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Digital Infrastructure for the Learning Health System The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary (2011) / Chapter Skim
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Appendix E: PCAST Report Recommendations
Pages 281-284

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From page 281...
... The Office of the National Coordinator should • Move more boldly to ensure that the Nation has electronic health systems that are able to exchange health data in a universal man ner based on metadata-tagged data elements. In particular, ONC should signal now that systems will need to have this capability by 2013 in order to be deemed as making "meaningful use" of electronic health information under the HITECH Act.
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From page 282...
... The Centers for Medicare & Medicaid Services should • Redirect the focus of meaningful use measures as rapidly as pos sible from data collection of specified lists of health measures to higher levels of data exchange and the increased use of clinical decision supports. • Direct its efforts under the Patient Protection and Affordable Care Act toward the ability to receive and use data from multiple sources and formats.
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From page 283...
... • Convene a high-level task force to develop specific recommenda tions on national standards that enable patient access, data ex change, and de-identified data aggregation for research purposes, in a model based on tagged data elements that embed privacy rules, policies and applicable patient preferences in the metadata travel ing with each data element. • As the necessary counterpart to technical security measures, pro pose an appropriate structure of administrative, civil, and criminal penalties for the misuse of a national health IT infrastructure and individual patient records, wherever such data may reside.
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From page 284...
... • HHS should coordinate ONC activities with CDC, FDA, and any other entities developing adverse event and syndromic surveillance networks. • The Department of Defense and the Department of Veteran Affairs should engage with ONC and help to drive the development of standards for universal data exchange of which they can become early adopters.
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Key Terms

  • data elements
  • data element
  • health information
  • data security
  • effectiveness research

  • health data
  • locate data
  • comparative effectiveness
  • entities developing
  • reference implementations

  • public sector
  • ner based
  • exchange using
  • applicable patient
  • universal data

  • patient records
  • privacy rules
  • hitech act
  • health measures
  • data exchange

  • enable patient
  • syndromic surveillance
  • implementation processes
  • clude data
  • individual patient

  • exchange health
  • enable data
  • sourced physician
  • data submitted
  • reference implementation


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