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PAPERBACK price:$34.75 add to cart Rights & Permissions Free PDF Access Sign in to download PDF book and chapters Free Resources Display this book on your site! Related Titles Sharing Publication-Related Data and Materials: Responsibilities of Authorship in the Life Sciences Sharing Clinical Research Data: Workshop Summary Other Related Titles Privacy Issues in Biomedical and Clinical Research (1998) Commission on Life Sciences (CLS) Citation Manager Export the bibliographic data for this book in your chosen format Web Search Builder Use this book's key terms to search within this book, across our collection, or across the Web. Skim This Chapter Skim this chapter and use this chapter's key terms to search within this book. Reference Finder Paste in your own text to find books that relate to your topic. Citation Manager . "Appendix B: Agenda." Privacy Issues in Biomedical and Clinical Research. Washington, DC: The National Academies Press, 1998. Please select a format: Page 33   E-mail Share on facebook Facebook Share on delicious Delicious Share on stumbleupon Stumble Share on twitter Twitter More Sharing ServicesMore The following HTML text is provided to enhance online readability. Many aspects of typography translate only awkwardly to HTML. Please use the page image as the authoritative form to ensure accuracy. Appendix B Agenda 7:30 am Light Breakfast 8:00 Welcome Ray White, Ph.D. University of Utah, Salt Lake City 8:15 Panel One: Public Concerns About the Use of Genetic Information Vicky Whittemore, Ph.D. National Tuberous Sclerosis Association & Alliance Genetic Support Group Paul Billings, M.D. Veterans Administration Hospital, Grand Prairie, Texas 8:45 Discussion 9:15 Coffee Break 9:30 Panel Two: Current Safeguards Used to Maintain Privacy in Genetic Research Leo Whelan, JD Mayo Clinic - IRB Member Sherri Bale, Ph.D. NIAMS, NIH - IRB Member for CDC Pieter de Jong, Ph.D. Roswell Park Cancer Institute, Buffalo, NY Page 33 Front Matter (R1-R10) Introduction: Privacy Issues in Research (1-2) The Potential—and the Threat—of Genetic Information (3-6) Can We—and Should We—Ensure Genetic Privacy? (7-10) Handling Genetic Data in the Laboratory (11-17) Institutional Safeguards (18-21) What, If Anything, Should the Federal Government Do? (22-30) Appendix A: Program and Discussion Questions (31-32) Appendix B: Agenda (33-34) Appendix C: A Comment by Frederick R. Anderson (35-39) Appendix D: Participant Biographies (40-48)

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--> Appendix B Agenda 7:30 am Light Breakfast 8:00 Welcome Ray White, Ph.D. University of Utah, Salt Lake City 8:15 Panel One: Public Concerns About the Use of Genetic Information Vicky Whittemore, Ph.D. National Tuberous Sclerosis Association & Alliance Genetic Support Group Paul Billings, M.D. Veterans Administration Hospital, Grand Prairie, Texas 8:45 Discussion 9:15 Coffee Break 9:30 Panel Two: Current Safeguards Used to Maintain Privacy in Genetic Research Leo Whelan, JD Mayo Clinic - IRB Member Sherri Bale, Ph.D. NIAMS, NIH - IRB Member for CDC Pieter de Jong, Ph.D. Roswell Park Cancer Institute, Buffalo, NY

OCR for page 34
--> 10:00 Discussion 10:30 Panel Three: Informed Consent and Research Sue Rose, Ph.D. Department of Energy Gene Carstea, Ph.D. Saint Mary's Medical Center, Grand Junction, CO Barbara Handelin, Ph.D. Handelin Associates 11:00 Discussion 11:30 Working Lunch 12:15 Current Legislation Related to Genetic Research Irene Stith-Coleman Congressional Research Service, Washington, D.C. 12:30 Discussion 12:45 Panel Four: Researcher Concerns About Restrictions on Genetic Research Ray White, Ph.D. University of Utah, Salt Lake City David Korn, M.D. Stanford University and Senior Vice President, AAMC Eleanor Kerr SmithKline Beecham 1:15 Discussion 1:45 Wrap up 2:00 Adjourn

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roswell park