Disability Evaluation Study Design First Interim Report (1997) / Chapter Skim
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4 Data Collection Plan
4 Data Collection Plan
Pages 18-27
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From page 18... ...
SSA indicates that the medical evidence of record can provide more information about impairments and other health problems than can be obtained from a medical examination at a single point in time. Survey designs that seek the medical records of persons in the sample face the high cost of conducting record searches as well as the risks of missing data.
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From page 19... ...
Yet locating and screening respondents for eligibility require special efforts involving careful, and Tong-term planning, large amount of staff resources, considerable time, and high levels of funding. Homeless people present problems in scheduling, interviewing, and administering performance tests and medical examinations.
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From page 20... ...
Further, telephone sampling and screening is likely to offer lower response rates than face-to-face screening (Groves, 89; Lessler and Kalsbeek, 19924. As a consequence the screening sample will need to be increased to compensate for the losses from the sample because of nonresponse; the higher nonresponse rates are likely to increase the risk of bias in the estimates.
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From page 21... ...
SSA has determined that the mobile examination centers approach is the best way to obtain acceptable response rates and acceptable levels of quality and standardization. SSA further states that locating the mobile units in relatively close proximity to those people with severe impairments who will be examined, may yield an adequate response rate.
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From page 22... ...
The current DES plan adopts the NHANES mode! of traveling teams with mobile examination centers, the main argument being the potential for achieving improved data quality and examination response rates by having a group of professionals specifically trained for the DES examination.
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From page 23... ...
The advantage of this option is that like the mobile centers, the examination becomes a locally centralized process, thus affording greater quality monitoring and simplifying examination scheduling for study participants. Because of the current state of uncertainty concerning the approach to determining the disability status of study participants, the committee strongly urges SSA to undertake a series of steps before final resolution of relevant design issues tied to the medical examination.
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From page 24... ...
However, measurement error may be adversely affected by offering the home examination or relying on provider data for the medical evidence of record (Cohen and CarIson, ~ 9941. Although SSA appears to have given considerable thought to each of these procedural matters, none was sufficiently resolved in the draft scope of work to provide a useful response to the REP.
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From page 25... ...
The committee assumes that SSA has plans for advance arrangements and public awareness campaigns in the local areas to promote support and increase response rates prior to interviewing and administering medical examinations. This type of activity is commonly done for large surveys and is often vital in increasing response rates and local goodwill.
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From page 26... ...
Although SSA recognizes these confidentiality issues, the committee believes that additional steps must be taken by SSA to obtain adequate informed consent from the participants, to ensure sufficient protection of confidentiality for study subjects, and to deal with these issues in a way that will not compromise the scientific integrity of the DES design. Current beneficiaries and the group potentially eligible for benefits particularly may have
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From page 27... ...
data according to accepted practices by employing procedures used in recent federal surveys, and that it take into consideration the effect of such procedures on response rates.
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