Appendix B Agenda
7:30 am |
Light Breakfast |
8:00 |
Welcome Ray White, Ph.D. University of Utah, Salt Lake City |
8:15 |
Panel One: Public Concerns About the Use of Genetic Information Vicky Whittemore, Ph.D. National Tuberous Sclerosis Association & Alliance Genetic Support Group Paul Billings, M.D. Veterans Administration Hospital, Grand Prairie, Texas |
8:45 |
Discussion |
9:15 |
Coffee Break |
9:30 |
Panel Two: Current Safeguards Used to Maintain Privacy in Genetic Research Leo Whelan, JD Mayo Clinic - IRB Member Sherri Bale, Ph.D. NIAMS, NIH - IRB Member for CDC Pieter de Jong, Ph.D. Roswell Park Cancer Institute, Buffalo, NY |
10:00 |
Discussion |
10:30 |
Panel Three: Informed Consent and Research Sue Rose, Ph.D. Department of Energy Gene Carstea, Ph.D. Saint Mary's Medical Center, Grand Junction, CO Barbara Handelin, Ph.D. Handelin Associates |
11:00 |
Discussion |
11:30 |
Working Lunch |
12:15 |
Current Legislation Related to Genetic Research Irene Stith-Coleman Congressional Research Service, Washington, D.C. |
12:30 |
Discussion |
12:45 |
Panel Four: Researcher Concerns About Restrictions on Genetic Research Ray White, Ph.D. University of Utah, Salt Lake City David Korn, M.D. Stanford University and Senior Vice President, AAMC Eleanor Kerr SmithKline Beecham |
1:15 |
Discussion |
1:45 |
Wrap up |
2:00 |
Adjourn |