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PAPERBACK list:$37.00 Web:$33.30 add to cart Rights & Permissions Free PDF Access Free Resources Sign in to download PDF book and chapters PDF EXECUTIVE SUMMARY Display this book on your site! Related Titles The Ethical Conduct of Clinical Research Involving Children Putting People on the Map: Protecting Confidentiality with Linked Social-Spatial Data Other Related Titles Protecting Data Privacy in Health Services Research (2000) Institute of Medicine (IOM) Web Search Builder Use this book's key terms to search within this book, across our collection, or across the Web. Skim This Chapter Skim this chapter and use this chapter's key terms to search within this book. Reference Finder Paste in your own text to find books that relate to your topic. Page 99   E-mail  Facebook  Digg  Stumble  Twitter More The following HTML text is provided to enhance online readability. Many aspects of typography translate only awkwardly to HTML. Please use the page image as the authoritative form to ensure accuracy. Acronyms and Abbreviations AAMC Association of American Medical Colleges ACE American College of Epidemiology AHRQ Agency for Healthcare Research and Quality AHSR Association for Health Services Research ASPE Assistant Secretary for Planning and Evaluation ARENA Applied Research Ethics National Association ASPE Assistant Secretary for Planning and Evaluation CFR Code of Federal Regulations DHHS Department of Health and Human Services DSL Digital Subscriber Line FDA Food and Drug Administration GAO General Accounting Office GHPP Georgetown Health Privacy Project HIPAA Health Insurance Portability and Accountability Act HIV Human Immunodeficiency Virus HMO Health Maintenance Organization HSR Health Services Research IHC Intermountain Health Care Page 99 Front Matter (R1-R16) Executive Summary (1-19) 1 Introduction (20-39) 2 Human Subjects Protection and Health Services Research in Federal Regulations (40-50) 3 Best Practices for IRB Review of Health Services Research Subject to Federal Regulations (51-70) 4 Best Practices for IRB or Other Review Board Oversight of Health Services Research Not Necessarily Subject to Federal Regulations (71-77) 5 Recommendations for Next Steps (78-92) References (93-98) Acronyms and Abbreviations (99-100) Appendix A Study Activities (101-105) Appendix B Institutional Review Boards and Health Services Research Data Privacy: A Workshop Summary (106-158) Appendix C Protecting the Health Services Research Data of Minors (159-172) Appendix D Confidentiality of Health Information: International Comparative Approaches (173-186) Appendix E Biographical Sketches (187-192)

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OCR for page 99
Protecting Data Privacy in Health Services Research Acronyms and Abbreviations AAMC Association of American Medical Colleges ACE American College of Epidemiology AHRQ Agency for Healthcare Research and Quality AHSR Association for Health Services Research ASPE Assistant Secretary for Planning and Evaluation ARENA Applied Research Ethics National Association ASPE Assistant Secretary for Planning and Evaluation CFR Code of Federal Regulations DHHS Department of Health and Human Services DSL Digital Subscriber Line FDA Food and Drug Administration GAO General Accounting Office GHPP Georgetown Health Privacy Project HIPAA Health Insurance Portability and Accountability Act HIV Human Immunodeficiency Virus HMO Health Maintenance Organization HSR Health Services Research IHC Intermountain Health Care

OCR for page 100
Protecting Data Privacy in Health Services Research IISC IHC Information Security Committee IOM Institute of Medicine IRB Institutional Review Board ISPE International Society for Pharmacoepidemiology IT Information Technology JHITA Joint Healthcare Information Technology Alliance MCWIRB Medical College of Wisconsin IRB Discussion Forum MPA Multiple Project Assurance NHIS National Health Interview Survey NIH National Institutes of Health NRC National Research Council OECD Organization for Economic Cooperation and Development OHRP Office of Human Research Protections (formerly OPRR) OIG Office of Inspector General OMB Office of Management and Budget OPRR Office for Protection from Research Risks PBM Pharmacy Benefit Management PhRMA Pharmaceutical Research and Manufacturers of America PKI Public Key Infrastructure PRIM&R Public Responsibility in Medicine and Research QA Quality Assurance QI Quality Improvement RTI Research Triangle Institute UCSF University of California at San Francisco USUHS Uniform Services University of Health Sciences UTHSCSA University of Texas Health Sciences Center in San Antonio WIRB Western Institutional Review Board

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review board