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Appendix D: Biographical Sketches of Invited Speakers, Planning Committee Members, and Staff
Pages 71-92

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From page 71...
... Prior to joining the society, she was a health science analyst at the American Public Health Association from 1992 to 1995, where she managed a programmatic portfolio on HIV/AIDS and other sexually transmitted diseases, infectious diseases, women's health, and public health infrastructure issues.
From page 72...
... Brooks advocated policies related to biomedical research, including clinical trials and stem cell research, led issue-based campaigns through broad public education initiatives, mobilized grassroots lobbying, and developed diverse coalitions to advocate with both the legislative and executive branches.
From page 73...
... She was a staff science writer and magazine editor for the Muscular Dystrophy Association and a freelance medical writer and journalist before joining the staff of the National Multiple Sclerosis Society's headquarters.
From page 74...
... As the director of medical and scientific relations, she is responsible for overseeing the Scientific Grant Program, the mechanism through which the association funds research applications. In addition to ensuring the smooth review of applications and distribution of awards to successful applicants, she is responsible for sharing results and ongoing investigations with a wide range of constituents.
From page 75...
... He has served as president of the Society for Neuroscience, vice-president of the American Neurological Association, and chairman of the U.S./Canada Regional Committee of the International Brain Research Organization. He has also served on the National Academy of Sciences' Board on Life Sciences and councils for the National Institute of Neurological Disorders and Stroke, the Society for Neuroscience, the Winter Conference for Brain Research, the International Society for Cerebral Blood Flow and Metabolism, and the Neurotrauma Society.
From page 76...
... Colamarino conducted research at the Telethon Institute for Genetics and Medicine in Milan, Italy, led by human geneticist Andrea Ballabio, M.D. She then returned to the United States to begin her fellowship at the Salk Institute in La Jolla, California, where she studied adult neural stem cells in the laboratory of stem cell pioneer Fred H
From page 77...
... in biochemistry from the University of California, San Francisco, and did his postdoctoral research at Yale University School of Medicine. His previous academic positions include research group leader, Max Planck Institute in Munich, Germany, and associate professor of neurology and cell biology, University of Massachusetts Medical School.
From page 78...
... In 2006, Dr. Hesterlee was appointed vice president of translational research and, in addition to overseeing that program, is currently directing major collaborations in the areas of Duchenne muscular dystrophy, Friedreich's ataxia, spinal muscular atrophy, and amyotrophic lateral sclerosis (ALS)
From page 79...
... He joined JDRF after 26 years at the University of Rochester Medical Center, where he was a member of that institution's departments of Pediatrics and Microbiology and Immunology. He has been founding director of the Center for Human Genetics and Molecular Pediatric Disease since 2000.
From page 80...
... in botany from the University of Minnesota. She has served as an adviser to numerous organizations including the National Institute of Neurological Disorders and Stroke, the Epilepsy Foundation, the Amyotrophic Lateral Sclerosis Association, and many others.
From page 81...
... During this time she was instrumental in managing significant organizational initiatives including the Research Challenge of Champions, the Promise: 2010 research campaign, the Corporate Star Program to recognize outstanding corporate commitment to the Multiple Sclerosis cause, and the determination of society governance practices. Kenneth Schaner, J.D., formed his own firm to specialize in the representation of tax-exempt entities at the beginning of 2008, after over 30 years as a partner at Swidler Berlin and Bingham McCutchen.
From page 82...
... Since then, he has represented CFF, the Juvenile Diabetes Research Foundation, the Stanley Medical Research Institute, the National Neurovision Research Institute, the National Multiple Sclerosis Society, and others in numerous venture philanthropy transactions and related legal matters.
From page 83...
... Ms. Terry is at the forefront of consumer participation in genetics research, services, and policy and serves as a member of many of the major governmental advisory committees on medical research, including liaison to the Secretary's Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children and the National Advisory Council for Human Genome Research, National Human Genome Research Institute at the National Institutes of Health.
From page 84...
... in microbiology/immunology from Duke University in 1977, followed by postdoctoral training at the Rockefeller University from 1978 to 1981, where she was awarded a National Science Foundation postdoctoral fellowship and National Research Service Award in cell biology from the National Institutes of Health. She later held the positions of assistant professor, associate professor, and professor of pharmacology and cell biology at Vanderbilt University School of Medicine and was an associate investigator with the Howard Hughes Medical Institute before moving to Northwestern University Feinberg School of Medicine in Chicago in 1994.
From page 85...
... She currently serves as a member of the Law & Neuroscience Project funded by the MacArthur Foundation and as a senior consultant to the Hastings Center on its project on guidelines for endof-life care, funded by the Donaghue Foundation and Sussman Trust. Dan Zenka is vice president of communications at the Prostate Cancer Foundation (PCF)
From page 86...
... He also built the Emergency Cardiac Care Program, a continuing medical education program that trains over 3 million professionals annually. He has worked with the National Institute of Neurological Disorders and Stroke to form the Brain Attack Coalition.
From page 87...
... Choi, M.D., Ph.D., biography in Invited Speakers section. Judy Illes, Ph.D., biography in Invited Speakers section.
From page 88...
... Fischbach, M.D., she led the movement, together with the National Institute of Mental Health scientific director Robert Desimone, Ph.D., to bring some sense of unity and common purpose to 200 laboratories from 11 different NIH institutes, all of which conduct leading-edge clinical and basic neuroscience research. A native of New England, Dr.
From page 89...
... She has participated extensively in scientific and educational activities including serving as chair for NASA's Research Maximization and Prioritization Committee reviewing scientific priorities for the International Space Station, as well as chair, External Advisory Committee, National Science Foundation Center for the Study of Biological Rhythms at the University of Virginia.
From page 90...
... He leads its various interdisciplinary research teams and is coprofessor for biology and cognitive neuroscience research at the facility. Research projects include a 20-year longitudinal study of traumatic brain injury and investigations of spinal injury, stroke, aneurysms, arterial thrombolytic therapy intervention, neuropathology, central nervous system tumors, sleep disorders, deep brain stimulation, movement disor
From page 91...
... Altevogt joined the National Academies as a science and technology policy fellow with the Christine Mirzayan Science & Technology Policy Graduate Fellowship Program. Since joining the Board on Health Sciences Policy, he has been a program officer on multiple IOM studies, including Sleep Disorders and Sleep Deprivation: An Unmet Public Health Problem, the National Academies' Guidelines for Human Embryonic Stem Cell Research: 2007 Amendments, and Research Priorities in Emergency Preparedness and Response for Public Health Systems.
From page 92...
... Sarah L Hanson is associate program officer for the Forum on Neuroscience and Nervous System Disorders on the Board on Health Sciences Policy at the Institute of Medicine.


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