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Appendix O Promoting Health and Preventing Secondary Conditions Among Adults with Developmental Disabilities--Tom Seekins, Meg Traci, Donna Bainbridge, Kathy Humphries, Nancy Cunningham, Rod Brod, and James Sherman
Pages 251-264

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From page 251...
... . Arguably, secondary conditions play a significant role in limiting the participation of individuals with intellectual or developmental disabilities in community life (Pope, 1992)
From page 252...
... In this model, physiological, environmental, and behavioral risk and protective factors are seen as influencing limitations due to secondary conditions. For example, a change in living arrangements to a less restrictive arrangement may increase limitations due to isolation.
From page 253...
... Starting at the far right, annual assessments of the health of the targeted population of adults with intellectual or developmental disabilities living in supported living arrangements are conducted, for example, by a designated health coordinator, program staff, and consumers themselves. Data from such assessments are compiled and provided to state program planners.
From page 254...
... 254 Surveillance System Health Systems Individual Risk Producer and Risk, Screening, Annual Systems Training Assessment Consumer Referral, and Surveillance of Monitoring and Planning Training Health Promotion Health Status Interagency Linkages DD Division DD Division DD Division Designed Health Designed Health Program Staff Consumers Coordinator Coordinator Health Health Health Public health Public health Friends Program Staff Department Department Department Nurse Nurse UAPs/ UCEs UAPs/ UCEs Contacted Contacted Co-workers Designed Health Professionals Professionals Coordinator VR Others Others Others Public health Nurse Private Providers Institutions Associations FIGURE O-2 Surveillance systems for secondary conditions in the population of adults with intellectual and developmental disabilities living in supported arrangements.
From page 255...
... Assessing Secondary Conditions As a first key step in developing a systematic, evidence-based approach to preventing and managing secondary conditions among adults with intellectual or developmental disabilities living in supported arrangements, we developed and validated a secondary conditions surveillance instrument in a series of studies (Traci et al., 2002)
From page 256...
... Thus, the problem index ranks the most severe secondary conditions experienced by the most respondents. Table O-1 presents the top 14 secondary conditions reported in one sample as rank ordered by use of a Problem Index, a calculation used to identify the most significant problem experienced by the most people.
From page 257...
... reported that adults with developmental disabilities in North Carolina were more likely to lead sedentary lifestyles and seven times as likely to report inadequate emotional support than adults without disabilities. Robertson and colleagues (2000)
From page 258...
... For the many adults with intellectual or developmental disabilities living in group homes or supported living environments, someone else is primarily responsible for organizing the environment and ensuring that healthy behavior patterns are followed. As such, personal assistants play a significant role in the prevention and management of the secondary conditions experienced by adults with intellectual or developmental disabilities (Pope, 1992)
From page 259...
... examined the oral health microenvironments of individuals in supported living arrangements and conducted a pilot project to examine the effectiveness of a simple oral health behavior intervention. Microenvironments consisted of the immediate area -- e.g., sink, medicine cabinet, mirror, and toothbrush holder -- in which an individual typically keeps his or her oral health equipment and brushes his or her teeth.
From page 260...
... At week 6, it was 1.25. At baseline, the Lobene Stain Index for the experimental brush conditions was 2.25.
From page 261...
... Currently, we are developing The Wellness Club, a contextually appropriate intervention that is designed to serve as a mechanism that can be used to consistently address health and wellness issues within supported living arrangements. The Wellness Club is the system that we have designed for planning, implementing, and evaluating these action steps for Americans with developmental disabilities.
From page 262...
... A substantial body of research has demonstrated the health benefits of a wide range of lifestyle practices. The findings of this research provide one example an empirically derived health promotion strategy for adults with intellectual or developmental disabilities living in supported living arrangements.
From page 263...
... . Toward secondary conditions risk appraisal for adults with intellectual or developmental disabilities.
From page 264...
... . Turnover of personal assistants and the incidence of injury among adults with developmental disabilities.


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