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Appendix B: Workshop on Venture Philanthropy Strategies Used by Patient Organizations to Support Translational Research
Pages 59-68

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From page 59...
... An individual from this foundation is seeking advice on es tablishing a translational research program for the development of a novel drug and/or biomarker/diagnostic. The foundation is 59
From page 60...
... 8:30 Welcome Introductions and Workshop Objectives TIMOTHY COETZEE, Chair Executive Director Fast Forward of the National Multiple Sclerosis Society 8:40 Opening Remarks: Opportunities for Foundation Support JOYCE NELSON President and Chief Executive Officer National Multiple Sclerosis Society 9:05 Challenges and Opportunities for Neurological and Mental Health Translational Research: Basic to Clinical Research and Clinical Toward Practice DENNIS CHOI Executive Director, Strategic Neurosciences Initiative Executive Director, Comprehensive Neurosciences Initiative Emory University
From page 61...
... They are particularly interested in the criteria considered and the decision matrix you and your organization used to determine whether or not your organization would establish a formal trans lational research program for the development of a novel drug and/or biomarker/diagnostic. 9:20 Introduction to the Session MARIA CARRILLO, Session Chair Director, Medical and Scientific Relations Alzheimer's Association 9:25 Panelist Remarks RICHARD INSEL Executive Vice President, Research Juvenile Diabetes Research Foundation KATIE HOOD President and Chief Executive Officer The Michael J
From page 62...
... Session II Scenario The individual from the Colten Foundation who previously spoke to you has used your decision matrix and decided to move ahead with a formal research program. Given how helpful you originally were, they are now asking for more information.
From page 63...
... LINDA VAN ELDIK Professor, Department of Cell and Molecular Biology Northwestern University Feinberg School of Medicine 11:50 Discussion with Attendees TIMOTHY COETZEE, Moderator Executive Director Fast Forward of the National Multiple Sclerosis Society 12:15 LUNCH
From page 64...
... 1:00 Introduction to the Session TIMOTHY COETZEE, Session Chair Executive Director Fast Forward of the National Multiple Sclerosis Society 1:05 Panelist Remarks ANDREA TOBIAS Portfolio Advisor Fast Forward, LLC KENNETH SCHANER General Counsel Kenneth Schaner, PC PETER HEINECKE Chief Business Officer Experimed Bioscience, Inc.
From page 65...
... Session IV Scenario The Colten Foundation has previously been working with just a couple of other researchers or companies, but realizes that in or der to develop an effective research program they will need to expand their portfolio of collaborators (e.g., nonprofit organiza tions, the NIH, therapeutic/diagnostic industry)
From page 66...
... 66 VENTURE PHILANTHROPY STRATEGIES 2:10 Introduction to the Session JUDY ILLES, Session Chair Professor Neurology University of British Columbia 2:15 Panelist Remarks MARGARET ANDERSON Chief Operating Officer FasterCures SHARON HESTERLEE Vice President, Translational Research Muscular Dystrophy Association TRICIA BROOKS Managing Director, Alliance Development Biotechnology Industry Organization 2:55 Respondent Panel Discussion SUSAN WOLF McKnight Presidential Professor of Law, Medicine, & Public Policy University of Minnesota School of Law RUSTY BROMLEY Chief Operating Officer Myelin Repair Foundation 3:05 Discussion with Attendees JUDY ILLES, Moderator Professor Neurology University of British Columbia 3:20 BREAK
From page 67...
... 3:30 Introduction to the Session JONATHAN JACOBY, Session Chair Chief Operating Officer CollabRx, Inc. 3:35 Panelist Remarks SHARON TERRY President and Chief Executive Officer Genetic Alliance DAN ZENKA Vice President, Communications Prostate Cancer Foundation
From page 68...
... 4:40 Discussion with Attendees TIMOTHY COETZEE, Chair Executive Director Fast Forward of the National Multiple Sclerosis Society 5:00 ADJOURN


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