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Appendix A: Workshop Agenda
Pages 77-86

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From page 77...
... WORKING BREAKFAST 8:30 A.M.–8:35 A.M. WELCOMING REMARKS Wylie Burke, Roundtable Co-Chair, Meeting Moderator  Professor and Chair, Department of Bioethics and Humanities, University of Washington 77
From page 78...
... CHARGE TO WORKSHOP SPEAKERS AND PARTICIPANTS W Gregory Feero, Workshop Chair  Special Advisor to the Director, National Human Genome Research Institute 8:40 A.M.–10:10 A.M.
From page 79...
... Under the current standard care model, targeted carrier status testing is offered. In terms of high effect size variations that would be detected by traditional genetic testing, she is found to be a carrier for Tay-Sachs.
From page 80...
... Billings Chief Medical Officer, Life Technologies Scott Grosse  Research Economist and Associate Director for Health Services Research and Evaluation, Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention Scott Ramsey  Full Member, Cancer Prevention Program, Division of Public Health Science, Fred Hutchinson Cancer Research Center 12:20 P.M.–1:05 P.M.
From page 81...
... Billings Chief Medical Officer, Life Technologies Scott Grosse  Research Economist and Associate Director for Health Services Research and Evaluation, Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
From page 82...
... Clinician: Kenneth Offit  Chief, Clinical Genetics Service, Department of Human Genetics, Memorial Sloan Kettering Cancer Center Futurist: Stephen Eck  Vice President, Global Head of Medical Oncology, Astellas Pharma Global Development
From page 83...
... Billings Chief Medical Officer, Life Technologies Scott Grosse  Research Economist and Associate Director for Health Services Research and Evaluation, Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention Scott Ramsey  Full Member, Cancer Prevention Program, Division of Public Health Science, Fred Hutchinson Cancer Research Center 5:10 P.M.–5:20 P.M.
From page 84...
... Gregory Feero, Workshop Chair  Special Advisor to the Director, National Human Genome Research Institute 9:00 A.M.–10:00 A.M. Stakeholder Perspectives on Research Questions Moderator: Wylie Burke, University of Washington Clinician: James P
From page 85...
... , Celera Corporation; Regents' Lecturer, University of California, Berkeley Patient: Mary Lou Smith Cofounder, Research Advocacy Network Public Health: Ned Calonge  President and Chief Executive Officer, The Colorado Trust Hospital System: Herbert Pardes  Professor of Psychiatry and Former Chief Executive Officer, New York–Presbyterian Hospital 10:00 A.M.–10:30 A.M. Audience Perspectives 10:30 A.M.–10:45 A.M.
From page 86...
... Gregory Feero, Workshop Chair  Special Advisor to the Director, National Human Genome Research Institute 12:00 P.M.


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