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Rights & Permissions Free PDF Access Free Resources Sign in to download PDF book and chapters PDF EXECUTIVE SUMMARY Display this book on your site! Related Titles Protecting Data Privacy in Health Services Research The Ethical Conduct of Clinical Research Involving Children Other Related Titles Institutional Review Boards and Health Services Research Data Privacy: A Workshop Summary (2000) Institute of Medicine (IOM) Web Search Builder Use this book's key terms to search within this book, across our collection, or across the Web. Skim This Chapter Skim this chapter and use this chapter's key terms to search within this book. Reference Finder Paste in your own text to find books that relate to your topic. Page 41   E-mail  Facebook  Digg  Stumble  Twitter More The following HTML text is provided to enhance online readability. Many aspects of typography translate only awkwardly to HTML. Please use the page image as the authoritative form to ensure accuracy. APPENDIX A Workshop Agenda INSTITUTE OF MEDICINE Cecil and Ida Green Building, Rooms GR-130 and GR-110 2001 Wisconsin Avenue, N.W. March 13–14, 2000 Monday, March 13, 2000 8:30 a.m. Call to Order, Welcome by Chair Bernard Lo, M.D. Charge to Committee, Introductions, Procedures, and Greetings from Sponsors 9:15 OPRR overview Thomas Puglisi, Ph.D. 9:30 IRB Administrators Art Anderson, M.D., Fort Detrick, U.S. Army Angie Khan, University of Texas Health Science Center, San Antonio 10:00 Discussion 10:30 Break 10:45 IRB Chairs or Members James Kahn, M.D., University of California at San Francisco Robert Amdur, M.D., University of Florida Steve Garfinkel, Ph.D., Research Triangle Institute Tora Bikson, Ph.D., RAND Corporation 11:45 Discussion 12:30 p.m. Lunch 1:30 Private or Independent IRB Angela Bowen, M.D., Western Institutional Review Board 1:45 Discussion 2:00 Pharmaceutical Company Harry Guess, Ph.D., Merck 2:15 Discussion Page 41 Front Matter (R1-R8) Table of Contents (R9-R10) Executive Summary (1-4) 1 Introduction (5-11) 2 Workshop Summary (12-36) References (37-38) Acronyms and Abbreviations (39-40) Appendix A Workshop Agenda (41-42) Appendix B Workshop Speakers (43-44) Appendix C Workshop Participants (45-46) Appendix D Biographical Sketches (47-51)

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OCR for page 41
Institutional Review Boards and Health Services Research Data Privacy: A Workshop Summary APPENDIX A Workshop Agenda INSTITUTE OF MEDICINE Cecil and Ida Green Building, Rooms GR-130 and GR-110 2001 Wisconsin Avenue, N.W. March 13–14, 2000 Monday, March 13, 2000 8:30 a.m. Call to Order, Welcome by Chair Bernard Lo, M.D. Charge to Committee, Introductions, Procedures, and Greetings from Sponsors 9:15 OPRR overview Thomas Puglisi, Ph.D. 9:30 IRB Administrators Art Anderson, M.D., Fort Detrick, U.S. Army Angie Khan, University of Texas Health Science Center, San Antonio 10:00 Discussion 10:30 Break 10:45 IRB Chairs or Members James Kahn, M.D., University of California at San Francisco Robert Amdur, M.D., University of Florida Steve Garfinkel, Ph.D., Research Triangle Institute Tora Bikson, Ph.D., RAND Corporation 11:45 Discussion 12:30 p.m. Lunch 1:30 Private or Independent IRB Angela Bowen, M.D., Western Institutional Review Board 1:45 Discussion 2:00 Pharmaceutical Company Harry Guess, Ph.D., Merck 2:15 Discussion

OCR for page 42
Institutional Review Boards and Health Services Research Data Privacy: A Workshop Summary 2:30 Health Services Companies Fred Teitelbaum, Ph.D., and Jennifer Low, Esq., Express Scripts Brent James, M.D., and Morris Linton, J.D., Intermountain Health Care Andrew Nelson, HealthPartners 3:15 Discussion 3:30 BREAK 3:45 Comparing Privacy Standards Internationally Bartha Knoppers, J.D. 4:15 Discussion 5:30 Adjourn Tuesday, March 14, 2000 (GR 110) 8:30 a.m. Call to Order, Welcome by Chair, Brief Introductions of Committee 9:00 Technical Update Lawrence Dietz, Esq., AXENT Technologies 9:15 Discussion 9:30 Special Considerations Regarding Data on Minors Ross Thompson, Ph.D. 10:00 Discussion 10:15 Break 10:30 Special Considerations of Privacy in Heavily Studied Minority Populations William Freeman, M.D. 10:45 Discussion 11:00 General Discussion 12:00 noon Adjourn Open Session

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special considerations