School of Public Health, Harvard University

Kathryn M. McDonald, M.M./M.B.A., Center for Primary Care and Outcomes Research, Stanford University School of Medicine

Michael J. O’Grady, Ph.D., Health Policy and Evaluation Department, National Opinion Research Corporation at the University of Chicago

Alan R. Weil, J.D., M.P.P., National Academy for State Health Policy

Alan M. Zaslavsky, Ph.D., Department of Health Care Policy, Harvard Medical School

Workshop Presenters:

Russell Frank, M.S., Vermont Department of Health

Foster Gesten, M.D., Office of Health Insurance Programs, New York State Department of Health

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×

Darcy Gruttadaro, J.D., Child and Adolescent Action Center, National Alliance for the Mentally Ill

Linda Juszczak, D.N.Sc., M.S., M.P.H., National Assembly on School-Based Health Care

Richard G. Kronick, Ph.D., Office of Health Policy, HHS Office of the Assistant Secretary for Planning and Evaluation

Edward L. Schor, M.D., The Commonwealth Fund

Donald F. Schwarz, M.D., M.P.H., City of Philadelphia

Xavier Sevilla, M.D., Manatee County Rural Health Services Inc., Whole Child Pediatrics

Judith Thierry, D.O., M.P.H., F.A.A.P., Maternal and Child Health, HHS Indian Health Service

Joseph W. Thompson, M.D., M.P.H., Center for Health Improvement, State of Arkansas

Sandeep Wadhwa, M.D., M.B.A., Colorado Department of Health Care Policy and Financing

Nora Wells, M.S.Ed., Family Voices

National Academies Staff:

Rosemary Chalk, Study Director

Patti Simon, Program Officer

Pamella Atayi, Senior Program Assistant

Chelsea Bodnar, Christine Mirzayan Science and Technology Policy Fellow

Wendy Keenan, Program Associate

Julienne Palbusa, Research Assistant

Registered Attendees:

Jennifer Burks, Health Resources and Services Administration

Tim S. Bushfield, U.S. Government Accountability Office

Barbara A. Dailey, Centers for Medicare and Medicaid Services

Maushami DeSoto, Agency for Healthcare Research and Quality

Denise Dougherty, Agency for Healthcare Research and Quality

Elaine Duffee, Engelberg Center for Health Care Reform

Sarah Edwards, The National Academies, Christine Mirzayan Science and Technology Policy Fellow

Michael Ellwood, National Association of Children’s Hospitals and Related Institutions

Gerry Fairbrother, Cincinnati Children’s Hospital Medical Center

Richard Fenton, National Association of State Medicaid Directors

Patricia Franklin, National Association of Pediatric Nurse Practitioners

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×

Rita Munley Gallagher, American Nurses Association

Mengfei Huang, The National Academies, Christine Mirzayan Science and Technology Policy Fellow

David Keller, HHS Office of the Assistant Secretary for Planning and Evaluation

Kristina Krasnov, The National Academies, Christine Mirzayan Science and Technology Policy Fellow

Marcia Lillie-Blanton, The George Washington University

Hannah S. Locke, U.S. Government Accountability Office

Susan L. Lukacs, Centers for Disease Control and Prevention

Patricia MacTaggart, The George Washington University

Nick Manetto, B&D Consulting

Jessica L. McAuliffe, Cincinnati Children’s Hospital Medical Center

Poornima Nayak, American Public Human Services Association

Sarah Hudson Scholle, National Committee for Quality Assurance

Ellen Schwalenstocker, National Association of Children’s Hospitals and Related Institutions

Katie Sellers, Association of State and Territorial Health Officials

Alan E. Simon, Centers for Disease Control and Prevention

Jan Strozer, National Assembly on School-Based Health Care

Caroline Taplin, HHS Office of the Assistant Secretary for Planning and Evaluation

Tatiana Zenzano, HHS Office of Public Health and Science

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×
Page 239
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×
Page 240
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×
Page 241
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×
Page 242
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×
Page 243
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2011. Child and Adolescent Health and Health Care Quality: Measuring What Matters. Washington, DC: The National Academies Press. doi: 10.17226/13084.
×
Page 244
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Increasing public investments in health care services for low-income and special needs children and adolescents in the United States have raised questions about whether these efforts improve their health outcomes. Yet it is difficult to assess the general health status and health care quality for younger populations, especially those at risk of poor health outcomes, because the United States has no national information system that can provide timely, comprehensive, and reliable indicators in these areas for children and adolescents. Without such a system in place, it is difficult to know whether and how selected health care initiatives and programs contribute to children's health status.

Child and Adolescent Health and Health Care Quality identifies key advances in the development of pediatric health and health care quality measures, examines the capacity of existing federal data sets to support these measures, and considers related research activities focused on the development of new measures to address current gaps. This book posits the need for a comprehensive strategy to make better use of existing data, to integrate different data sources, and to develop new data sources and collection methods for unique populations. Child and Adolescent Health and Health Care Quality looks closely at three areas: the nature, scope, and quality of existing data sources; gaps in measurement areas; and methodological areas that deserve attention.

Child and Adolescent Health and Health Care Quality makes recommendations for improving and strengthening the timeliness, quality, public transparency, and accessibility of information on child health and health care quality. This book will be a vital resource for health officials at the local, state, and national levels, as well as private and public health care organizations and researchers.

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