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B Workshop Agenda
Workshop on Lesbian Health Research Priorities
Georgetown University Conference Center
3800 Reservoir Road, N.W.
Washington, D.C.
October 6-7, 1997
Monday, October 6
9:00 a.m.
Welcome and Introductions
Ann Burgess, D.N.Sc., Chair, Committee on Lesbian Health Research Priorities, University of Pennsylvania
9:30 a.m.
An Overview of Lesbian Health: Historical and Developmental Perspectives
Donna Futterman, M.D., Adolescent AIDS Program, Montefiore Medical Center, and Department of Pediatrics, Albert Einstein College of Medicine
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B
Workshop Agenda
Workshop on Lesbian Health Research Priorities
Georgetown University Conference Center
3800 Reservoir Road, N.W.
Washington, D.C.
October 6-7, 1997
Monday, October 6
9:00 a.m.
Welcome and Introductions
Ann Burgess, D.N.Sc., Chair, Committee on Lesbian Health Research Priorities, University of Pennsylvania
9:30 a.m.
An Overview of Lesbian Health: Historical and Developmental Perspectives
Donna Futterman, M.D., Adolescent AIDS Program, Montefiore Medical Center, and Department of Pediatrics, Albert Einstein College of Medicine
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10:00 a.m.
Lesbians as a Diverse Population: Who Are We Talking About?
Moderator: Judy Bradford, Ph.D.
Lesbians: Defining the Population
Meaghan Kennedy, M.P.H., Centers for Disease Control and Prevention
Who Is Lesbian? (The Low Interrelationships Among Sexual Orientation, Sexual Behavior, Years Out, Disclosure of Sexual Orientation, and Participation in the Lesbian Community)
Esther Rothblum, Department of Psychology, University of Vermont
Economic Issues for Lesbians
Lee Badgett, University of Massachusetts and Institute for Gay and Lesbian Strategic Studies
11:15 a.m.
The Contextual Framework: Barriers to Conducting Research on Lesbian Health
Moderator: Bruce McEwen, Ph.D.
Ethical Issues in Conducting Research with Lesbians
Larry Gostin, Georgetown University Law Center
Research on Lesbian Health: Challenges for University
Researchers
Caitlin Ryan, Washington, D.C.
Researcher and Community Collaboration: Issues and Barriers to Working Together
Joyce Hunter, D.S.W., Community Liaison Program, HIV Center for Clinical and Behavioral Studies, and Department of Psychiatry, Columbia University
12:15 p.m.
LUNCH
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1:00 p.m.
Designing Studies on Lesbian Health
Moderator: Larry Norton, M.D.
Designing Effective Studies of Lesbian Health Issues
Susan Cochran, Ph.D., M.S., Department of Epidemiology, University of California, Los Angeles School of Public Health
Challenges and Opportunities in Research Design
Jocelyn White, M.D., Oregon Health Sciences University
Health Services Research: Working with Hard-to-Reach Groups
Debra Rog, Ph.D., Center for Mental Health Policy, Vanderbilt Institute for Public Policy Studies
Research Design and Causation
Margaret Rosario, Ph.D., Department of Psychology, City College, City University of New York
2:30 p.m.
Scheduled Public Testimony
Methodological Issues in Research on Lesbian Health
Alice Dan, Ph.D., Center for Research on Women and Gender, University of Illinois at Chicago
Strategies for Obtaining Representative Samples/Measurement of Sexual Orientation
Ann Pollinger Haas, Ph.D., Department of Health Services, Lehman College, City University of New York (representing the Women's Health Survey)
Involving Communities in Research on Lesbian Health
Amelie Zurn, M.S.W., Silver Spring, Maryland
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2:50 p.m.
Cancer and Lesbians
Deborah J. Bowen, Ph.D., Division of Public Health Sciences, Fred Hutchinson Cancer Research Center
3:20 p.m.
BREAK
3:30 p.m.
Scheduled Public Testimony
Lesbians and Cancer
Beverly Baker, Mautner Project for Lesbians with Cancer
Lesbian Experiences and Breast Cancer
Linda McGehee, Ph.D., R.N., Georgia State University School of Nursing
3:45 p.m.
Sexually Transmitted Diseases—An Issue for Lesbians?
Jonathan Zenilman, M.D., Infectious Disease Division, Johns Hopkins University School of Medicine
4:15 p.m.
The Challenges of Providing Health and Mental Health Services to Lesbians: Issues of Access and Barriers to Care
Moderator: Gloria Sarto, M.D.
Joan Waitkevicz, M.D., Gay Women's Focus, Beth Israel Medical Center, New York
Teresa Cuadra, M.D., Gay Women's Focus, Beth Israel Medical Center, New York
4:45 p.m.
Scheduled Public Testimony
Integrating Sexuality into Health Care and the Need for Information on Lesbian Health
Christopher Portelli, J.D., Sexuality Information and Education Council of the United States
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Lesbian Health Curriculum for Medical Schools
Devi O'Neill, Center of Excellence for Women's Health, University of California Medical Center at San Francisco
Implications for Health Care Service and Delivery and Lesbians' Access to Care
Beverly Saunders Biddle, M.H.A., National Lesbian and Gay Health Association
Cultural Proficiency: A Cornerstone to the Success of Managed Care
Nancy Kennedy, Dr.P.H., Office of Managed Care, Center for Substance Abuse Prevention, SAMHSA
5:15 p.m.
Final Questions
5:30 p.m.
Adjourn
Tuesday, October 7
9:00 a.m.
Opening and Welcome
Ann Burgess, D.N.Sc., Chair, Committee on Lesbian Health Research Priorities, University of Pennsylvania
9:15 a.m.
Instrumentation and Disclosure
Moderator: Sam Friedman, Ph.D.
Disclosure of Sexual Orientation in the Nurses' Health Study II
Patricia Case, Sc.D., Department of Social Medicine, Harvard Medical School
New Methods for Surveying Sensitive Behaviors
Charles Turner, Ph.D., Research Triangle Institute, Washington, D.C.
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Measuring Health
Ronald Wilson, National Center for Health Statistics (retired)
10:30 a.m.
Mental Health and Substance Abuse Issues for Lesbians
Moderator: Cynthia Gomez, Ph.D.
Overview of Mental Health Issues for Lesbians
Marjorie Sved, M.D., Adult Psychiatry, Dorothea Dix Hospital, Raleigh, North Carolina
Tonda Hughes, Ph.D., R.N., University of Illinois at Chicago, College of Nursing
Overview of Substance Abuse Issues for Lesbians
11:15 a.m.
HIV/AIDS and Women Who Have Sex with Women
Rebecca Young, National Development and Research Institute, Inc., and Columbia University Division of Sociomedical Sciences
11:45 a.m.
Scheduled Public Testimony
Lesbians and HIV: The Invisible Crisis
Amber Hollibaugh, Women's Education Services/Lesbian AIDS Project, Gay Men's Health Crisis
12:00 noon
LUNCH
12:45 p.m.
Sampling Strategies for Studies on Lesbian Health
Moderator: Donna Brogan, Ph.D.
Probability Sampling for Research on Lesbian Health
Graham Kalton, Ph.D., Westat, Inc., Rockville, Maryland
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Building Relationships: Sampling Methods for Diverse Communities
Elizabeth J. Rankow, PA-C, MHS, Consultant, Oakland, California
U.S. Census Data: Uses and Limitations for Research on Lesbian Health
Martin O'Connell, Ph.D., Fertility and Family Structure Branch, U.S. Bureau of the Census
2:00 p.m.
Scheduled Public Testimony and Final Discussion
Elisabeth Gruskin, Kaiser Permanente
Charlotte Patterson, Ph.D., American Psychological Association
Nina Carroll, Fenway Community Health Center, Boston Fenway's Research Experience
Winnie Stachelberg, Human Rights Campaign
3:00 p.m.
Adjourn
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