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2 Models for Building a Translational Research Program
Pages 21-26

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From page 21...
... After the decision has been made to utilize venture philanthropy strategies to support a translational research program, an organization naturally begins to consider looking at structural models that have worked in the past for other, similar organizations. Questions about how best to recruit leadership, attract bright investigators into your disease space, and fund sustainable research arise, and much can be gleaned from the experiences and best practices of other voluntary health organizations.
From page 22...
... One of the biggest leadership challenges for many translational research programs is cultural -- specifically, knowing how to navigate the differences in academic and corporate leadership culture.
From page 23...
... This is especially true of rare diseases, where the volume of work is relatively small, she added. Increasingly, voluntary health organizations are doing more than just writing checks by presenting research results at scientific meetings if they believe they have the scientific expertise and the broad, constant-attention view that the research needs.
From page 24...
... Joyce explained that in the case of the Spinal Muscular Atrophy Foundation, the disease is relatively understudied, so it was important to first raise awareness of the disease in order to recruit individuals to work on core research and identify new areas for discovery. The foundation invested in recruiting scientists to the field, and Joyce explained that part of this outreach has been through the contract research organizations conducting its fee-for-service research.
From page 25...
... Fox Foundation's Rapid Response Program for early-stage, hypothesis-driven work is very different from the foundation's other programs. Funding decisions are made extraordinarily quickly, within 6 weeks of receiving an application.
From page 26...
... . BOX 2-1 Key Points: Models for Building a Translational Research Program • Sometimes you need to spend time and energy testing various hypotheses in a methodical way.


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