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Appendix N: Summary of Responses to Requests for Information
Pages 167-184

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From page 167...
... · Recommending lumbar punctures for everyone with complaints of headaches or memory loss seems a bit extreme.
From page 168...
... · The clinical protocol addresses complaints and diagnostics but not detailed history. Perhaps allowing the physician to attach pertinent history wherever applicable would help to assess the patient's concerns even though there is no diagnosis.
From page 169...
... Need an executive order declassifying all information related to toxic, biological, and/or chemical warfare agent exposure. Implementation Implemented and administered well 28: Additional Comments ·A common difficulty is the long waiting period for consultations or procedures.
From page 170...
... · The Registry exam should be performed ASAP before or after separation or deactivation of the individual from active duty. Should be performed by experienced personnel at a local level.
From page 171...
... It would be good to have the generalist staff facilitate the overview of all the specialist exams. · Gulf War veteran satisfaction at our facility is high because the VRP is in charge of both the Registry and the return and follow-up clinics.
From page 172...
... · The consultation process with our research facility in Houston does not provide easy consultation with physicians knowledgeable in the latest aspects and research regarding Gulf War illnesses. · Need some form of communication from the physicians and staff of the Stage 2 hospitals about their findings and diagnoses.
From page 173...
... · Recommendations for lab tests and X-rays should have studies completed at referral centers rather than at the parent facility so consultants might benefit from results and provide timely conclusions and recommendation. · The physician and clerk assigned to the Persian Gulf program should be kept as a team to better address issues.
From page 174...
... ·Outreach efforts should be enhanced through the VISN level by coordination among the veteran service officer, and National Guard, Reserve and active veterans' service organizations, as well as community service and employers. · We have a very high no-show rate among PG vets and assume one of the reasons is because the vets are unable to get time off from work to come in for the exam which takes two half-day sessions.
From page 175...
... ·Continue education via yearly national conference, live satellite conferences, and regular relay of current publications/articles. · The physician and clerk assigned to the Persian Gulf program should be properly trained.
From page 176...
... · Insufficient work has been done in educating providers other than the PG providers about the clinical protocol and Gulf War health issues. The annual conference on Gulf War health consequences is excellent.
From page 177...
... · Frustrated at not being able to address all concerns voiced by the PG vets because there are no definitive answers. · Considered not necessarily as a weakness but rather as a continuing challenge/opportunity for improvements is how best the provider can convey to the veterans' satisfaction the findings/explanations of their illnesses or the health consequences of Gulf War service in light of continuing media interest and reports that at times contain conflicting information.
From page 178...
... · Have not discerned exposures that have been reasonably linked with the myriad health concerns presented by patients. · This entire process is becoming politicized like the Agent Orange program.
From page 179...
... We have uniformly found that the clinic physicians do not understand the requirements of completing the code sheets. · Persian Gulf Registry code sheet question 26 for diagnostic consultations is difficult to answer.
From page 180...
... · The VA needs to examine the possibility of depleted uranium exposure as a cause of illness in Persian Gulf War veterans. · Further assessment should be done on the health of the veterans' families.
From page 181...
... · Doctors should conduct standard clinical testing for fatigue, the most common complaint of Persian Gulf War veterans. · Many of the protocol tests are improperly performed and interpreted.
From page 182...
... EDUCATION AND OUTREACH A Veterans · Not enough spouses and dependents are aware of, or have taken advantage of, Registry exams.
From page 183...
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