APPENDIX A
Workshop Participants
PARTICIPANTS IN THE FEBRUARY 1992 WORKSHOP ON LABORATORY ISSUES IN GENETICS
Arthur Beaudet, M.D. Institute of Molecular Genetics Baylor College of Medicine One Baylor Plaza, T-619 Houston, TX 77030
David Blumenthal, M.D. Medical Practices Evaluation Center Massachusetts General Hospital 50 Staniford Street Boston, MA 02114
Jessica Davis, M.D. President, Council of Regional Networks Cornell University Medical Center Genetics Box 3 1300 York Avenue New York, NY 10021
Wayne Grody, M.D., Ph.D. UCLA School of Medicine Assistant Professor Divisions of Medical Genetics and Molecular Pathology Los Angeles, CA 90024-1732
Frits Hommes, Ph.D. Voluntary National Biochemical Genetics Laboratory Proficiency Testing Program Professor, Department of Biochemistry and Molecular Biology, Medical College of Georgia 1120 Fifteenth Street Augusta, GA 30912
Thaddeus Kelly, M.D., Ph.D. Vice Chair American Board of Medical Genetics Division of Human Genetics University of Virginia Hospital Charlottesville, VA 22908
Katherine Klinger, Ph.D. Vice President for Science Integrated Genetics, Inc. 31 New York Avenue Framingham, MA 01701
George Knight, Ph.D. Foundation for Blood Research P.O. Box 190 Scarborough, ME 04070
Karla Matteson, Ph.D. Director, Human Development and Genetics Center University of Tennessee Medical Center 1924 Alcon Highway Knoxville, TN 37920
Douglas McQuilken Vice President for Business Development Roche Molecular Systems, Inc. 340 Kingsland Street Nutley, NJ 07110
F. John Meaney, Ph.D. Office of Risk Assessment and Investigation Division of Disease Prevention Services Arizona Department of Health Services 3008 N. 3rd Street, Suite 101 Phoenix, AZ 85012
Patricia Murphy, Ph.D. Director, DNA Diagnostic Laboratory Laboratory of Human Genetics State of New York Department of Health Wadsworth Center for Laboratories and Research Empire State Plaza Albany, NY 12201-0509
Deborah Nickerson, Ph.D. Division of Biology, 139-74 California Institute of Technology Pasadena, CA 91125
Seymour Perry, M.D. Chair Department of Family and Community Medicine Georgetown University School of Medicine 215 Kober-Cogan Building 3750 Reservoir Road Washington, DC 20007
Hope Punnett, Ph.D. ASHG Committee on Genetic Services St. Christopher's Children's Hospital Front and Erie Streets Philadelphia, PA 19134
Max Rabinowitz, M.D. Division of Clinical Laboratory Devices Office of Device Evaluation, Food and Drug Administration 1390 Piccard Drive Rockville, MD 20850
William Seltzer, Ph.D. Director DNA Diagnostic Laboratory Assistant Professor, Pediatrics and Biochemistry, Biophysics and Genetics Department of Pediatrics, Box C233 University of Colorado Health Sciences Center Denver, CO 80262
Joseph Shulman, M.D. President, Genetics and IVF Institute 3020 Javier Road Fairfax, VA 22031
Paul Silverman, Ph.D. Director of Scientific Affairs Beckman Instruments, Inc. 2500 Harbor Boulevard D-14-E Fullerton, CA 92634-3100
Michael Watson, Ph.D. American College of Medical Genetics Director of Clinical Cytogenetics St. Louis Children's Hospital 400 South Kingshighway Boulevard St. Louis, MO 63110
Victor W. Weedn, M.D., J.D. Major, U.S. Army Medical Corps DNA Identification Laboratory Armed Forces Institute of Pathology Washington, DC 20306-6000
Ann Willey, Ph.D. Director Laboratory of Human Genetics Wadsworth Center for Laboratories Research New York State Department of Health P.0. Box 509 Albany, NY 12201-0509
PARTICIPANTS IN THE JUNE 1992 WORKSHOP ON ISSUES IN GENETIC SERVICES
Barbara Adam Chief CDC Infant Screening Quality Assurance Laboratory 1600 Clifton Road Atlanta, GA 30333
Paul R. Billings, M.D., Ph.D. Chief Division of Genetic Medicine Department of Medicine Pacific Presbyterian Medical Center San Francisco, CA 94120
Alta Charo, J.D. Assistant Professor, Law and Medical Ethics University of Wisconsin 308 Law Building Madison, WI 53706
Ellen Wright Clayton, M.D., J.D. Assistant Professor of Pediatrics and Law Vanderbilt University School of Law Nashville, TN 37240
Barbara Crandall, M.D. University of California-Los Angeles Medical Center Mental Retardation Unit 760 Westwood Plaza Los Angeles, CA 90024
George Cunningham, M.D., M.P.H. Chief, Genetic Disease Branch California Department of Health Services 2151 Berkeley Way (Annex Four) Berkeley, CA 94704-1011
Mark Evans, M.D. Director Division of Reproductive Genetics Wayne State University School of Medicine Department of Obstetrics and Gynecology 4707 St. Antoine Boulevard Detroit, MI 48201
Stephen Friend, M.D. MGH Cancer Center Building 149, 13th Street Charlestown, MA 02129
Patricia A. Gabow, M.D. Deputy Manager Medical Affairs Denver General Hospital 777 Bannock Street Denver, CO 80202-4507
Elena Gates, M.D. Assistant Clinical Professor Department of Obstetrics and Gynecology University of California-San Francisco 505 Parnassus Avenue-Box 0132 San Francisco, CA 94143
Michael R. Hayden, Ph.D., FRCPC Associate Professor of Medical Genetics and Director, Adult Genetics Clinic University of British Columbia 2211 Westbrook Mall, Room F-185 Vancouver, BC, Canada V6T 2B5
Claude LaBerge, Ph.D., FRCPC President Quebec Network of Genetic Medicine CHUL Department of Genetic Medicine 2705 Laurier Boulevard, Room 9355 Ste. Foy, Quebec, Canada G1V4G2
Sue Levi-Pearl Liaison, Medical and Scientific Programs Tourette Syndrome Association, Inc. 42-40 Bell Boulevard Bayside, NY 11361-2861
Abby Lippman, Ph.D. Associate Professor, Department of Epidemiology and Biostatistics McGill University Montreal, Quebec, Canada H3A1A2
Edward McCabe, M.D., Ph.D. Baylor College of Medicine Institute for Molecular Genetics Room S-921 Texas Medical Center Houston, TX 77030
Gloria Petersen, M.D. Assistant Professor of Epidemiology Johns Hopkins University School of Public Health and Hygiene 615 N. Wolfe Street Baltimore, MD 21205
Nancy Press, Ph.D. Assistant Research Anthropologist Department of Psychiatry/Behavioral Sciences Medical Center, University of California-L.A. 760 Westwood Plaza Los Angeles, CA 90024
Neil J. Risch, Ph.D. Yale University School of Medicine Department of Epidemiology/Public Health 60 College Street, PO Box 3333 New Haven, CN 06510
Barbara Katz Rothman, Ph.D. Professor Department of Sociology Baruch College, City University of New York 17 Lexington Avenue New York, NY 10010
Janet Rowley, M.D. Professor Departments of Medicine and Molecular Genetics and Cell Biology The University of Chicago 5841 South Maryland Avenue, Box 420 Chicago, IL 60637
Margery Shaw, M.D., J.D. 2617 Pine Tree Drive Evansville, IN 47711
Elizabeth Thomson, R.N., M.S. Coordinator Iowa Statewide Genetic Counseling Services Coordinator, Cystic Fibrosis Pilot Project Consortium (National Center for Human Genome Research) Division of Medical Genetics Department of Pediatrics University Hospitals and Clinics Iowa City, IA 52242
Barbara Faye Waxman 8883 Pico Boulevard Los Angeles, CA 90035
Dorothy Wertz, Ph.D. Social Science, Ethics, and Law Program Shriver Center for Mental Retardation 200 Trapelo Road Waltham, MA 02254
PARTICIPANTS IN THE SEPTEMBER 1992 MINI-WORKSHOPS ON GENETIC COUNSELING; PUBLIC EDUCATION; PRIVACY AND INSURANCE
Ruby Bishop President-Elect Alliance of Genetic Support Groups 7101 W. 12th, Suite 401 Little Rock, AR 72204
Troy Duster, Ph.D. Director Institute for the Study of Social Change University of California/Berkeley 2420 Bowditch Street Berkeley, CA 94720
John Fanning, J.D. Office of Health Policy and Evaluation Office of the Assistant Secretary for Health Department of Health and Human Services 200 Independence Avenue SW, Room 740G Washington, DC 20201
Robert Gellman, J.D. Chief Counsel Subcommittee on Government Information, Justice, and Agriculture House Committee on Government Operations Washington, DC 20515-6147
Betsy Gettig, M.S. President-Elect National Society of Genetic Counselors Director of Genetic Counseling West Penn Hospital School of Nursing 2nd Floor, Room 205 Pittsburgh, PA 15224
David Micklos Director DNA Learning Center Cold Spring Harbor Laboratory Cold Spring Harbor, NY 11724
Walter Nance, M.D., Ph.D. Department of Medical Genetics Medical College of Virginia Box 33, MCV Station Richmond, VA 23298
Madison Powers, J.D. Kennedy Institute of Bioethics Georgetown University 209 Poulton Hall Washington, DC 20057
Virginia Proud, M.D. Laboratory of Medical Genetics University of Alabama at Birmingham Byrd Building 323, UAB Station Birmingham, AL 35294
Kimberly Quaid, Ph.D. Department of Medical Genetics Indiana University School of Medicine 975 West Walnut Street Indianapolis, IN 46202-5251
Elizabeth Thomson, R.N., M.S. Coordinator Iowa Statewide Genetic Counseling Services Coordinator, Cystic Fibrosis Pilot Project Consortium (National Center for Human Genome Research) Division of Medical Genetics Department of Pediatrics University Hospitals and Clinics Iowa City, IA 52242
Michael Yesley, J.D. Los Alamos National Laboratory Department of Energy M5 A187, P.O. Box 1663 Los Alamos, NM 87545
PARTICIPANTS IN THE SEPTEMBER 1992 PUBLIC FORUM ON ASSESSING GENETIC RISKS: ISSUES AND IMPLICATIONS FOR HEALTH
Judith L. Benkendorf, M.S. Genetic Counselor and Assistant Professor Division of Genetics Department of Obstetrics and Gynecology Georgetown University Medical Center Washington, D.C. 20007
Ruby Bishop President-Elect Alliance of Genetic Support Groups 7101 W. 12th, Suite 401 Little Rock, AR 72204
Hope Charkins, M.S.W. Executive Director Treacher Collins Foundation P.O. Box 683 Norwich, VT 05055
Elizabeth Fain 2765 Stockwood Drive Gastonia, NC 28056 Penelope Fischer 983 1st Place Longwood, FL 32750
Helen Bequaert Holmes Center for Genetics, Ethics and Women 24 Berkshire Terrace Amherst, MA 01002
Edward M. Kloza, M.S. President National Society of Genetic Counselors, Inc. 233 Canterbury Drive Wallingford, PA 19086
Sue Levi-Pearl Liaison for Medical and Scientific Programs Tourette Syndrome Association, Inc. 42-40 Bell Boulevard Bayside, NY 11361
Abbey S. Meyers Executive Director National Organization for Rare Disorders, Inc. 100 Route 37, P.O. Box 8923 New Fairfield, CT 06812-1783
C. Ben Mitchell, M.Div. Director of Biomedical and Life Issues The Christian Life Commission of the Southern Baptist Convention 901 Commerce Street, Suite 550 P.O. Box 25266 Nashville, TN 37202-5266
Theresa E. Morelli 200 Fernwood Road, Apt. 22 Wintersville, OH 43952
Marsha Saxton, J.D. Project on Women and Disabilities 1 Ashburton Place, Room 130 Boston, MA 02108
Dorothy C. Wertz, Ph.D. Social Science, Ethics and Law The Shriver Center 200 Trapelo Road Waltham, MA 02254
Nachama Wilker Executive Director The Council for Responsible Genetics 19 Garden Street Cambridge, MA 02138-3622