Eliminating Health Disparities Measurement and Data Needs (2004) / Chapter Skim
Currently Skimming:
Appendix A Descriptions of National Health and Health Care Surveys
Appendix A Descriptions of National Health and Health Care Surveys
Pages 129-178
The Chapter Skim interface presents what we've algorithmically identified as the most significant single chunk of text within every page in the chapter.
Select key terms on the right to highlight them within pages of the chapter.
From page 129... ...
Racial and Ethnic Data Collected: Race: American Indian/Alaska Native; Asian or Pacific Islander; Black; 129
|
From page 130... ...
Sample Size: 2001: 780,000 individuals completed the survey Racial and Ethnic Data Collected: Follows 1997 revised OMB standards SEP Data Collected: Highest grade level completed (these are core questions; other data may be collected specific to the type of ser vices provided) Language and Acculturation Data Collected: The survey is offered in English and Spanish.
|
From page 131... ...
and National Center for Health Statistics (NCHS) Main Purpose of Data Collection: To provide data about health care use and costs to improve economic pro jections.
|
From page 132... ...
Racial and Ethnic Data Collected: HC: Race: American Indian, Aleut; Asian; Black; White; Other Ethnicity: Hispanic or Not Hispanic NHC: Race: American Indian or Alaska Native; Asian or Pacific Is lander; Black; White; Other Ethnicity: Hispanic or Not Hispanic IC: Not collected MPC: Not collected SEP Data Collected: HC: education, employment, income/ poverty status, health care expendi tures, and wealth (assets/debts) NHC: income and insurance coverage IC: Not collected MPC: Not collected Language and Acculturation Data Collected: HC: Language of interview IC, MPC, NHC: Not collected Medicare Current Beneficiary Survey (MCBS)
|
From page 133... ...
Can be used as a time series. · In-person interview using CAPI Sample Size: Approximately 12,000 each year Racial and Ethnic Data Collected: Through 1997: Race: White; Black; American Indian or Alaska Native; Asian or Pacific Islander; Other Ethnicity: Hispanic or Not Hispanic Beginning in 1998: Race and Ethnicity: Follows 1997 revised OMB standards SEP Data Collected: Income, assets, family supports, quality of life, education Language and Acculturation Data Collected: Not collected National Health and Nutrition Examination Survey (NHANES)
|
From page 134... ...
: White; Negro Origin or Descent (1974-1975) : German; Irish; Italian; French; Polish; Russian; English; Welsh; Mexican; Mexican-American; Chicano; Mexicano; Puerto Rican; Cuban; Central or South American; Other Spanish; Negro; Black SEP Data Collected: Income, education, poverty status, employment (industry)
|
From page 135... ...
; Other SEP Data Collected: Poverty status, income, education, employment (industry, occupation) Language and Acculturation Data Collected: Language spoken at home NHANES III Main Purpose of Data Collection: To continue data collection from NHANES I and II on health and nutritional status of the population.
|
From page 136... ...
Periodicity of Data Collection: 1999-2003 (the latest release is 1999 2000 data) Type of Survey: Cross-sectional Sample Size: 1999-2000 data release: 9,965 per sons Racial and Ethnic Data Collected: Follows 1997 revised OMB standards SEP Data Collected: Education, employment (industry, occupation, job duties)
|
From page 137... ...
Type of survey: · Cross-sectional · Surveys conducted in respondents' homes Sample Size: 2002 Survey: Family Core: 93,138 individuals Sample Adult Core: 31,044 individu als Sample Child Core: 12,524 individu als Total:136,706 Racial and Ethnic Data Collected: Race: For public use: 1997 revised OMB standards Additional racial categories not avail able for public use: Native Hawaiian; Guamanian; Samoan; Other Pacific Islander; Asian Indian; Chinese; Filipino; Japanese; Korean; Vietnam ese Ethnicity: Hispanic, Central or South American; Other Latin American; Other Spanish; Hispanic/Latino/ Spanish type unknown; Not Hispanic/ Spanish origin SEP Data Collected: Employment, family income, educa tion Language and Acculturation Data Collected: Place of birth, citizenship status National Immunization Survey (NIS) Agency: National Center for Health Statistics, Centers for Disease Control and Prevention
|
From page 138... ...
National Longitudinal Study of Adolescent Health (AddHEALTH) Agency: Demographic and Behavioral Sciences Branch, National Institute for Child Health and Human Development, National Institutes of Health Main Purpose of Data Collection: To provide a comprehensive view of the health and health behaviors of adolescents and the antecedents- personal, interpersonal, familial, and environmental -- of these outcomes.
|
From page 139... ...
The next question offers the following choices: white; black or African American; American Indian or Native American; Asian or Pacific Islander; other. Respondents are allowed to choose as many races as they wish.
|
From page 140... ...
Agency: National Center for Health Statistics, Centers for Disease Control and Prevention Main Purpose of Data Collection: To provide data to analyze the causes of disease, and other issues related to health and mortality. Periodicity of Data Collection: Survey years: 1961, 1962-1963,
|
From page 141... ...
Racial and Ethnic Data Collected: Race: White; Black; American Indian; Eskimo; Aleut; Chinese; Filipino; Hawaiian; Korean; Vietnamese; Japanese; Asian Indian; Samoan; Guamanian; Other Asian/Pacific Islander; Other Race Ethnicity: Puerto Rican; Cuban; Mexican/Mexicano; Mexican Ameri can; Chicano; Other Latin American; Other Spanish SEP Data Collected: Medical expenditures, education, employment, income and assets Language and Acculturation Data Collected: Country of origin National Survey on Drug Use and Health (NSDUH) Agency: Office of Applied Studies, Substance Abuse and Mental Health Services Administration Main Purpose of Data Collection: To collect data for the study of pat terns of substance use.
|
From page 142... ...
Racial and Ethnic Data Collected: Race: White; Black/African American; American Indian or Alaska Native; Asian or Pacific Islander; Other Ethnicity: Hispanic or Spanish Origin or Descent; Not of Hispanic or Span ish Origin or Descent SEP Data Collected: Education, employment, family in come Language and Acculturation Data Collected: Respondents are asked what country they were born in and how long they have lived in the United States. National Survey of Family Growth (NSFG)
|
From page 143... ...
Sample Size: Cycle Sample 1 9,797 2 8,611 3 7,969 4 8,450 5 10,847 6 Not available Racial and Ethnic Data Collected: Race/Ethnicity: American Indian/ Alaskan Native; Asian or Pacific Islander; Black not of Hispanic origin; White not of Hispanic origin; His panic SEP Data Collected: Education/vocational training, em ployment Language and Acculturation Data Collected: Not collected Youth Risk Behavior Surveillance System (YRBSS) Agency: National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention Main Purpose of Data Collection: To provide data for the study of the prevalence of health risk behaviors of young people.
|
From page 144... ...
Racial and Ethnic Data Collected: Follows 1997 revised OMB standards SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected HEALTH CARE ESTABLISHMENT-BASED SURVEY DATA COLLECTIONS (in alphabetical order) Healthcare Cost and Utilization Project (HCUP)
|
From page 145... ...
SEP Data Collected: Median income for Zip Code Language and Acculturation Data Collected: Not collected National Ambulatory Medical Care Survey (NAMCS) Agency: National Center for Health Statistics, Centers for Disease Control and Prevention Main Purpose of Data Collection: To collect data on ambulatory care visits made to physician offices in the United States.
|
From page 146... ...
, Metropolitan Statis tical Area, region, and certification status. In the second stage, lists of current residents and discharges were constructed for each agency so that six current residents and six dis charges could be selected using a systematic probability sample.
|
From page 147... ...
Ethnic categories: Hispanic Origin; Non-Hispanic; Not Stated SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected National Nursing Home Survey (NNHS) Agency: National Center for Health Statistics, Centers for Disease Control and Prevention Main Purpose of Data Collection: To collect data from nursing homes, their residents, and their staff.
|
From page 148... ...
In the second stage, lists of current residents and discharges were constructed for each facility, so that six current resi dents and six discharges could be selected using a systematic probability sample. Discharges that occurred because of death are included in the sample.
|
From page 149... ...
How Data are Collected: There is a full mail survey with a telephone follow-up in which a facil ity representative fills out the form. Unit of Analysis: Facility Sample Size: 14,622 facilities eligible in 2000, and a 94 percent response rate Racial and Ethnic Data Collected: Not collected SEP Data Collected: Not collected Language and Acculturation Data Collected: The questionnaire asks if substance abuse treatment is offered in different languages at the facility.
|
From page 150... ...
Source of Data: Patient medical records Universe of Data Collection: All persons with HIV infection who access selected hospitals, outpatient facilities, and HIV treatment facilities in the 10 selected project areas. Racial and Ethnic Data Collected: American Indian/Alaska Native; Asian or Pacific Islander; Black, Not of Hispanic Origin; White, Not of His panic Origin; Hispanic SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected Childhood Blood Lead Surveillance Agency: National Center for Environmental Health Purpose of Collection: To build state capacity to conduct surveillance; to establish a national surveillance system based on state systems; and to use data to direct
|
From page 151... ...
Source of Data: Patient records Universe of Data Collection: All mothers and infants that are reported to CDC as having syphilis by STD control programs and health departments in all states, DC, selected cities, and U.S. dependencies and possessions Racial and Ethnic Data Collected: American Indian/Alaska Native; Asian
|
From page 152... ...
, Black (non-Hispanic) , Asian/ Pacific Islander, American Indian/ Alaska Native, Other.
|
From page 153... ...
Source of Data: Medical records Universe of Data Collection: Persons with firearm injuries who receive treatment at United States hospitals that provide emergency services. Racial and Ethnic Data Collected: American Indian/Alaska Native; Asian or Pacific Islander; Black; White; Other.
|
From page 154... ...
Source of Data: Surveys, patient records Universe of Data Collection: Persons in the United States who have contracted a foodborne disease Racial and Ethnic Data Collected: Available, but categories are unspeci fied. SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected Gonococcal Isolate Surveillance Project: Demographic/Clinical Data and Antimicrobial Susceptibility Testing (GISP)
|
From page 155... ...
Haemophilus influenzae invasive disease cases reported by health departments and hospitals Racial and Ethnic Data Collected: The OMB Statistical Directive 15 two-variable standard for reporting is used. Racial categories are: White; Black; Asian/Pacific Islander; Ameri can Indian/Alaska Native; Other.
|
From page 156... ...
Racial and Ethnic Data Collected: American Indian/Alaska Native; Asian or Pacific Islander; Black, Not of
|
From page 157... ...
cities Racial and Ethnic Data Collected: American Indian/Alaska Native; Asian or Pacific Islander; Black; White; Other. Ethnic categories are: Hispanic (Mexican-American, Puerto Rican, Cuban)
|
From page 158... ...
Source of Data: Patient record Universe of Data Collection: All persons in the United States with bacterial meningitis Racial and Ethnic Data Collected: Available, but the categories are unspecified. SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected National Campylobacter Surveillance System Agency: National Center for Infectious Dis eases Purpose of Collection: To learn more about how Campylobacter causes disease and is spread.
|
From page 159... ...
Agency: National Center for Infectious Dis eases Purpose of Collection: To describe the epidemiology of nosocomial infections, to describe antimicrobial resistance trends, and to produce nosocomial infection rates to use for comparison purposes. Source of Data: Laboratory charts Universe of Data Collection: All persons in the United States with nosocomial infections Racial and Ethnic Data Collected: Not collected SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected
|
From page 160... ...
information to improve planning for future health care needs. Source of Data: Patient record Universe of Data Collection: All persons in the United States with cancer Racial and Ethnic Data Collected: White; Black; American Indian/Aleu tian or Eskimo; Chinese; Japanese; Filipino; Hawaiian; Korean; Asian Indian/Pakistani; Vietnamese; Lao tian; Hmong; Kampuchean; Thai; Micronesian, NOS; Chamorran; Guamanian, NOS; Polynesian, NOS; Tahitian; Samoan; Tongan; Melanesian, NOS; Fiji Islander; New Guinean; Other Asian (including Asian, NOS and Oriental, NOS)
|
From page 161... ...
(only evidence of person's Hispanic origin is surname or maiden name) ; Unknown Whether Spanish or Not SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected National Salmonella Surveillance System (NSSS)
|
From page 162... ...
Not all of the participating hospitals collect racial and ethnic data. SEP Data Collected: Information about the person's indus try Language and Acculturation Data Collected: Not collected
|
From page 163... ...
; Indian (now Native American, listed by tribe whenever possible, e.g., AIN = American Indian Navajo, American Indian Pueblo, etc.) ; Oriental (now
|
From page 164... ...
; Black (not of Hispanic origin) ; American Indian or Alaska Native; Asian or Pacific Islander; Hispanic; Unknown SEP Data Collected: Education and income Language and Acculturation Data Collected: Not collected Sentinel-Site Laboratory-Based Surveillance for Cyclospora Agency: National Center for Infectious Dis eases
|
From page 165... ...
Source of Data: Medical records Universe of Data Collection: All persons in the United States who suffer an injury that causes them to visit an emergency department Racial and Ethnic Data Collected: Not collected SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected STD Surveillance Systems Agency: National Center for HIV, STD, and TB Prevention Purpose of Collection: To collect data on cases of syphilis (all stages) , congenital syphilis (before 1995)
|
From page 166... ...
Racial and Ethnic Data Collected: Collected, but categories are not specified. SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected Surveillance for Giardia Agency: National Center for Infectious Dis eases Purpose of Collection: To identify cases of giardia within the United States.
|
From page 167... ...
Source of Data: Patient records Universe of Data Collection: All persons in the United States with HIV who are treated for Pneumacystis Carinii Pneumonia Racial and Ethnic Data Collected: White, Non-Hispanic; Black, Non Hispanic; Hispanic/Latino; American Indian/Alaska Native; Asian/Pacific Islander; Other; Unknown SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected Surveillance for Trichinosis Agency: National Center for Infectious Dis eases Purpose of Collection: To monitor trends in trichinosis.
|
From page 168... ...
Source of Data: Direct interview/self-report Universe of Data Collection: All health care workers from partici pating hospitals Racial and Ethnic Data Collected: Asian, Black, Hispanic, American Indian/Alaska Native, White, Other races SEP Data Collected: Occupation Language and Acculturation Data Collected: Country of birth Tetanus Agency: National Immunization Program Purpose of Collection: To provide data describing each tetanus case with respect to the wound, type of wound, and where it occurred.
|
From page 169... ...
Source of Data: Patient records Universe of Data Collection: All persons in the United States who suffer a traumatic brain injury Racial and Ethnic Data Collected: American Indian/Alaska Native; Asian or Pacific Islander; Black; White; Other. Categories of ethnicity are Hispanic and Not of Hispanic Origin.
|
From page 170... ...
Source of Data: Direct interview and patient records Universe of Data Collection: All persons with TB who visit private doctors or nurses, hospitals, and public health clinics, and data from public health laboratories and state/ local health departments Racial and Ethnic Data Collected: Uses OMB standards SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected Unexplained Deaths and Serious Illnesses Surveillance Agency: National Center for Infectious Dis eases Purpose of Collection: To identify and collect clinical speci mens from people who have suffered unexplained deaths or serious ill nesses. Source of Data: Medical records Universe of Data Collection: All previously healthy persons in the United States, aged 1-49 years, who have died for no obvious reason or who have experienced an unexplained serious illness Racial and Ethnic Data Collected: Available, but categories are not specified SEP Data Collected: Occupation Language and Acculturation Data Collected: Not collected
|
From page 171... ...
Source of Data: Medical records Universe of Data Collection: All persons in the United States with hemophilia and other bleeding disor ders who receive at least some of their care from federally sponsored hemo philia treatment centers Racial and Ethnic Data Collected: Available, but no standardized cat egories are used SEP Data Collected: Education Language and Acculturation Data Collected: Not collected United States Influenza Sentinel Physician Surveillance Network Agency: National Center for Infectious Dis eases Purpose of Collection: To identify how many people in the United States have influenza or an influenza-like illness. Source of Data: Physician survey Universe of Data Collection: All persons who visit a doctor in the United States and exhibit symptoms of influenza Racial and Ethnic Data Collected: Not collected SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected
|
From page 172... ...
Source of Data: Patient records Universe of Data Collection: All persons in the United States who have hepatitis A, B, or C Racial and Ethnic Data Collected: American Indian or Alaska Native; Asian or Pacific Islander; Black; White; Unknown. Ethnic categories are: Hispanic; non-Hispanic; Un known.
|
From page 173... ...
Source of Data: Survey and patient records Universe of Data Collection: All persons in the United States in fected with a waterborne disease Racial and Ethnic Data Collected: Not collected SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected HUMAN SERVICE PROGRAMS IN DHHS Child Care and Development Block Grant Agency: Administration for Children and Families Purpose: To make grants to states and tribes to assist low-income families with child care and to: (1) allow each state maximum flexibility in developing child care programs and policies that best suit the needs of children and parents within state; (2)
|
From page 174... ...
Language and Acculturation Data Collected: Not collected Child Support Enforcement Program (CSE) Agency: Administration for Children and Families Purpose: This program is a federal/state/local partnership that works to locate noncustodial parents, establish pater nity when necessary, establish orders for support, and collect child support payments for families.
|
From page 175... ...
Child support payments that are collected on behalf of non-TANF families are sent to the family. Racial and Ethnic Data Collected: Not collected SEP Data Collected: Not collected Language and Acculturation Data Collected: Not collected Adoption and Foster Care Analysis and Reporting System Agency: Administration for Children and Families Purpose: Collects information on all children in foster care for whom the state child welfare agency has responsibility as well as children who are adopted under the auspices of the state's public child welfare agency.
|
From page 176... ...
Agency: Maternal and Child Health Bureau, Health Resources and Services Ad ministration Purpose: To promote and improve the health of all United States mothers and children by supporting states' efforts to extend and improve health and welfare services for mothers and children. Population Covered: All mothers and children in the United States Racial and Ethnic Data Collected: Uses OMB standards (can choose more than one race)
|
From page 177... ...
Population Covered: Children who are at risk of abuse or neglect or are in the child welfare system Racial and Ethnic Data Collected: Uses OMB standards SEP Data Collected: Information about financial resources available to the child's family is collected. Language and Acculturation Data Collected: Not collected Social Services Block Grant (SSBG)
|
From page 178... ...
Agency: Office of Family Assistance, Adminis tration for Children and Families Purpose: To provide assistance and work opportunities to needy families by granting states with federal funds and wide flexibility to develop and imple ment their own welfare programs. Population Covered: Low-income people in the United States Racial and Ethnic Data Collected: Uses OMB standards SEP Data Collected: Collects employment, income, and cash resources information Language and Acculturation Data Collected: Not collected Uses OMB standards: American Indian and Alaska Native; Asian; Black or African American; Native Hawaiian and Other Pacific Islander; White.
|
Key Terms
This material may be derived from roughly machine-read images, and so is provided only to facilitate research.
More
information on Chapter Skim is available.