. "4 Evaluation of Priority Setting and Programs of Research on Ethnic Minority and Medically Underserved Populations at the National Institutes of Health." The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press, 1999.
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membership overlap was identified and duplication of survey solicitation was avoided. Data on the racial and ethnic distributions of the potential respondents are not available.
The committee received 220 completed responses to the survey. Among these, 33 identified their ethnicity as "white or Caucasian," 65 identified themselves as "African American," 90 identified themselves as "Hispanic," 12 identified themselves as "American Indian or Alaska Native,'' and 10 each identified themselves as "Asian American or Pacific Islander" and "other." Respondents were primarily doctoral degree holders; 92 reported their highest education level as the Ph.D. or other doctorate, and 74 reported holding M.D. degrees (several reported holding both the M.D. and the Ph.D.). The majority reported working in research or teaching settings, often in combination with clinical work. Forty percent of the respondents listed laboratory, clinical, or field-based research as their primary occupation, although many were also involved in clinical practice or teaching. Only 14 percent of respondents listed teaching alone as their primary activity, and only 16 percent listed clinical practice alone as their primary work. The majority (52 percent) reported working for a nonprofit educational or research institution.
An example of the survey is provided in Appendix D. Survey respondents were asked to provide demographic and educational information about themselves (race or ethnicity and highest degree obtained), as well as information about the nature of their current work (primarily research, teaching, clinical practice, or other) and employer (federal, state, or local government; nonprofit educational or research institution; health care service delivery; or other). In addition, respondents were asked whether they had submitted a research proposal to NIH for funding, whether they had responded to an NIH Request for Applications (RFA) or Program Announcements (PA), and whether they had received funding in the form of either a research or program grant or a training grant. Individuals who applied for funding were asked to rate and comment on their experience with the process.
In addition, respondents were asked how familiar they are with the NIH research priority-setting process and whether they had provided input into this process, either formally (via service on an NIH advisory body) or informally (e.g., ad hoc feedback to NIH staff).
Respondents were asked to rate and provide their perception of the receptivity of NIH to research proposals focusing on the health needs of minority and medically underserved populations, of the value that NIH places on research relevant to these groups, and of the value that NIH