. "4 Evaluation of Priority Setting and Programs of Research on Ethnic Minority and Medically Underserved Populations at the National Institutes of Health." The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press, 1999.
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the activities of DCLG. OLA's goals are to create and maintain ongoing communications and information exchange between the national cancer advocacy organizations and NCI and to cooperate and collaborate with these groups in areas of mutual interest (National Cancer Institute, 1998f).
The purposes of DCLG are (1) to help develop and establish processes, mechanisms, and criteria for identifying appropriate consumer advocates to serve on a variety of program and policy advisory committees responsible for advancing the mission of NCI; (2) to serve as a primary forum for discussing issues and concerns and exchanging viewpoints that are important to the broad development of NCI programmatic and research priorities; and (3) to establish and maintain strong collaborations between NCI and the cancer advocacy community to reach common goals (National Cancer Institute, 1998f). DCLG is also described in greater detail in Chapter 5.
The Planning Group that led to the implementation of DCLG specifically addressed the means of achieving appropriate diversity within DCLG and wanted to ensure multicultural representation among DCLG's 15 members, along with other important characteristics among its members, such as individuals of both genders and of various ages, individuals with cancer at different sites, and individuals from various types of organizations. The Planning Group would have stipulated that at least one-third of DCLG members belong to a racial and ethnic minority but was precluded from doing so by a federal law prohibiting the selection of individuals on the basis of race. Thus, the Planning Group's final recommendation was that DCLG's membership: (1) be culturally diverse, (2) include individuals with cancer at different sites, (3) include medically underserved individuals, (4) include men and women, (5) include individuals from a range of organizations (local, regional, and national), (6) include individuals of various ages, and (7) include individuals from diverse geographic locations (including individuals from rural and urban areas). The initial DCLG includes African-American, Asian-American/Pacific Islander, Hispanic, Native American, and non-Hispanic white members (National Cancer Institute, 1998f).
One of the express purposes of DCLG was "to help NCI widen the pool of qualified consumer advocates who can be called upon to serve on NCI advisory committees and other groups" (emphasis added; National Cancer Institute, 1998f). Thus, at least the stage is set for participation of a more diverse and expansive array of minority community representatives in NCI's policy-making and priority-setting processes.
Other NCI Advisory Panels
No strategy for increasing the pool of qualified minority scientists to