. "6 Cancer Survivorship." The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press, 1999.
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African American
Hispanic
Asian/Pacific
Native American/ Alaska Native
Related to Survivorship
22
7
10
5
9
25
9
11
16
15
17
20
10
4
5
17
9
6
6
4
31
24
12
10
8
22
3
7
2
1
3
5
11
1
2
6
4
6
2
5
3
6
5
1
1
2
3
4
3
3
2
1
3
6
7
2
3
6
14
4
159
101
106
57
48
On the basis of information provided to the study committee, it appears that most non-English-language NCI publications for cancer survivors are in Spanish. The committee found few examples of materials printed in other languages that are increasingly spoken in multiethnic America, such as Asian and Southeast Asian languages. This observation was supported by Lucy Young, who expressed frustration at the lack of Chinese-language cancer education materials. Her organization (the Chinese American Cancer Society) has had to import Chinese-language cancer education materials or provide resources for the translation of information generated in English.
3. Members of ethnic minority and medically underserved communities, especially cancer survivors, can serve as a valuable resource in reaching other members of their communities.
Barbara Clinton noted that research on the efficacy of lay community health workers is lacking. These individuals, she stated, often have experience in dealing with cultural aspects of the disease (e.g., fear of public acknowledgment of a cancer diagnosis), but they can also help patients deal with the maze of treatment options, providers, and other medical
