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The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved (1999)
Institute of Medicine (IOM)

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. "3 Overview of Programs of Research on Ethnic Minority and Medically Underserved Populations at the National Institutes of Health." The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press, 1999.

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For example, CIS is or has been working with the National Black Leadership Initiative on Cancer (NBLIC), the Appalachian Leadership Initiative on Cancer (ALIC), and the National Hispanic Leadership Initiative on Cancer (NHLIC) to support the development of community-based coalitions focused on cancer prevention, to promote nutritional awareness, and to air bilingual public service announcements as part of cancer prevention efforts, respectively. CIS staff have also worked directly with community groups to develop culturally sensitive cancer screening messages for Hawaii Natives and American Indians.

Patient Education Branch

The Patient Education Branch (PEB) of OCICE is involved in the development, implementation, and promotion of educational programs for persons living with cancer and their families, including culturally tailored education and outreach services for minority and medically underserved populations. PEB assists extramural scientists with outreach efforts to increase patient accrual to clinical trials, including promotional efforts targeted to minority health professional organizations and minority-serving media outlets. These efforts include the Cancer Clinical Trials Education Program, an information and education program geared to health professionals regarding clinical trials, including culturally tailored information for professionals serving ethnic minority patients and individuals with low levels of literary. A cancer survivorship training program has also been developed for health professionals addressing the common concerns of cancer survivors, including components tailored to minority audiences. Similarly, an information booklet was developed for health professionals to address patients' concerns regarding genetic testing. PEB has also supported demonstration projects to develop new and innovative ways of disseminating the Patient Information File for the PDQ database, including one demonstration specifically targeted to African-American and Hispanic consumers. Finally, PEB also supports the Cancer Patient Education database, which provides information on hundreds of cancer patient education resources and publications, including non-English publications and publications directed toward individuals with low levels of literacy, and disseminates educational resources to cancer patients and their families.

Health Promotion Branch

The NCI Health Promotion Branch (HPB) conducts research on health communication and develops materials for distribution through the CIS outreach program. For example, HPB staff have conducted focus group research to learn more about Hispanic consumers' attitudes, beliefs, and behaviors related to cancer prevention, early detection, and treatment and to learn more about African-American,

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