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F Population Health Data 273

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274 CHILD AND ADOLESCENT HEALTH Data Sponsoring Collection Data Source Year Origination Agency Organization Frequency American 1999 1983 Indian Health Indian Health Annual Indian and Service Service Alaska Native Linked Birth/ Infant Death Record Database Childhood 2006 1995 CDC CDC Annual Blood Lead Surveillance Congenital 1983 CDC CDC Annual Syphilis (CS) Cases Investigation and Report Consumer 2007 1995 AHRQ AHRQ Assessment of Healthcare Providers and Systems Current 2010 Bureau of U.S. Census Monthly Population Labor and Bureau Survey Statistics Decennial 2000 1790 U.S. Census U.S. Census Every 10 years Census Bureau Bureau Early 2001 2001 NCES NCES 5 waves; Childhood 9 months to 6 Longitudinal years Survey—Birth Cohort Early 2002 1998–1999 NCES; NCES Fall and Spring Childhood ACYF; ERS; K and 1st Longitudinal OSEP; Policy grade; Spring Survey— and Programs 3rd and 5th Kindergarten Studies grade Cohort Services, U.S. Department of Education; NCSER

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275 APPENDIX F Design Sample Size Age Group Respondent Web Link Birth and death http://aspe.hhs. records gov/datacncl/ DataDir/ihs. htm#aial Cross-sectional N = 23,485,435 <72 months Laboratory http://www.cdc. children reports gov/nceh/lead/ data/index.htm Cross-sectional Reports http://aspe.hhs. gov/datacncl/ DataDir/cdc1. htm#cscir Cross-sectional All ages Adult https://www. cahps.ahrq.gov/ default.asp Cross-sectional N = 50,000 >16 years Household http://www. households respondent census.gov/cps/ Cross-sectional N = 281,421,906 All ages Household http://factfinder. respondent census.gov/jsp/ saff/SAFFInfo. jsp?_pageId= sp4_decennial Longitudinal N = 14,000 9 months to Adult, child, child http://nces.ed.gov/ children 6 years care provider, ECLS/Birth.asp observation, and birth certificate Longitudinal N = 22,000 5–10 years Adult, child, http://nces. children school records ed.gov/ecls/ kindergarten2010. asp continued

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276 CHILD AND ADOLESCENT HEALTH Data Sponsoring Collection Data Source Year Origination Agency Organization Frequency Global Youth 2000 1999 CDC Canadian Annual Tobacco Survey Public Health Association; National Cancer Institute; United Nations Children Emergency Fund; WHO Great Smoky 2003 1992 NIMH Duke 3 waves; 9, 11, Mountains University and 13 years Study and the North Carolina State Division of Developmental Disabilities, Mental Health, and Substance Abuse Services Head Start 2006 1997 ACF/OPRE; Mathematica Four cohorts Family Head Start Policy and Child Bureau Research, Inc. Experiences Survey Head Start 2008 ACF/DHHS ACF/DHHS Annual Program Information Report Hispanic 1984 1982 NCHS/CDC NCHS/CDC One time Health and Nutrition Examination Survey, 1982–1984

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277 APPENDIX F Design Sample Size Age Group Respondent Web Link Cross-sectional N = 35,828 13–15 years Adolescents http://www.cdc. gov/tobacco/ global/gyts/index. htm Longitudinal N = 1,073 9–16 years Child and adult http://devepi.duhs. children duke.edu/gsms. html Longitudinal N = 3,500 3–4 years Adult http://www.acf. children hhs.gov/programs/ opre/hs/faces/ faces_overview. html Cross-sectional All ages Adult http://eclkc.ohs. acf.hhs.gov/hslc/ Program%20 Design%20 and%20 Management/ Head%20 Start%20 Requirements/ Progam%20 Information%20 Report Cross-sectional N = 16,000 6 months–74 Adult http://www.cdc. years gov/nchs/nhanes/ hhanes.htm continued

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278 CHILD AND ADOLESCENT HEALTH Data Sponsoring Collection Data Source Year Origination Agency Organization Frequency Kids’ Inpatient 2006 1997 AHRQ AHRQ Every 3 years Database Linked Birth 2005 1995 CDC CDC Annual and Infant Death Data Medical 2002 1996 AHRQ AHRQ Annual Expenditure Panel Survey Metropolitan 2004 1967 CDC CDC Annual Atlanta Congenital Defects Program Monitoring the 2009 1975 NIDA; Survey Annual Future Survey Research Research Center, Center Institute for Social Research, University of Michigan National Child 2007 1990 Children’s Children’s Annual Abuse and Bureau, U.S. Bureau, U.S. Neglect Data Department Department System of Health of Health and Human and Human Services Services National 2003 2003 NCHS/CDC NCHS/CDC One time Asthma Survey National 2001 2001 NIMH/NIH NIMH/NIH One time Comorbidity Survey- Adolescent (NCS-A)

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279 APPENDIX F Design Sample Size Age Group Respondent Web Link Cross-sectional N = 3,131,324 <20 years Records http://www. pediatric hcup-us.ahrq.gov/ discharges kidoverview.jsp Cross-sectional N = 4,138,573 Birth certificate http://www.cdc. live births and death gov/nchs/linked. certificate htm Cross-sectional N = 11,500 <18 years Household http://www. panels children/year respondent meps.ahrq.gov/ mepsweb/ Cross-sectional N = 51,676 live 0–6 years Records http://www.cdc. births gov/ncbddd/bd/ macdp.htm Cross-sectional N = 50,000 8th, 12–45 years Adolescent and http://www. 10th, and 12th young adult monitoringthe graders future.org/ College students and young adults Cross-sectional N = 794,000 <18 years State records http://www.acf. children hhs.gov/programs/ victims of child cb/systems/index. maltreatment htm#ncands >3.5 million children received CPS assessments or investigations N = 955 in All ages Adult http://www.cdc. national study; gov/nchs/slaits/ N = 5,741 in nas.htm four-state study 13–17 years Adolescent http://www.hcp. med.harvard.edu/ ncs/instruments. php continued

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280 CHILD AND ADOLESCENT HEALTH Data Sponsoring Collection Data Source Year Origination Agency Organization Frequency National 2004 1993 CDC CDC Annual Electronic Disease Surveillance Systems National 1994–2004 1971 NCHS/CDC CDC Annual since Health and 1999 Nutrition Examination Survey National 2007 1965 NCHS/CDC CDC Health Care Survey National 2002 1957 NCHS/CDC CDC Annual Health Interview Survey National 2007 1991 NCES NCES Approx. every Household 2 years Education Surveys Program National 1999 1994 NCHS/CDC NCHS/CDC Immunization Provider Record Check Study National 2008 1995 NCIRD/ National Annual Immunization NCHS, CDC Opinion Survey Research Center, University of Chicago

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281 APPENDIX F Design Sample Size Age Group Respondent Web Link Cross-sectional Varies All ages Medical case http://www.cdc. report forms gov/NEDSS/index. htm Cross-sectional N = 5085 All ages Adult http://www.cdc. <20 years, gov/nchs/nhanes. 4,880 adults htm Cross-sectional All ages Health care http://www.cdc. provider gov/nchs/nhcs.htm Cross-sectional N = 12,524; All ages Adult http://www.cdc. 26,191 children in gov/nchs/nhis.htm person file Cross-sectional Varies: Varies but always Adult and http://nces.ed.gov/ N = 7,000 includes adolescent nhes/ <18 years 12–35 months Provider http://www.cdc. gov/nchs/nhis/ niprcs/niprcs.htm Cross-sectional All ages Adult, doctors http://www.cdc. and other gov/NIS/ vaccination providers continued

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282 CHILD AND ADOLESCENT HEALTH Data Sponsoring Collection Data Source Year Origination Agency Organization Frequency National 2007–2008 1994–1995 NICHD Carolina 4 waves; Longitudinal Population 1, 7, and 13 Survey of Center year follow-up Adolescent Health (also known as Add Health) National 1997 1997 DOL Bureau of Various Longitudinal Labor Statistics Survey of Youth 1997 National 1988 1988 NCHS/CDC NCHS/CDC One time Maternal and Infant Health Survey 1988 National 1991 1988 NCHS/CDC NCHS/CDC 3 years Maternal and Infant Health Survey 1991 Longitudinal Follow up to 1988 National 2006 1989 NCHC/CDC CDC Annual Mortality Data National 1993 1961 NCHC/CDC CDC Annual Mortality Followback Survey National 2003 2001 NIMH/NIH Program for Survey of Research American Life on Black Americans, Institute for Social Research, University of Michigan

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283 APPENDIX F Design Sample Size Age Group Respondent Web Link Longitudinal N = 20,745 Grades 7–12; Adolescent and http://www.cpc. adolescents young adults adult unc.edu/projects/ (Wave 1); 18–26; addhealth N = 14,738 adults 24–32 adolescents (Wave 2); N = 15,197 young adults (Wave 3); N = 15701 adults (Wave 4) Longitudinal N = 8,984 12–16 years Adolescent and http://www.bls. adolescents adult gov/nls/nlsy97. htm Cross-sectional N = 18,594 Adult, birth and http://www. death certificates, cdc.gov/nchs/ and reports of products/elec_ fetal death prods/subject/ mihs.htm Longitudinal N = 2,000 women Adult http://www. cdc.gov/nchs/ products/elec_ prods/subject/ lfnmihs.htm Cross-sectional N = 2,426,264 All ages Death certificates http://www.cdc. gov/nchs/deaths. htm Cross-sectional N = 9,636 >15 years Death certificates http://www.cdc. gov/nchs/nvss/ nmfs.htm N = 1,170 13–17 years Adolescent and http://www.rcgd. adolescents adult isr.umich.edu/ prba/nsal continued

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284 CHILD AND ADOLESCENT HEALTH Data Sponsoring Collection Data Source Year Origination Agency Organization Frequency National 2002 1997 Urban Urban 3 series; Survey of Insitute Institute 1997, 1999, America’s and 2002 Families National 2005–2006 2000–2001 MCHB NCHS/CDC Varies Survey of Children with Special Health Care Needs National 2007–2008 2003–2004 MCHB NCHS/CDC Varies Survey of Children’s Health National 2000 2000 AAP/MCHB NCHS/CDC One time Survey of Early Childhood Health National 2001–2003 1987–1988 NICHD/NIA University of 3 waves; Survey of Wisconsin 5 and 8 years Families and Survey Center Households National 2006–2009 1973 NCHS/CDC NCHS/CDC 7 cycles Survey of Family Growth National 2008 1972 SAMHSA OAS/ Annual since Survey on Drug SAMHSA 1991 Use and Health (formerly National Household Survey on Drug Abuse) NHLBI 2000 1985 NHLBI/NIH NHLBI/NIH Annual Growth and Health Study (NGHS) Pediatric 2007 1973 CDC CDC Annual Nutrition Surveillance System

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285 APPENDIX F Design Sample Size Age Group Respondent Web Link Cross-sectional N = 43,157 All ages Adult http://www.urban. households org/center/anf/ nsaf.cfm Cross-sectional N = 40,804 <18 years Adult http://cshcndata. org/Content/ Default.aspx Cross-sectional N = 91,642 <18 years Child and adult http://www.cdc. children gov/nchs/slaits/ nsch.htm Cross-sectional N = 2,068 4–35 months Adult http://www.cdc. children gov/nchs/slaits/ nsech.htm Longitudinal N = 2,500 <18 years Child and adult http://www.ssc. children wisc.edu/nsfh/ Cross-sectional N = +16,000 All ages Adolescent and http://www.cdc. adult gov/nchs/NSFG. htm Cross-sectional N = 68,736 >12 years Adolescent and http://www.oas. adult samhsa.gov/ nhsda.htm Longitudinal N = 2,379 girls 9–19 years Adolescents https://biolincc. nhlbi.nih.gov/ studies/nghs/ Cross-sectional 8,164,612 Birth–5 years Records http://www.cdc. children gov/PEDNSS/ index.htm continued

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286 CHILD AND ADOLESCENT HEALTH Data Sponsoring Collection Data Source Year Origination Agency Organization Frequency Pediatric 1988 CDC CDC Every 6 Spectrum of months HIV Disease Pregnancy Risk 2009 1987 CDC CDC/State 6 phases Assessment health Monitoring departments System Runaway and 1998 1989 ACF/DHHS ACF/DHHS Annual Homeless Youth Management Information System SCHIP 2000 2000 ASPE Mathematica One time Evaluation Policy Research, Inc. Study of Early 2006 1991 NICHD NICHD/NIH 4 phases Child Care and Youth Development Young Men’s 2000 1994 CDC CDC Varies Survey Youth Risk 2007 1991 NCHS/CDC CDC 2 years Behavior Surveillance System NOTE: AAP = American Academy of Pediatrics; ACF = Administration for Children and Families; ACYF = Administration on Children, Youth and Families; AHRQ = Agency for Healthcare Research and Quality; ASPE = The Assistant Secretary for Planning and Evalu- ation; CDC = Centers for Disease Control and Prevention; CPS = Child Protective Services; DHHS = U.S. Department of Health and Human Services (now HHS); DOL = U.S. Depart- ment of Labor; ERS = Economic Research Service; MCHB = Maternal and Child Health Bureau; NCES = National Center for Education Statistics; NCHC = National Coalition on Health Care; NCHS = National Center for Health Statistics; NCIRD = National Center for

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287 APPENDIX F Design Sample Size Age Group Respondent Web Link >17,000 children Medical records http://aspe.hhs. gov/datacncl/ DataDir/cdc1. htm#psd Cross-sectional Adult http://www.cdc. gov/prams/ Cross-sectional N = 11,308 <18 years Agencies http://www.acf. youth hhs.gov/programs/ fysb/content/ youthdivision/ resources/ rhymsfactsheet. htm Cross-sectional N = 9,850 All ages Adult http://aspe.hhs. gov/health/schip/ background.htm Cross-sectional N = 1,073 Age 0–9th grade Child and adult http://www.nichd. children nih.gov/research/ supported/seccyd. cfm Cross-sectional N = 3,449 young 15–22 years Adolescent and http://aspe.hhs. men young adult gov/datacncl/ DataDir/cdc1. htm#yms Cross-sectional N = 14,041 14–17 years Adolescent http://www. adolescents cdc.gov/ HealthyYouth/ yrbs/index.htm Immunization and Respiratory Diseases; NCSER = National Center for Special Education Re- search; NHLBI = National Heart, Lung, and Blood Institute; NIA = National Institute on Ag- ing; NICHD = National Institute of Child Health and Human Development; NIDA = National Institute on Drug Abuse; NIH = National Institutes of Health; NIMH = National Institutes of Mental Health; OAS = Office of Applied Studies; OPRE = Office of Planning, Research and Evaluation; OSEP = Office of Special Education Programs; SAMHSA = Substance Abuse and Mental Health Services Administration; WHO = World Health Organization.

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