Below are the first 10 and last 10 pages of uncorrected machine-read text (when available) of this chapter, followed by the top 30 algorithmically extracted key phrases from the chapter as a whole.
Intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text on the opening pages of each chapter.
Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.
Do not use for reproduction, copying, pasting, or reading; exclusively for search engines.
OCR for page 395
K
Letter Template to State
Cancer Registries
Re: Committee on Analysis of Cancer Risks in Populations Near Nuclear
Facilities: Request for information on cancer incidence and mortality
data availability and release
Dear Director:
I am writing to request information on your state’s cancer incidence
and mortality data availability and the release of criteria of those data. In-
formation about the accessibility of data will be used in support of a study
being carried out by the National Academy of Sciences (NAS) Committee
on Analysis of Cancer Risks in Populations near Nuclear Facilities, at the
request of the U.S. Nuclear Regulatory Commission. The Statement of Task
related to the study is attached.
I would appreciate information on the following issues:
• Year from which complete cancer incidence and cancer mortality
data for your State are available.
• Year from which registry records include address.
• Year from which census tract of reported cases is available.
• Year from which the data are available electronically.
• Assessments of the quality of the incidence and mortality data over
time (i.e. completeness of ascertainment of cancer cases, complete-
ness and accuracy of data variables requested).
• The registry’s efforts to retrieve missing or incomplete information
(e.g. missing age, or details about the site of cancer).
• Whether there is active follow-up of reported cancer cases through
395
OCR for page 396
396 APPENDIX K
surveillance programs or other means to ascertain survival,
length of follow-up (e.g., 5 years, lifetime), and completeness of
follow-up.
• Whether there is passive follow-up of reported cancer cases
through linkage of cancer registry reports with death records to
update vital status, and completeness.
• Whether year and place of birth of diseased/deceased individuals
are available
• Procedures for request and release of cancer incidence and cancer
mortality data at the address and census tract level, including as-
sociated costs and estimated time frames.
• References to any publications about registry operations or
findings.
• Any other information you think might be relevant to a national
study of cancer incidence and mortality among persons living near
nuclear facilities.
I have also addressed the request for cancer mortality data information
to [Name] from the Office of Vital Statistics. However, I understand that
cancer registries can often facilitate access to the mortality data; therefore
I hope that you will be able to provide me with the requested information.
Any information you provide to me by November 15, 2011 will be
considered in support of the study. Please note that all written information
that you provide will be included in the Public Access File for this study.
If you have questions about this request or would prefer to respond
by telephone I would be happy to contact you. I can be reached by email
(kcrowley@nas.edu) or telephone (202-334-3066).
Sincerely,
Kevin Crowley
Study Director
