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Public Confidence and Involvement in Clinical Research Symposium Summary, Clinical Research Roundtable, September 2000 (2001) / Chapter Skim
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Symposium Summary
Pages 1-5

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From page 1...
... speakers who have collected data on the public's perception of clinical research; speakers who are experienced researchers and have collected information on the barriers and incentives that influence recruitment and retention of research participants; speakers who represent different patient groups; and speakers who have experience integrating clinical research into a community-based clinical practice. Repeated themes from the meeting suggest that the American public is very supportive of clinical research, that collaborative models where researchers and participants work together tend to be more successful, and that research participants needs must be explicitly address in order to improve recruitment and retention.
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From page 2...
... These data challenge the Plea that Americans are skeptical ant} suspicious about the research enterprise. Kenneth Getz, member of the CRR and President and Publisher of CenterWatch, which provides information services used by patients, pharmaceutical, biotechnology and medical (1evice companies, CROs and research centers involved in clinical research around the world, presented data on industry-sponsored research.
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From page 3...
... Materials are available free of charge. The Campaign's website also contains links to databases listing clinical research studies currently recruiting women.
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From page 4...
... clinical researchers who were developing a Canavan screening test. These included allegations that research was conducted without informed consent and that patent and marketing restrictions imposed by the hospital at which the research was performed kept families affected by Canavan from accessing the screening test once it was developed in spite of the fact that they had financially supported the research and participated as research subjects.
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From page 5...
... the fact that the Internet is playing an expanding role in how patients and the public are getting information about clinical research. Other issues discussed were ways to create incentives for cross-institutional research, how to effectively involve community-based physicians who wish to participate in clinical research, the importance of creating national guidelines for IRBs, and the pros and cons of placebo-controlled trials.
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Key Terms

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  • public confidence
  • cancer patients
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  • screening test
  • clinical practice
  • academies held
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  • included allegations
  • collaborative models
  • performed kept
  • president emeritus
  • personal health

  • actively involve
  • studies currently
  • community pediatrician
  • create incentives
  • national alliance

  • potential participants
  • richard schwartz
  • research study
  • key ethical
  • patients surveyed

  • population typically
  • risk taker
  • clinical trials
  • creating unnecessary
  • aids activists


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