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E
Committee Biographies
Mary Jane England, M.D. (Chair), is visiting professor of health policy and
management at the Boston University School of Public Health, where she
also serves on an advisory committee for health policy and management.
In 1964, Dr. England received her medical degree from Boston University
and launched an international career as a child psychiatrist. As an author-
ity on employer and employee benefits, she has brought multiple informed
perspectives to bear on health care reform. She was the first commissioner
of the Massachusetts Department of Social Services (1979-1983), associate
dean and director of the Littauer Master in Public Administration Program
at the John F. Kennedy School of Government at Harvard University (1983-
1987), president of the American Medical Women’s Association (1986-
1987), president of the American Psychiatric Association (1995-1996), and
a corporate vice president of Prudential (1987-1990) and chief executive
officer (CEO) of the Washington Business Group on Health (1990-2001). A
nationally known expert on health care and mental health parity, in 2004-
2005 Dr. England chaired the Institute of Medicine (IOM) committee that
produced the Crossing the Quality Chasm report on adaptation to mental
health and substance use. In 2008 she chaired an IOM committee on paren-
tal depression and its effect on children and other family members. Recently
completing a term on the Commission on Effective Leadership (2006-2009)
in the American Council on Education and currently participating in the
ACT project in Colorado (2009-present), Dr. England continues to serve on
Mrs. Rosalynn Carter’s Task Force on Mental Health at the Carter Center
and on the National Academies-IOM Board on Children and Families. As
president of Regis College (2001-2011), she oversaw a number of transfor-
529
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530 EPILEPSY ACROSS THE SPECTRUM
mations, including taking the historic undergraduate women’s college into
coeducation; building its graduate programs, notably in nursing, health
administration, and other health professions; and developing curricula to
serve the needs of diverse populations of 21st century students through
interdisciplinary pathways.
Joan Kessner Austin, Ph.D., R.N., FAAN, is a distinguished professor
emerita at the Indiana University School of Nursing in Indianapolis. She
is a consultant for the Intramural Program of the National Institute of
Nursing Research at the National Institutes of Health (NIH). She has held
leadership positions and has been a member of numerous professional
associations, including the American Epilepsy Society (AES) (where she
was president in 2005), the Epilepsy Foundation (where she served four
terms on the Professional Advisory Board), and the IOM (since 2000). Her
research focuses on improving the quality of life of children with epilepsy
and their families and also on researching how new-onset seizures as well
as chronic epilepsy impact children’s behavior, mental health, and academic
performance. Dr. Austin is the recipient of many awards for her research,
including the Distinguished Contribution to Nursing Science Award from
the American Nurses Foundation, the AES-Milken Family Medical Foun-
dation International Research Award for contributions to clinical research,
the International Bureau for Epilepsy-International League Against Epilepsy
(ILAE) Award of Social Accomplishment, and the Jacob Javits Award for
Research in Neurosciences from the National Institute of Neurological Dis-
orders and Stroke. She is author of numerous articles and a reviewer and
member of the editorial board of Chronic Illness as well as other journals.
Vicki Beck, M.S., is a communication consultant with nonprofit organi-
zations, academic institutions, and private companies and foundations
that address public health and medical research, treatment, and education
issues. She is director emerita and founder of Hollywood, Health and
Society at the University of Southern California (USC) Annenberg School
for Communication’s Norman Lear Center, where she created a model for
promoting and evaluating the impact of public health topics in entertain-
ment programs. Ms. Beck’s research has focused on the effects of television
health content and health campaign messages on audiences. She is the au-
thor of a number of articles and book chapters on audience research topics.
Prior to USC, Beck was a senior health communications specialist at the
Centers for Disease Control and Prevention (CDC), where she advised on
national health campaigns, served as the founder and director of the CDC’s
entertainment education program, and conducted audience research. As
a communications expert for 25 years, she has participated in numerous
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APPENDIX E
committees for national health campaigns and has presented program and
research results at national and international meetings of public health,
medical, and scientific professional organizations.
Charles E. Begley, Ph.D., is professor of management and policy sciences
and co-director of the Center for Health Services Research at the University
of Texas Health Science Center, Houston School of Public Health. He is
also adjunct professor in the Department of Economics at Rice University.
He is the author of numerous articles and book chapters on the cost and
burden of epilepsy as well as health disparities and access to care issues. He
has been the chair or a member of several ILAE committees on issues such
as health policy and the economic burden of epilepsy. He is on the editorial
board of Epilepsia and is a member of the AES and the ILAE.
Malachy L. Bishop, Ph.D., CRC, is professor of rehabilitation counseling
with the Department of Special Education and Rehabilitation Counsel-
ing at the University of Kentucky, Lexington. He serves on the Epilepsy
Foundation’s Professional Advisory Board, the International Bureau for
Epilepsy’s Research Task Force, and the clinical advisory committee of the
National Multiple Sclerosis Society Kentucky-Southeast Indiana Chapter.
Dr. Bishop’s clinical background includes rehabilitation psychology, neuro-
psychology, assessment of injured workers, and rehabilitation counseling.
He conducts research in the psychosocial aspects of chronic neurological
conditions, including epilepsy, multiple sclerosis, and brain injury; qual-
ity of life and adaptation to disability; and employment issues for people
with epilepsy. Dr. Bishop is on the editorial board of the Journal of Reha-
bilitation and the Rehabilitation Counseling Bulletin, and he has authored
many journal articles, book chapters, and monographs in health care and
rehabilitation.
Lionel Carmant, M.D., is full professor in the department of pediatrics at
the Université de Montréal, Canada. Dr. Carmant is a clinician scientist
who is in charge of the Epilepsy Program at Hôpital Sainte Justine and of
the Epilepsy Research Group at the institution’s research center. He also
coordinates the international effort supporting the Port-au-Prince Epilepsy
Clinic in Haiti. As part of that effort, he initiated the Hispaniola Project,
which combines resources with the Dominican Republic to treat Haitians
who require epilepsy surgery. More recently, he was involved in setting
up the first Commission of African Affairs for the ILAE. He has written a
number of scientific articles, and his current research focuses on the mecha-
nisms that are involved in seizure-induced brain damage as well as ways
to prevent them.
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Carolyn Cocotas, R.T., M.P.A., CHC, CHPC, is senior vice president of
Quality and Corporate Compliance at F∙E∙G∙S Health and Human Services
System in New York City, one of the largest voluntary, nonprofit health,
education, and human services organizations in the country. F∙E∙G∙S pro-
vides treatment, housing, job training and placement, and case management
to persons with severe mental health conditions and/or developmental or
other disabilities. F∙E∙G∙S provides counseling, support, education, and
prevention programs for those facing family problems, domestic violence,
life-limiting illness, aging, and other issues, as well as in-school, out-of-
school, and after-school programs to help at-risk young people complete
their education and transition to productive adulthood. Previously, Ms.
Cocotas was director of Community Health Innovation at Affinity Health
Plan, where she directed innovation work in care delivery to the Medicaid
population in New York City. Over the span of her career, Ms. Cocotas
has held a number of progressively responsible positions throughout the
health care industry, including at the U.S. Department of Health and Hu-
man Services, the U.S. Government Accountability Office, U.S. House of
Representatives, National Committee for Quality Assurance, and Kaiser
Permanente. She is a member of the IOM Roundtable on Health Literacy.
Sandra Cushner-Weinstein, P.T., LICSW, LCSW-C, is director of Services
and Camps in the Center of Neuroscience and Behavioral Medicine at the
Children’s National Medical Center in Washington, DC, where she develops
programs and runs camps for children with epilepsy and other chronic neu-
rological and health disorders. She also works directly with children diag-
nosed with chronic health conditions and neurological disorders and their
families as a psychotherapist, develops programs, promotes education, and
conducts research. In addition, Ms. Cushner-Weinstein is assistant professor
of neurology and pediatrics at George Washington University. In the past,
she was director of the Epilepsy Foundation for the National Capitol Area
and team leader for the DC Epilepsy Learning Collaborative. She also de-
veloped the Newly Diagnosed Seizure Clinic and produced an educational
DVD in English and Spanish Coping with Epilepsy: From Seizures to Suc-
cess. She has held several committee and board appointments, including the
Professionals in Epilepsy Care and the Educational Committees at the AES.
Her research focuses on the impact of condition severity on quality of life
and parenting stress as well as predictors of adaptive coping and resiliency.
She has published numerous abstracts and papers and serves as a reviewer
for several professional journals and web-based resources.
Ramon Diaz-Arrastia, M.D., Ph.D., is professor of neurology at the Uni-
formed Services University of the Health Sciences, and Director of Clinical
Research at the Center for Neuroscience and Regenerative Medicine. Dr.
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APPENDIX E
Diaz-Arrastia’s research interests are focused in the area of understanding
the molecular-, cellular-, and tissue-level mechanisms of secondary neuro-
nal injury and neuroregeneration. Dr. Diaz-Arrastia received his M.D. and
Ph.D. degrees at Baylor College of Medicine in 1988, where he was elected
to Alpha Omega Alpha. After a 1-year medicine internship at Beth Israel
Hospital and the Harvard Medical School, he completed his neurology
residency at Columbia-Presbyterian Medical Center. From 1993 to 2011,
Dr. Diaz-Arrastia was on the faculty of the Department of Neurology at
the University of Texas Southwestern, where he was promoted to profes-
sor in 2006. Dr. Diaz-Arrastia has published more than 100 peer-reviewed
primary research papers, as well as more than 20 invited reviews and book
chapters. He has also served on several national committees related to trau-
matic brain injury research and practice. He has served on expert panels
convened by the IOM, the National Institute of Neurological Disorders and
Stroke, and the National Institute of Aging. He has also served on Scientific
Review Committees for the NIH, the Department of Defense, the Veterans
Administration, Alzheimer’s Association, and the Victoria (Australia) Neu-
rotrauma Fund, among others. He is also a peer reviewer for the leading
journals in neurology, neuroscience, neurotrauma, and neurorehabilitation.
In 2008 he received a Distinguished Alumnus Award from Baylor College
of Medicine.
David Grant, Ph.D., is the director of the California Health Interview Sur-
vey (CHIS) at the University of California, Los Angeles, Center for Health
Policy Research. CHIS is the nation’s largest state health survey and a state-
of-the-science public health project that has become a national model for
building evidence-based health policy and for widespread dissemination of
data and findings. Dr. Grant joined the CHIS team in 2001 and became the
project’s director in 2006. As the CHIS director, he is responsible for all
aspects of the project, including the planning, data collection, and dissemi-
nation phases of CHIS, under the direction of principal investigator Dr. E.
Richard Brown. In his capacity as director, he works with a broad range of
agencies, including federal, state, and local health agencies; philanthropic
and community-based organizations; advocacy groups; and academic re-
searchers to meet their diverse needs for population health data. Dr. Grant
has collaborated with the CDC to include epilepsy content in several CHIS
cycles, analyze and publish epilepsy findings from CHIS, and conduct focus
groups and cognitive interviews to aid in the development of new questions
on epilepsy for use in population-based surveillance efforts.
Christianne N. Heck, M.D., M.M.M., is the director of the USC Adult
Comprehensive Epilepsy Program, and she has served as chief operating
officer of USC Neurologists, Inc., a private academic practice, in Los An-
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534 EPILEPSY ACROSS THE SPECTRUM
geles. Her board certification in neurology includes subspecialty training in
epilepsy. She is a board member and professional adviser to the Epilepsy
Foundation of Greater Los Angeles and is on the Board of Directors of the
National Association of Epilepsy Centers. She completed a master’s degree
in medical management at the USC Marshall School of Business in 2005
and the Donald M. Palatucci Advocacy and Leadership Forum sponsored
by the American Academy of Neurology in 2006. She is a member of the
California Neurology Society Board of Directors, where she actively par-
ticipates in opinions and discussions regarding patient care and access to
care within the State of California. She volunteers regularly for Hollywood,
Health and Society of the USC Annenberg School of Communications
Norman Lear Center, whose goals are the promotion and evaluation of
public health topics in film and television. Her research focuses on inno-
vative approaches to treating epilepsy, including vagus nerve stimulation,
responsive neurostimulation, and gamma knife radiosurgery; her expertise
also includes services to minority populations as well as furthering under-
standing of status epilepticus, neuronal injury, memory dysfunction, and
the psychosocial impact of epilepsy.
Dale C. Hesdorffer, Ph.D., M.P.H., is associate professor of clinical epi-
demiology at the Mailman School of Public Health, in the Gertrude H.
Sergievsky Center, Columbia University, New York. She is a member of the
AES. She is also on the board of Vision 20-20 and the Professional Advisory
Board for the Epilepsy Foundation. Her research is focused on studies on
the comorbidity of epilepsy, status epilepticus, and incidence and prevalence
of epilepsy, as well as on traumatic brain injury. Dr. Hesdorffer co-chairs
the Commission on Epidemiology for the ILAE and serves on the Psychia-
try Task Force of the AES. Dr. Hesdorffer served on the IOM Committee
on Gulf War and Health: Brain Injury in Veterans and Long-Term Health
Outcomes. She has written many journal articles and serves on the edito-
rial board for Epilepsy Research and Epilepsy and Behavior. She is also a
contributing editor for Epilepsy Currents.
Gregory L. Holmes, M.D., is chair of the department of neurology and
professor of neurology and pediatrics at Dartmouth Medical School in
Hanover, New Hampshire. He has been a member of many professional
society boards, including the AES (where he was president from 2005 to
2006), the American EEG (Electroencephalography) Society, the Eastern
Association of Electroencephalographers, and the Child Neurology Society.
He also served on the Food and Drug Administration’s Peripheral and Cen-
tral Nervous System Drugs Advisory Committee and has been on a number
of NIH study sections. His research focuses on pediatric epilepsy, including
the long-term consequences of seizures on brain development, the patho-
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APPENDIX E
physiological basis of epilepsy, and status epilepticus. Dr. Holmes has been
the recipient of many awards, including the United Cerebral Palsy Associa-
tion Sidney Farber Research Award, the AES Research Award, the ILAE
Ambassador for Epilepsy Award, the Child Neurology Society Bernard
Sachs Award, and the American Clinical Neurophysiology Society Pierre
Gloor Research Award. He is the author of numerous articles and books
and has been on the editorial board of several journals, including Epilepsy
Research, Pediatric Drugs, Epilepsy and Behavior, Brain and Development,
the Journal of Epilepsy, and the Annals of Neurology.
Paul E. Jarris, M.D., M.B.A., is executive director of the Association of
State and Territorial Health Officials. He served as medical director of
Vermont’s largest nonprofit health maintenance organization, Community
Health Plan, from 1992 to 1996. He was president and CEO of Vermont
Permanente Medical Group from 1998 to 2000, as well as CEO of Primary
Care Health Partners, Vermont’s largest statewide primary care medical
group, from 1999 to 2000. From 2000 to 2003, he served as president of
Jarris and Associates, an independent consulting firm providing services to
major regional health plans and provider groups. He was appointed com-
missioner of the Vermont Department of Health by Governor Jim Douglas
in March 2003. Throughout his career, Dr. Jarris has maintained an active
clinical family practice, including work in federally qualified health centers,
and he served as physician to an inner city school and a shelter for home-
less adolescent youth. He graduated from the University of Vermont and
received his M.D. from the University of Pennsylvania School of Medicine.
He interned at Duke-Watts Family Medicine Residency Program in Dur-
ham, North Carolina, and completed his residency at the Swedish Family
Practice Residency Program in Seattle, Washington. He received an M.B.A.
from and completed a faculty development fellowship at the University of
Washington. Dr. Jarris is board certified by the American Board of Family
Medicine and the American Board of Medical Management and is clinical
assistant professor of family medicine at Georgetown University Medical
Center.
Dilip V. Jeste, M.D., is a distinguished professor of psychiatry and neuro-
sciences at the University of California, San Diego (UCSD). He is director
of the UCSD Geriatric Psychiatry Division as well as of the National Insti-
tute of Mental Health (NIMH)-funded Advanced Center on Innovation in
Services and Intervention Research, focusing on psychosis in older popula-
tions. He is an IOM member and is the principal investigator on several
research and training grants. He is the President-Elect of the American
Psychiatric Association. He completed his psychiatry residency at Cornell
and neurology residency at George Washington University. He was chief
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536 EPILEPSY ACROSS THE SPECTRUM
of Units on Movement Disorders and Dementias at NIMH before join-
ing UCSD in 1986. He is a past president of the American Association of
Geriatric Psychiatry and founding president of the International College of
Geriatric Psychoneuropharmacology. He is the editor-in-chief of the Ameri-
can Journal of Geriatric Psychiatry. He has published 10 books and more
than 500 journal articles. He is in the Institute of Scientific Information’s
list of the world’s most cited authors among publishing researchers of the
last two decades. He has received multiple awards for research, education,
and service to the field. He was a member of the National Advisory Mental
Health Council as well as of the NIH Council of Councils. His current areas
of interest include informed consent and successful cognitive aging.
Patricia Osborne Shafer, R.N., M.N., is an epilepsy clinical nurse special-
ist at the Comprehensive Epilepsy Center, Beth Israel Deaconess Medical
Center in Boston, Massachusetts, and a resource specialist with the Epilepsy
Therapy Project. She is a past member and chair of the Epilepsy Founda-
tion’s Professional Advisory Board, a past member of the board of directors
of the Epilepsy Foundation, and a current member of the Epilepsy Founda-
tion’s Professional Advisory Board of Massachusetts, Rhode Island, New
Hampshire, and Maine. She has served on the AES board of directors and
numerous committees and work groups. Ms. Shafer has also participated
in the creation of the North American Declaration on Epilepsy, a public
health agenda for epilepsy, and guidelines for first seizures and women with
epilepsy. She is an affiliate member of the CDC-funded Managing Epilepsy
Well Network and a member of the American Association of Neurosci-
ence Nurses; and she has served on numerous research review panels and
advisory committees for regulatory reform, disability concerns, and public
health concerns in epilepsy. Her clinical and research interests include
self-management and health education in epilepsy, psychosocial concerns,
women’s issues, and treatment options and consequences of refractory
epilepsy. She received a bachelor of science in nursing from the University
of Vermont and a master’s in nursing at the University of Washington. Ms.
Shafer brings a personal perspective to the committee, having lived with
epilepsy for many years.
Joseph I. Sirven, M.D., is a professor of neurology and chair of the de-
partment of neurology at the College of Medicine of the Mayo Clinic in
Arizona. Previously, he served as director of education for Mayo Clinic
Arizona with oversight of all educational activities at the Mayo Clinic Ari-
zona campus, including programs for medical students, residents, fellows,
Ph.D. candidates, nurses, allied health professionals, and continuing medi-
cal education. He is currently education chair for the Epilepsy Section of the
American Academy of Neurology, chair of the Annual Course Committee
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APPENDIX E
for the AES, and chair-elect of the Professional Advisory Board of the Epi-
lepsy Foundation. He is also editor-in-chief of Epilepsy.com. Dr. Sirven has
published extensively on epilepsy and its treatment. His interests in epilepsy
include status epilepticus, surgical therapy, epilepsy in older adults, and
psychosocial issues, particularly those involving Hispanic populations and
transportation. His articles have appeared in Neurology, Epilepsia, Lancet,
Archives of Neurology, Annals of Neurology, Epilepsy and Behavior, and
Mayo Clinic Proceedings. He is editor of four textbooks: Clinical Neurol-
ogy of the Older Adult; the American Epilepsy Society’s Introduction to
Epilepsy; Clinical Epilepsy; and An Atlas of Video EEG Monitoring. He
is currently co-director of the Epilepsy Program at Mayo Clinic Arizona.
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