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Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

References

Abu-Realh MH, Magwood G, Narayan MC, Rupprecht C, and Suraci M. 1996. The Use of Complementary Therapies by Cancer Patients. Nursing Connections 9:3–12, 1996.

Ad Hoc Working Group of the National Cancer Advisory Board. A Review of the Intramural Program at the National Cancer Institute. Bethesda, MD: National Cancer Institute, 1995.

Adler NE, Boyce T, Chesney MA, Cohen S, Folkman S, Kahn RL, and Syme SL. Socioeconomic Status and Health: The Challenge of the Gradient. American Psychologist, 49:15–24, 1994.

Altshuler D, Kruglyak L, and Lander E. Genetic Polymorphisms and Disease. New England Journal of Medicine 338:1626, 1998.

American Anthropoligical Association. AAA Response to OMB Directive 15: Race and Ethnic Standards for Federal Statistics and Administrative Reporting. Arlington, VA: American Anthropological Association, 1997.

American Anthropological Association. American Anthropological Association Statement on "Race." [www document]. URL http://www.ameranthassn.org/ombdraft.htm (accessed July 28, 1998).

American Cancer Society, Subcommittee on Cancer in the Economically Disadvantaged. Cancer in the Economically Disadvantaged. New York American Cancer Society, 1986.

American Cancer Society. Cancer and the Socioeconomically Disadvantaged Atlanta, GA: American Cancer Society, 1990.

American Cancer Society. Cancer Facts & Figures—1997. Atlanta, GA: American Cancer Society, 1997.

American Cancer Society. Cancer Facts & Figures—1998. Atlanta, GA: American Cancer Society, 1998a.

American Cancer Society. Progress Against Cancer: A Report to the Nation. Atlanta, GA: American Cancer Society, 1998b.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Auchincloss SS. After Treatment. Psychosocial Issues in Gynecologic Cancer Survivorship. Cancer 76 (Suppl. 10):2117–2124, 1995.

Bacquet C and Ringen K. Cancer Among Blacks and Other Minorities. Washington, DC: National Institutes of Health, 1986.

Bailar JC III and Gornik HL. Cancer Undefeated. New England Journal of Medicine 336:1569–1574, 1997.

Bailar JC III and Smith EM. Progress Against Cancer? New England Journal of Medicine 314:1226–1232, 1986.

Ballard-Barbash R, Taplin SH, Yankaskas BC, Ernester VL, Rosenberg RD, Carney PA, Barlow WE, Geller BM, Kerlikowske K, Edwards BK, Lynch CF, Urban N, Chrvala CA, Key CR, Poplack SP, Worden JK, and Kessler LG. Breast Cancer Surveillance Consortium: A National Mammography Screening and Outcomes Database. American Journal of Roentgenology 169:1001–1008, 1997.

Belknap DC, Seifert CF, and Petermann M. Administration of Medications Through Enteral Feeding Catheters. American Journal of Critical Care 6:382–392, 1997.

Beyer DA. Cancer Is a Chronic Disease. Nurse Practitioners Forum 6:201–206, 1995.

Bleyer WA. The U.S. Pediatric Cancer Clinical Trials Programmes: International Implications and the Way Forward. European Journal of Cancer 33:1439–1447, 1997.

Bleyer WA, Tejeda HA, Murphy SB, Brawley OW, Smith MA, and Ungerleider RS. Equal participation of minority patients in U.S. national pediatric cancer clinical trials. Journal of Pediatric Hermatologic Oncology 19:423–427, 1997.

Bodenhimer TS. Regional Medical Programs: No Road to Regionalization. Medical Care Reviews 26:1125–1166, 1969.

Bourque NM. Searching for the Knowledge to Heal: Improving the Links Between Medical Research and the Consumer. Canadian Journal of Public Health 87:S68–S70, 1996.

Breen N and Ching A. Race, Class, Gender, and Cancer. In Proceedings of the 25th Public Health Conference on Records and Vital Statistics . Hyattsville, MD: National Center for Health Statistics, 1995.

Breen N and Figueroa JB. Stage of Breast and Cervical Cancer Diagnosis in Disadvantaged Neighborhoods: A Prevention Policy Perspective. American Journal of Preventive Medicine 12:319–326, 1996.

Breen N, Kessler LG, and Brown ML. Breast Cancer Control Among the Underserved—An Overview. Breast Cancer Research and Treatment 40:105–115, 1996.

Brown N, Evans R, and Kramer W. The Reality of Socioeconomic Status in American Society. [www document] URL: http://www.miavx1.muohio.edu/~psybersite/stero] (accessed July 29, 1998).

Bryant H. Breast Cancer Screening in Canada: Climbing the Diffusion Curve. Canadian Journal of Public Health. (Revue Canadienne de Sante Publique) 87 (Suppl. 2):S60–S62, 1996.

Burhansstipanov L. Native American Data Limitations and Home Care. Alaska Medicine 37:133–138, 1995.

Burnett CB, Steakley CS, and Tefft MC. Barriers to Breast and Cervical Cancer Screening in Underserved Women of the District of Columbia. Oncology Nurses Forum 22:1551–1557, 1995.


(The) Cancer Letter. Black Men Face Disparate Cancer Burden: Minority Rates Vary, Klausner Tells House. The Cancer Letter, vol. 24, no. 13, pp. 1–5. Washington, DC: The Cancer Letter, Inc., 1998.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Centers for Disease Control and Prevention. The National Program of Cancer Registries at-a-Glance 1998. Atlanta, GA: Centers for Disease Control and Prevention, 1998.

Chamberlain RM, Winter KA, Vijayakumar S, Porter AT, Roach M III, Streeter O, Cox JD, and Bondy ML. Sociodemographic analysis of Patients in Radiation Therapy Oncology Group Clinical Trials. International Journal of Radiation Oncology and Biological Physics 40:19-15, 1998.

Chen M. Behavioral and Psychosocial Cancer Research in the Underserved: An Agenda for the Future. Cancer, 74:1503–1508, 1994.

Chevarley F and White E. Recent Trends in Breast Cancer Mortality Among White and Black US Women. American Journal of Public Health 87:775–781, 1997.

Clark EJ and Stovall EL. Advocacy: The Cornerstone of Cancer Survivorship. Cancer Practice 4:239–244, 1996.

Cobb N and Paisano RE. Cancer Mortality Among American Indians and Alaska Natives in the United States: Regional Differences in Indian Health, 1989–1993. Rockville, MD: Indian Health Service, 1997.

Collins FS, Guyer MS, and Chakravarti A. Variations on a Theme: Cataloging Human DNA Sequence Variation. Science 278:1580–1581, 1997.

Collins MM and Barry MJ. Controversies in Prostate Cancer Screening. Analogies to the Early Lung Cancer Screening Debate. Journal of the American Medical Association 276:1976–1979, 1996.

Cooper, RD. A Note on the Biologic Concept of Race and its Application in Epidemiologic Research. American Heart Journal, 108:715–723, 1984

Corcoran RD and Robinson RG. Community Demonstration Project Initiative: Technical Support for Program Development at the Community Level. Cancer Practice 2:222–228, 1994.

Coyne CA, Hohman K, and Levinson A. Reaching Special Populations with Breast and Cervical Cancer Public Education. Journal of Cancer Education 7:293–303, 1992.

Crane LA, Kaplan CP, and Bastani, R. Determinants of Adherence Among Health Department Patients Referred for a Mammogram. Women and Health 24 (2):43–64, 1996.

Creagan ET. Attitude and Disposition: Do They Make a Difference in Cancer Survival? Mayo Clinic Proceedings 72:160–164, 1997.

Cron T. Historic Overview: Cancer Research Among Minorities and the Medically Underserved. Unpublished document. Washington, DC: National Academy of Sciences, 1998.

Davis DA and Taylor-Vaisey A. Translating Guidelines into Practice. A Systematic Review of Theoretic Concepts, Practical Experience and Research Evidence in the Adoption of Clinical Practice Guidelines. Canadian Medical Association Journal 157:403–404, 408–416, 1997.

Delgado JL and Estrada L. Improving Data Collection Strategies. Public Health Reports 108:540–545, 1993.

Dickey LL, Griffith HM, and Kamerow DB. Put Prevention into Practice: Implementing Preventive Care. Journal of the American Academy of Nurse Practitioners 6:257–266, 1994.

Dirksen SR. Search for Meaning in Long-Term Cancer Survivors. Journal of Advances in Nursing 21:628–633, 1995.

Dow KH, Ferrell BR, Leigh S, Ly J, and Gulasekaram P. An Evaluation of the Quality of Life Among Long-Term Survivors of Breast Cancer . Breast Cancer Research and Treatment 39:261–273, 1996.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Durso TW. Health Care Inequalities Lead to a Mistrust of Research. The Scientist. [www document]. URL http://www.the-scientist.library.u...du/yr1997/feb/ durso_p1_970217.html (accessed November 14, 1997).

Extramural Committee to Assess Measures of Progress Against Cancer. Special Report: Measurement of Progress Against Cancer: Journal of the National Cancer Institute, 82:825–835, 1990.


Fearon ER. Human Cancer Syndrome: Clues to the Origin and Nature of Cancer. Science 278:1043–1050, 1997.

Ferrell BR, Dow KH, and Grant M. Measurement of the Quality of Life in Cancer Survivors. Quality of Life Research 4:523–525, 1995.

Ferrell BR and Dow KH. Portraits of Cancer Survivorship: A Glimpse Through the Lens of Survivors' Eyes. Cancer Practice 4:76–80, 1996.

Ferrell BR, Grant M, Funk, Garcia N, Otis-Green S, and Schaffner ML. Quality of Life in Breast Cancer. Cancer Practice 4:331–340, 1996.

Ferrell BR, Grant M, Funk B, Otis-Green S, and Garcia N. Quality of Life in Breast Cancer Survivors as Identified by Focus Groups. Psycho-Oncology 6:13–23, 1997.

Fine LJ. The Importance of Information Dissemination in the Prevention of Occupational Cancer. Environmental Health Perspective 103:217–218, 1995.

Forrest D, Hoskins A, and Hussey R. Clinical Guidelines and Their Implementation. Postgraduate Medical Journal 72:19–22, 1996.

Freeman HP. Cancer in the Socioeconomically Disadvantaged. Pp. 4–26 in Cancer and the Socioeconomically Disadvantaged. Atlanta, GA: American Cancer Society, 1990.

Frey CM, McMillen MM, Cowan CD, Horm JW, and Kessler LG. Representativeness of the Surveillance, Epidemiology, and End Results Program Data: Recent Trends in Cancer Mortality Rates. Journal of the National Cancer Institute 84:872–877, 1992.

Friedell GH, Tucker TC, McManmon E, Moser M, Hernandez C, and Nadel M. Incidence of Dysplasia and Carcinoma of the Uterine Cervix in an Appalachian Population. Journal of the National Cancer Institute 84:1030–1032, 1992.

Friedell, GH. Personal communication with the IOM Committee on Cancer Research Among Minorities and the Medically Underserver, September 22, 1998.

Frilled GH, Linville LH, and Hullet S. Cancer Control in Rural Appalachia. Cancer (Supplement), 83:1868–1871, 1998.

Frost F, Tollestrup K, Hunt WC, Gilliland F, Key CR, and Urbina CE. Breast Cancer Survival Among New Mexico Hispanic, American Indian, and Non-Hispanic White Women (1973–1992). Cancer Epidemiology, Biomarkers, and Prevention 5:861–866, 1996.


Geiger, HJ. Race and Health Care: An American Dilemma? The New England Journal of Medicine, 335:815–816.

Giachello, AL. Access to Health Care Among Hispanics in the Midwestern States. Presentation at the U.S. Surgeon General's Midwest Meeting on Hispanic-Latino Health, Chicago, March 1993.

Giachello, AL. Issues of Access and Use. In CW Molina and M Aguirre-Molina (eds.), Latino Health in the United States: A Growing Challenge. Washington, DC: American Public Health Association, 1994.

Gilliland FD and Key CR. Prostate Cancer in American Indians, New Mexico, 1969 to 1994. Journal of Urology 159:893–898, 1998.

Gilliland FD, Hunt WC, and Key CR. Trends in the Survival of American Indian, Hispanic, and Non-Hispanic White Cancer Patients in New Mexico and Arizona, 1969–1994. Cancer 82:1769–1783, 1998.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Gimenez M. Latino/Hispanic—Who Needs a Name? The Case Against a Standardized Terminology. International Journal of Health Services 19:557–571, 1989.

Good BJ and DelVecchio GM. The Meaning of Symptoms: A Cultural Hermeneutic. Model for Clinical Practice. Pp. 165–196 in L Eisberg and A Kleinman (eds.), The Relevance of Social Science for Medicine. Dordrecht, The Netherlands: D. Reidel Publishing Company, 1981.

Gornick ME, Eggers PW, Reilly TW, Mentnech RM, Fitterman LK, Kucken LE, Vladeck, BC. Effects of Race and Income on Mortality and Use of Services Among Medicare Beneficiaries. New England Journal of Medicine, 335:791–799, 1996.

Greenberg B, Richter S, Feltes M, Gross E, Holton-Smith D, Pryor B, and Ross-Russell D. Cancer Screening in Primary Care: Strategies for Your Office. A Program of the Connecticut Division of the American Cancer Society. Connecticut Medicine 60:709–716, 1996.

Greenwald HP, Borgatta EF, McCorkle R, and Polissar N. Explaining Reduced Cancer Survival Among the Disadvantaged. Milbank Quarterly 74:215–238, 1996.

Greenwald, HP. Presentation to the IOM Committee on Cancer Research Among Minorities and the Medically Underserved, June 12, 1998.

Griffith HM and Rahman MI. Implementing the Put Prevention into Practice Program. Nurse Practitioner 19:15–19, 1994.

Grimshaw JM. Towards Effective Professional Practice. Therapies 51:233–236, 1996.

Guerra LG, Meza AD, Ho H, Casner PR, and Moldes O. Medicine Residents Practices in Cancer Screening in a Hispanic Population . Southern Medical Journal 87:631–633, 1994.

Hahn RA. The State of Federal Health Statistics on Racial and Ethnic Groups. Journal of the American Medical Association, 267:268–271, 1992.

Hahn RA. Sickness and Healing: An Anthropological Perspective. New Haven, CT: Yale University Press, 1995.

Harlan L, Brawley O, Pommerenke F, Wali P, and Kramer B. Geographic, Age, and Racial Variation in the Treatment of Local/Regional Carcinoma of the Prostate. Journal of Clinical Oncology 13:93–100, 1995.

Harris JR, Lippman ME, Veronesi U, and Willett W. Breast Cancer. New England Journal of Medicine 327:319–328, 390–398, 1992.

Harvard Center for Cancer Prevention. Harvard Report on Cancer Prevention, Volume 1: Causes of Human Cancer. Cancer Causes and Control 7 (Suppl.): 1996. [www document]. URL http://www.hsph.harvard.edu/Organizations/canprevent/conhtml (accessed May 14, 1998).

Health C. Special Section: Racial and Ethnic Patterns. In Cancer Fact & Figures1997. Atlanta, GA: American Cancer Society, 1998.

Heckler MM. Report of the Secretary's Task Force on Black and Minority Health, 1985. Washington, DC: U.S. Department of Health and Human Services, 1985.

Hill C. 20 Years of Cancer Epidemiology. The Epidemiologist's Viewpoint. Revue Epidemiologie Sante Publique 44:547–555, 1996.

Hoffman-Goetz L, Breen NL, and Meissner H. The Impact of Social Class on the Use of Cancer Screening Within Three Racial/Ethnic Groups in the United States. Ethnicity & Disease 8:43–51, 1998.

Hollen PJ and Hobbie WL. Establishing Comprehensive Specialty Follow-Up Clinics for Long-Term Survivors of Cancer. Providing Systematic Physiological and Psychosocial Support. Supportive Care Cancer 3:40–44, 1995.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Hovell MF, Slymen DJ, Jones JA, Hofstetter CR, Burkham-Kreitner S, Conway TL, Rubin B, and Noel D. An Adolescent Tobacco-Use Prevention Trial in Orthodontic Offices. American Journal of Public Health 86:1760–1766, 1996.

Hubbard SM, Martin NB, and Thurn AL. NCI's Cancer Information Systems—Bringing Medical Knowledge to Clinicians. Oncology 9:302–306, 1995.

Institute of Medicine. Inclusion of Women in Clinical Trials: Policies for Population Subgroups. Washington, DC: National Academy Press, 1993

Institute of Medicine. Scientific Opportunities and Public Needs: Improving Priority Setting and Public Input at the National Institutes of Health. Washington, DC: National Academy Press, 1998.

Intercultural Cancer Council. Group Gives Government "Incomplete" on Cancer Report Card (press release), March 13, 1998.


Johnson J. Cancer Survivorship: A Systematic Approach for Providing Psychosocial Interventions (meeting abstract). In 7th International Symposium on Supportive Care in Cancer, September 20–23, 1995, Luxembourg, 1995.

Johnson TP, Ford L, Warnecke RB, Nayfield SG, Kaluzny A, Cutter G, Gillings D, Sondik E, and Ozer H. Effect of a National Cancer Institute Alert on Breast Cancer Practice Patterns. Journal of Clinical Oncology 12:1783–1788, 1994.


Kaluzny AD, Konard TR, and McLaughlin CP. Organizational Strategies for Implementing Clinical Guidelines. Joint Commission Journal of Quality Improvement 21:347–351, 1995a.

Kaluzny AD, Warnecke R, Lacey LM, Johnson T, Gillings D, and Ozer H. Using a Community Clinical Trials Network for Treatment, Prevention, and Control Research: Assuring Access to State-of-the-Art Cancer Care. Cancer Investigation 13:517–525, 1995b.

Katterhagen G. Physician Compliance with Outcome-Based Guidelines and Clinical Pathways in Oncology. Oncology 10 (Suppl.):113–121, 1996.

Klausner RD. Presentation to the IOM Committee on Cancer Research Among Minorities and the Medically Underserved at public meeting, National Academy of Sciences, Washington, D.C., June 12, 1998.

Kleinman A, Eisenberg L, and Good B. Culture, Illness, and Care: Clinical Lessons From Anthropologic and Cross-Cultural Research. Annals of Internal Medicine, 88:251–258, 1978.

Kleinman A. Patients and Healers in the Context of Culture. An Exploration of the Borderland Between Anthropology, Medicine and Psychiatry. Berkeley, CA: University of California Press, 1980.

Knoppers BM, Hirtle M, and Lormeau S. Ethical Issues in International Collaborative Research on the Human Genome: The HGP and the HGDP. Genomics, 34:272–282, 1996.

Knoppers BM, Hirtle M, Lormeau S, Laberge CM, and Laflamme M. Control of DNA Samples and Information. Genomics, 50:385–401, 1998.

Konsler GK and Jones GR. Transition Issues for Survivors of Childhood Cancer and Their Healthcare Providers. Cancer Practice 1:319–324, 1993.

Kosecoff J, Kanouse DE, Rogers WM, McCloskey L, Winslow CM, and Brook RH. Effect of the National Institutes of Health Consensus Development Program on Physician Practice. Journal of the American Medical Association 258:2708–2713, 1987.

Kottke TE, Trapp MA, Spittal P, Panser L, and Novotny P. The Psychological Impact of Modeling in a Cancer Survivors' Fashion Show. American Journal of Preventive Medicine 12:203–207, 1996.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Kripalani S, Weinberg AD, and Cooper HP. Screening for Breast and Prostate Cancer: A Survey of Texas Primary Care Physicians. Texas Medicine 92:59–67, 1996.

Krupnick JL, Rowland JH, Goldberg RL, and Daniel UV. Professionally-Led Support Groups for Cancer Patients: An Intervention in Search of a Model. International Journal of Psychiatry Medicine 23:275–294, 1993.

Leigh S. Cancer Survivorship: A Consumer Movement. Seminars in Oncology 21:783–786, 1994.

Leigh S. Survivorship and Pancreatic Cancer: The Role of Advocacy. Oncology 10(Suppl. 9):38–39, 1996.

Leininger LS, Finn L, Dickey L, Dietrich AJ, Foxhall L, Garr D, Stewart B, and Wender R. An Office System for Organizing Preventive Services: A Report by the American Cancer Society Advisory Group on Preventive Health Care Reminder Systems. Archives of Family Medicine 5:108–115, 1996.

Lenfant C. Communication with IOM Committee on Cancer Research Among Minorities and the Medically Underserved, April 22, 1998

Lerman C, Rimer B, and Glynn T. Priorities in Behavioral Research in Cancer Prevention and Control. Preventive Medicine 26(Pt. 2):S3–S9, 1997.

Leslie C. Asian Medical Systems: A Comparative Study. Berkeley, CA: University of California Press, 1976.

Levine A and Nidiffer J. Beating the Odds: How the Poor Get to College . San Francisco: Jossey-Bass, 1996.

Levine M, Browman G, Newman T, and Cowan DH. The Ontario Cancer Treatment Practice Guidelines Initiative. Oncology 10(Suppl.):19–22, 1996.

Levine MS, Sor S, Yin D, Langlotz CP, and Bachwich D. Barium Enema and Colonscopy: Appropriateness of Utilization in a medicaid Population. Abdominal Imaging 22:41–44, 1997.

Lillie-Blanton M, and LaVeist T. Race/Ethnicity, the Social Environment, and Health. Social Science and Medicine, 43:83–91, 1996.

Lin-Fu JS. Asian and Pacific Islander Americans: An Overview of Demographic Characteristics and Health Care Issues. Asian American and Pacific Islander Journal of Health 1(1):20–26, 1993.

Logue LJ. Reimbursement of Tumor Marker Tests. Clinical Chemistry 39(Pt. 2):2435–2438, 1993.

Lomas J, Anderson GM, Domnick-Pierre K, Vayda E, Enkin MW, and Hannah WJ. Do Practice Guidelines Guide Practice? The Effect of a Consensus Statement on the Practice of Physicians. New England Journal of Medicine 321:1306–1311, 1989.


Mahoney MC and Michalek AM. Health Status of American Indians/Alaska Natives: General Patterns of Mortality. Family Medicine 30:190–194, 1998.

Manfredi C, Czaja R, Buis M, and Derk D. Patient Use of Treatment-Related Information Received from the Cancer Information Service. Cancer 71:1326–1337, 1993.

Mark N and Roberts L. Ethnosensitive Techniques in the Treatment of the Hasidic Patient with Cancer. Cancer Practice 2:202–208, 1994.

Martinez-Maldonado M. Hypertension in Hispanics. Comments on a Major Disease in a Mix of Ethnic Groups. American Journal of Hypertension 8 (Pt. 2):120S–123S, 1995.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Matsunaga DS, Enos R, Gotay CC, Banner RO, DeCambra H, Hammond OW, Hedlund N, Ilaban EK, Issell BF, and Tsark JA. Participatory Research in a Native Hawaiian Community. The Wai'Anae Cancer Research Project. Cancer 78:1582–1586, 1996.

McAfee SL, Warnecke RB, Kaluzny AD, and Ford L. Practice Setting and Physician Influence on Judgements of Colon Cancer Treatment by Community Physicians. Health Services Research, 31:5–19, 1996.

Michalek AM and Mahoney MC. Provision of Cancer Control Services to Native Americans by State Health Departments. Journal of Cancer Education 9:145–147, 1994.

Midwest Latino Health Research, Training and Policy Center. Minorities and Women in Cancer Clinical Trials—Recruitment, Enrollment and Retention. Unpublished document. Midwest Latino Health Research, Training and Policy Center, University of Illinois at Chicago, 1996.

Miller BA, Kolonel LN, Bernstein L, Young JL Jr., Swanson GM, West D, Key CR, Liff JM, Glover CS, Alexander GA, et al., (eds.). Racial/Ethnic Patterns of Cancer in the United States 1988–1992. Bethesda, MD: National Cancer Institute, 1996.

Morton RP. Evolution of Quality of Life Assessment in Head and Neck Cancer. Journal of Laryngology and Otology 109:1029–1035, 1995.

Naranjo D. Health in the Hispanic Community: A Summary of Health-Related Activities and Needs of NCLR Affiliates. Washington, DC: National Council of La Raza, 1992.

National Cancer Institute. Measures of Progress Against Cancer, Vols. I–VII. Bethesda, MD: National Cancer Institute, 1993.

National Cancer Institute. Documentation of the Cancer Research Needs of American Indians and Alaska Natives. Bethesda, MD: National Cancer Institute, 1994.

National Cancer Institute. NCI Program Activities Related to Minority/Special Populations: Recommendations of the NCI Special Action Committee. Bethesda, MD: National Cancer Institute, 1996a.

National Cancer Institute. Extramural Funds, Fiscal Year 1996. Bethesda, MD: National Cancer Institute, 1996b.

National Cancer Institute. National Cancer Institute 1997/1998 Bypass Budget Request Principal Budget Components. Bethesda, MD: National Cancer Institute, 1996c.

National Cancer Institute. Program Structure Fiscal Year 1996. Bethesda, MD: National Cancer Institute, 1996d.

National Cancer Institute. Proceedings of the Conference on Recruitment and Retention of Minority Participants in Clinical Cancer Research . Publication No. 96-41820. Bethesda, MD: National Cancer Institute, 1996e.

National Cancer Institute. A New Agenda for Cancer Control Research: Report of the Cancer Control Review Group. Bethesda, MD: National Cancer Institute, 1997a.

National Cancer Institute. Research Dollars by Various Cancers. Bethesda, MD: National Cancer Institute, 1997b.

National Cancer Institute. Press release, November 6, 1997. Bethesda, MD: National Cancer Institute, 1997c.

National Cancer Institute. NCI Selects First Members of New Director's Consumer Liaison Group. Press release, December 10, 1997. Bethesda, MD: National Cancer Institute, 1997d.

National Cancer Institute. Breast Cancer Prevention Trial Shows Major Benefit, Some Risk, press release dated April 6, 1998. Bethesda, MD: National Institutes of Health, 1998a.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

National Cancer Institute. NCI Initiatives for Special Populations, 1998. Bethesda, MD: National Cancer Institute, 1998b.

National Cancer Institute. Background Information from SEER Expansion Report. Document provided to the study committee by Dr. Brenda Edwards of NCI, April 23, 1998 . 1998c.

National Cancer Institute. The Nation's Investment in Cancer Research. A Budget Proposal for Fiscal Year 1999. Bethesda, MD: National Cancer Institute, 1998d.

National Cancer Institute. Total NCI Dollars by Mechanism. Bethesda, MD: National Cancer Institute, 1998e.

National Cancer Institute. NCI Extramural Research and Program Activities Targeted to Minorities. Bethesda, MD: National Cancer Institute, 1998f.

National Cancer Institute. Priority Setting at the National Cancer Institute. Bethesda, MD: National Cancer Institute, 1998g.

National Cancer Institute. Clinical Trials. Bethesda, MD: National Cancer Institute, 1998h.

National Cancer Institute, Office of Cancer Surviorship. Communication to the Institute of Medicine Committee on Cancer Research Among Minorities and the Medically Underserved. Office of Cancer Survivorship, National Cancer Institute, Bethesda, MD, 1998i.

National Cancer Institute. Cancer Survivorship Studies in Established Epidemiologic Cohorts. Publication No. PA-98-0270. Bethesda, MD: National Cancer Institute, 1998j.

National Center for Health Statistics, U S. Department of Agriculture, and Human Nutrition Information Service. Nutrition Monitoring in the United States: An Update Report on Nutrition Monitoring. Hyattsville, MD: Life Sciences Research Office, Federation of American Societies for Experimental Biology, 1989.

National Center for Health Statistics. Health, United States, 1998 With Socioeconomic Status and Health Chartbook. Hyattsville, MD: National Center for Health Statistics, 1998.

National Institutes of Health. Outreach Notebook for the NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research . Bethesda, MD: National Institutes of Health, 1994.

National Institutes of Health. Setting Research Priorities at the National Institutes of Health. Bethesda, MD: National Institutes of Health, 1997.

National Institutes of Health, Office of Research on Minority Health. Minority Programs: Fact Finding Team Recommendations. Bethesda, MD: Office of Research on Minority Health, National Institutes of Health, 1992.

National Institutes of Health. Cancer Research Initiative, Estimates for FY 1999. Bethesda, MD: National Institutes of Health, March, 1998.

National Institutes of Health, Office of Research on Minority Health. ORMH Budget Prepared at the Request of the IOM Committee on Cancer Research Among Minorities and the Medically Underserved. Office of Research on Minority Health, National Institutes of Health, Bethesda, MD, 1998a.

National Institutes of Health, Office of Research on Minority Health. Budget Information. Office of Research on Minority Health, National Institutes of Health, Bethesda, MD, 1998b.

Nattinger AB, Gottloeb MS, Hoffman RG, Walker AP, and Goodwin JS. Minimal Increase in Use of Breast-Conserving Surgery from 1986 to 1990. Medical Care 34:479–489, 1996.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Newman ML, Brennan M, and Passik S. Lymphedema Complicated by Pain and Psychological Distress: A Case with Complex Treatment Needs. Journal of Pain Symptom Management 12:37–6379, 1996.

North American Association of Central Cancer Registries. Cancer in North America, 1990–1994. Sacramento, CA: North American Association of Central Cancer Registries, 1998.

Nutting PA, Freeman WL, Risser DR, Helgerson SD, Paisano R, Hisnanick J, Beaver SK, Peters I, Carney JP, and Speers MA. Cancer Incidence Among American Indians and Alaska Natives, 1980 Through 1987. American Journal of Public Health 83:1589–1598, 1993.

Olivotto A, Coldman AJ, Hislop TG, Trevisan CH, Kula J, Goel V, and Sawka C. Compliance with Practice Guidelines for Node-Negative Breast Cancer. Journal of Clinical Oncology 15:216–222, 1997.

Osoba D, Till JE, Pater JL, and Young JR. Health-Related Quality of Life: Measurement and Clinical Application . A Workshop Report. Canadian Journal of Oncology 5:338–343, 1995.


Pearlman DN, Ehrich B, and Rakowski W. Mammography, Clinical Breast Exam, and Pap Testing: Correlates of Combined Screening. American Journal of Preventive Medicine 12:52–64, 1996.

Penn V. Overview of the NIH Policy on Inclusion of Women and Minorities in Clinical Research. In Recruitment and Retention of Minority Participants in Clinical Cancer Research. Washington, DC: U.S. Department of Health and Human Services, 1996.

Pincus T and Callahan LF. What Explains the Association Between Socioeconomic Status and Health: Primary Access to Medical Care or Mind-Body Variables. The Journal of Mind-Body Health 11:4–35, 1995.

Polednak AP. Trends in Breast-Conserving Surgery in Connecticut: No Effect of Negative Publicity. Connecticut Medicine 60:527–530, 1996.

Polinsky ML. Functional Status of Long-Term Breast Cancer Survivors: Demonstrating Chronicity. Health and Social Work 19:165–173, 1994. (Erratum, 19:297).

President's Cancer Panel. Report of the President's Cancer Panel: The Meaning of Race in Science—Considerations for Cancer Research . Highlights and Recommendations for the President's Cancer Panel Meeting, April 7, 1997, New York, NY. Bethesda, MD: National Cancer Institute , 1997.

The President's Commission on Heart Disease, Cancer, and Stroke. Report to the President. A National Program to Conquer Heart Disease, Cancer and Stroke. Washington. DC: U.S. Government Printing Office, 1964.


Reiman J. The Rich Get Richer and the Poor Get Prison: Ideology, Class, and Criminal Justice. Needham Heights, MA: Viacom Company, 1997.

Rivera LM. Blood Cell Transplantation: Its Impact on One Family. Seminars in Oncological Nursing 13:194–199, 1997.

Robert Wood Johnson Foundation. To Improve Health and Health Care, 1997: The Robert Wood Johnson Foundation Anthology, SL Isaacs and JR Knickman (eds.). San Francisco: Jossey-Bass, 1997.

Robinson SB, Ashley, M, and Haynes, MA. Attitudes of African-Americans Regarding Prostate Cancer Clinical Trials. Journal of Community Health, 21:77–87, 1996.

Ruffin J. ORMH Assistance in Funding Special NIH Institute and Center. Minority Health/Training Initiatives. Memorandum to NIH Institute and Center Directors, November 25, 1996.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Salazar MK. Hispanic Women's Beliefs About Breast Cancer and Mammography, Cancer Nursing 19:437–446, 1996.

Samet JR, Key CR, Hunt WC, and Goodwin JS. Survival of American Indian and Hispanic Cancer Patients in New Mexico and Arizona, 1969–1982. Journal of the National Cancer Institute 79:457–463, 1987.

Sandercock P. Collaborative Worldwide Overviews of Randomized Trials. Annals of the New York Academy of Sciences 703:149–154, 1993.

Saunders L. Cultural Differences and Medical Care: The Case of the Spanish-Speaking People of the Southwest. New York: Russell Sage Foundation, 1954.

Schapira DV and Levine RB. Breast Cancer Screening and Compliance and Evaluation of Lesions. Medical Clinics of North America 80:15–26, 1996.

Schneider, J. Rewriting the SES: Demographic Patterns and Divorcing Families. Social Science and Medicine 23:211–222, 1986.

Scrimshaw S and McMiller W. What's in a Name? The Meaning and Measurement of Ethnicity for Latinos and African Americans in Health Research . East Lansing, MI: Population Research Group, 1996.

Sherman CR, Potosky AL, Weis KA, and Ferguson JH. The Consensus Development Program: Detecting Changes in Medical Practice Following a Consensus Conference on the Treatment of Prostate Cancer. International Journal of Technology Assessment and Health Care 8:683–693, 1992.

Simmons WJ and Goforth L. The Impact of Managed Care on Cancer Care. Review and Recommendations. Cancer Practice 5:111–118, 1997.

Sink L. Race and Ethnicity Classification Consistency Between the Census Bureau and The National Center for Health Statistics. Population Division Working Paper No. 17. Washington, DC: U.S. Bureau of the Census, 1997.

Smedley A. Race in North America: Origin and Evolution of a Worldview, Second Edition. Boulder, CO: Westview Press, 1999.

Smith DW, Hann NE, Kays CW, and Young L. Native American Supplement-Oklahoma Behavioral Risk Factor Survey. In Abstracts of the 23rd Annual Meeting of the American Public Health Association. Washington, DC: American Public Health Association, 1995.

Solberg LI, Kottke TE, Brekke ML, Calomeni CA, Conn SA, and Davidson G. Using Continuous Quality Improvement to Increase Preventive Services in Clinical Practice-Going Beyond Guidelines. Preventive Medicine 25:259–267, 1996.

Spielman RS, McGinnis RE, and Ewens WJ. Transmission Test for Linkage Disequilibrium: The Insulin Gene Region and Insulin Dependent Diabetes Mellitus (IDDM). American Journal of Genetics 52:506–516, 1993.

Starreveld A. A Surgical Subculture. The Use of Mastectomy to Treat Breast Cancer. Canadian Medical Association Journal 156:25–35; 43–45; 1119, 1121; 1379–1380, 1997.

Stehelin D, Varmus H, Bishop J, et al., DNA Related to the Transforming Gene(s) of Avian Sarcoma Viruses in Normal Avian DNA. Nature 260:170–173, 1976.

Stovall EL. Practice Guidelines: Patients' Perspective. Oncology 10:255–260, 1996.

Studnicki J, Schapira DV, Bradham DD, Clark RA, and Jarrett A. Response to the National Cancer Institute Alert. The Effect of Practice Guidelines on Two Hospitals in the Same Medical Community. Cancer 72:2986–2992, 1993.

Studnicki J, Remmel R, Campbell R, and Werner DC. The Impact of Legislatively Imposed Practice Guidelines on Cesarean Section Rates: The Florida Experience. American Journal of Medical Quality 12:62–68, 1997.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

Suarez L, Nichols DC, Pulley L, Brady CA, and McAlister A. Local Health Departments Implement a Theory-Based Model to Increase Breast and Cervical Cancer Screening. Public Health Reports 108:477–482, 1993.

Suarez L. Pap Smear and Mammogram Screening in Mexican American Women: The Effects of Acculturation. American Journal of Public Health 84:742–746, 1994.

Sugarman JR, Warren CW, Oge L, and Helgerson SD. Using the Behavioral Risk Surveillance System to Monitor Year 2000 Objectives Among American Indians. Public Health Reports 401:449–456, 1992.

Sugarman JR, Holliday M, Ross A, Castorina J, and Hui Y. Improving American Indian Cancer Data in the Washington State Cancer Registry Using Linkages with the Indian Health Service and Tribal records. Cancer (Supplement) 78(7):1564–1568, 1996.

Sullivan LW. Effects of Discrimination and Racism on Access to Health Care From the Secretary of Health and Human Services. Journal of the American Medical Association 266:2674, 1991.

Swanson GM and Ward AJ. Recruiting Minorities Into Clinical Trials: Toward a Participant-Friendly System. Journal of the National Cancer Institute , 87:1747–1759, 1995.

Taylor VM, Taplin SH, Urban N, White E, Mahloch J, Majer K, McLerran D, and Peacock S. Community Organization to Promote Breast Cancer Screening Ordering by Primary Care Physicians. Journal of Community Health 21:277–292, 1996.

Tejeda HA, Green SB, Trimble EL, Ford L, High JL, Ungerleider RS, Friedman MA, and Brawley OW. Representation of African-Americans, Hispanics, and Whites in National Cancer Institute Cancer Treatment Trials. Journal of the National Cancer Institute, 88:812–816, 1996.


Unger J, Hutchins L, Crowley J, Coltman C, and Albain K. Southwest Oncology Group (SWOG) Accrual by Sex, Race, and Age, Compared to US Population Rates. In Abstracts of the American Society of Clinical Oncology, 17:1596. Alexandria, VA: American Society: American Society of Clinical Oncology, 1998.

U.S. Bureau of the Census. Income, Poverty and Health Insurance. Washington, DC: U.S. Bureau of the Census, 1997.

U.S. Bureau of the Census. Poverty in the United States: 1996. Series P60–198. Washington DC: US. Government Printing Office, 1997.

U.S. Bureau of the Census. Census Bureau to Release Results of Research on Questions on Race and Hispanic Origin. Press release, May 15, 1997. From U.S. Bureau of the Census web page URL: http://www.census.gov/Press-Release/cb97-83.html (accessed October 20, 1998). 1998a.

U.S. Bureau of the Census. USA Statistics in Brief: Population, Washington, DC: U.S. Bureau of the Census, 1998b.

U.S. Congress. National Cancer Act of 1971. Public Law 92–218. Washington DC: U.S. Government Printing Office, 1971.

U.S. Congress. Office of Technology Assessment. Health Care in Rural America. OTA-H-434. Washington, DC: U.S. Government Printing Office, 1990.

U.S. Congress. Senate Report No. 100–189. Washington, DC: U.S. Government Printing Office, 1990.

U.S. Department of Health and Human Services. Report of the Secretary's Task Force on Black & Minority Health, Vol. 1. Washington, DC: U.S. Government Printing Office, 1985.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×

U.S. Department of Health and Human Services. NIH Guidelines for the Inclusion of Women and Minorities as Subjects in Clinical Research. Federal Register 59:14508–14513, 1994.

U.S. General Accounting Office. Hispanic Access to Health Care: Significant Gaps Exist. GAO/PEMD 92–96. Washington, DC: U.S. Government Printing Office, 1992.

U.S. Office of Management and Budget. Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity, Federal Register 62 (131):36847–36946, July 9, 1997.

U.S. Preventive Services Task Force. Guide to Clinical Preventive Services, 1977. xxvii. Baltimore, MD: The Williams & Wilkins Co., 1996.

U.S. Public Health Service. Healthy People 2000: National Health Promotion and Disease Prevention Objectives. Washington, DC: U.S. Department of Health and Human Services, 1991.

Valdez RB, Giachello A, Rodriguez-Trias H, Gomez P, and de la Rocha C. Improving Access to Health Care in Latino Communities. Public Health Reports, 108:534–539, 1993.

Valway S. Cancer Mortality Among Native Americans in the United States: Regional Differences in Indian Health, 1984–1988, and Trends Over Time, 1968–1987. Washington, DC: Indian Health Service, U.S. Department of Health and Human Services, 1990.


Ward J, Collins G, and Walmsley J. A Model for Implementing Healthy People 2000 Objectives in African-American Communities in California. Ethnic Diseases 3:158–168, 1993.

Warnecke RB, Johnson TP, Kaluzny AD, and Ford LG. The Community Clinical Oncology Program: Its Effect on Clinical Practice. Journal of Community Quality Improvement 21:336–339, 1995.

Weeks J and Pfister DG. Outcomes Research Studies. Oncology 10(Suppl.):29–34, 1996.

Weinberg, RA. Racing to the Beginning of the Road. New York: Harmony Books, 1996.

Wilcox LS and Mosher WD. Factors Associated with Obtaining Health Screening Among Women of Reproductive Age. Public Health Reports 76–86, 1993.

Williams DR, Lavizzo-Mourey R, Warren, RC. The Concept of Race and Health Status in America. Public Health Reports, 109:26–41, 1994.

Wingo PA, Ries LAG, Rosenberg HM, Miller DS, and Edwards BK. Cancer Incidence and Mortality, 1973–1995: A Report Card for the United States . GA: American Cancer Society, National Cancer Institute, and Centers for Disease Control and Prevention, 1998.

Woolf SH, DiGuiseppi CG, Atkins D, and Kamerow DB. Developing Evidence-Based Clinical Practice Guidelines: Lessons Learned by the US Preventive Services Task Force. Annual Review of Public Health 17:511–538, 1996.


Young WW, Marks SM, Kohler SA, and Hsu AY. Dissemination of Clinical Results. Mastectomy Versus Lumpectomy and Radiation Therapy. Medical Care 34:1003–1017, 1996.


Zenner W. Ethnicity. Pp. 393–395 in Encyclopedia of Cultural Anthropology . New York: Henry Holt and Co., 1996.

Zielstroff RD, Barnett GO, Fitzmaurice JB, Estey G, Hamilton G, Vickery A, Welebob E, and Shahzad C. A Decision Support System for Prevention and Treatment of Pressure Ulcers Based on AHCPR Guidelines. Pp. 562–566 in Proceedings of the AMIA Annual Fall Symposium. Bethesda, MD: American Medical Informatics Association, 1996.

Suggested Citation:"References." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
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We know more about cancer prevention, detection, and treatment than ever before—yet not all segments of the U.S. population have benefited to the fullest extent possible from these advances. Some ethnic minorities experience more cancer than the majority population, and poor people—no matter what their ethnicity—often lack access to adequate cancer care. This book provides an authoritative view of cancer as it is experienced by ethnic minorities and the medically underserved. It offers conclusions and recommendations in these areas:

  • Defining and understanding special populations, and improving the collection of cancer-related data.
  • Setting appropriate priorities for and increasing the effectiveness of specific National Institutes of Health (NIH) research programs, to ensure that special populations are represented in clinical trials.
  • Disseminating research results to health professionals serving these populations, with sensitivity to the issues of cancer survivorship.

The book provides background data on the nation's struggle against cancer, activities and expenditures of the NIH, and other relevant topics.

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