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Pages 266-274

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From page 266...
... See also Review boards and mechanisms Advocacy groups, 17, 36, 92 and privacy violations, 10, 86-8 7, 89, 221 Agencies, see Administrative agencies; Administrative procedures; Interagency data sharing; names of specific agencies Aid to Families with Dependent Children, 78 American Civil Liberties Union ACLU, 86-87 American Society for Access Professionals, 209 American Statistical Association [ASA) , 46, 50, 65-66, 87, 97, 104, 1 05, 206, 209-2 1 0 fellowships, 94, 101, 165-166, 200
From page 267...
... Shapiro, 119-120 Behavioral Sciences Research Group, BLS, 82 Bellagio principles, 104, 105 Bias, 30, 147 Birth certificates, 96, 163 Blurring, 146. See also Statistical disclosure limitation Boskin initiative, 49, 181, 196 Burden on data providers, 32, 36, 75, 219 and barriers to interagency data sharing, 6, 98-99, 221 and data linkage, 41, 53 Bureau of Economic Analysis, 21, 128, 164, 170, 171, 191, 192, 194 Bureau of Environmental Statistics, 132, 188 Bureau of Justice Statistics, 15, 20, 39, 40, 137 Bureau of Labor Statistics [BLSJ, 2, 15, 20, 21, 29, 40, 165 cognitive research, 55, 82 and Current Population Survey, 94, 159 data policies and statutes, 183, 188 organizational data, 129-131, 191, 192-193, 194, 198 Bureau of the Census, 1-2, 4, 20, 21, 41, 109, 113, 118-121, 136, 183 address lists, 37, 95-96, 119- 120, 134, 191 administrative data use, 96, 140n, 162-163 archived material, 175- 176 267 cognitive research, 55, 82 confidentiality statutes, 37, 41 Current Population Survey, 94, 159, 160-162, 175, 181 disclosure limitation procedures, 86-87, 98, 146, 148, 205, 206 Exact Match Study, 160- 162 external user access, 38, 39, 165 history of, 46-47, 48 and IRS, 127, 128, 162- 163 microdata releases, 120-121 organizational data, 183, 191-194, 198 and public opinion, 35, 83, 86-87 reimbursable surveys, 120- 121 special sworn employees, 38, 101, 119, 159, 164, 166 waiver use, 68-69, 73, 198, 199 Bureau of Transportation Statistics, 20, 131-132, 140n, 188 Businesses, see Organizations C Canada, 46, 194-195, 211, 213-214 CD-ROM data releases, 87, 92, 102 encrypted formats, 7, 94, 123, 167168, 200 Cell suppression, 98, 144, 148.
From page 268...
... See also Statistical disclosure limitation Conferences, for data users, 35, 36, 54 Confidentiality definition of, 22-23 historical overview, 47, 48-49 violations of, 7, 38, 100, 101, 119, 138, 223 Congress, 16, 21, 30 Congressional Budget Office, 21 Constitutional Convention of 1787, 45 Constitutional empowerment, 2, 3, 18, 26-27, 29, 33, 78 Consultation, 11, 157, 224 Consumer Expenditure Survey, 21 Consumer Price Index, 30 Continuous Work History Sample, 95, 128, 169-171, 173, 191, 200 Cooperation, see Voluntary survey participation Costs of data collection, 29-30, 32 and data linkage, 41 Cotton gin reports, 198 Council of Economic Advisers, 21, 48, 49 Council of Professional Associations on Federal Statistics, 97-98 Criminal records, 74 Current Industrial Reports, 198, 199 Current Population Survey (CPSl, 94, 159, 160-162, 175, 181 D Data protection, definition of, 23 staff training for 12, 215-216, 226 Death information, 68, 172, 178n Decennial censuses, 29, 30, 36, 72, 87 88, 98 address lists, 119- 120 history of, 45-47, 48 use of administrative data, 40, 83, Employer Identification number, 170, 84, 96, 162-163 190 Declara tion on Professional Ethics, 66, 210 INDEX Definitions, 22-24 of records, 24, 113, 139n Democratic accountability, 2, 3, 18, 25-26, 29, 31-33, 36, 78 Denials of user requests, 95, 98, 158, 169-173 monitoring of patterns, 7-8, 96, 100, 222 Department of Agriculture, 48 Department of Defense, 159-160 Department of Health and Human Services, 112, 114, 159-160 Department of Justice, dispute with Energy Information Administration, 34, 129, 185- 188 Department of the Treasury, 128, 164 Disclosure risk, 88, 136-137, 223. See also Attribute disclosure; Identity disclosure; Inferential disclosure; Restricted access; Restricted data; Statistical disclosure limitation definition, 23-24 notification of, 8, 66, 76, 136, 156, 220 Dissemination, see Disclosure risk; Microdata files; Restricted access; Restricted data; Statisti cat disclosure limitation; Tabulations; Users of federal data E Economic data, 181, 189-190 Economic Policy Working Group, 49 Economic Research Service, 21, 201 Economics of data and data collection, 26-27, 29-30, 43n, 184 Education data, 31, 121-123 Education statistics, see National Center for Education Statistics Electronic data formats, 92 archiving of, 175-176, 177, 225 see also CD-ROM data releases; Microdata files; On-line data access Employment data, 129-131, 169-171, 173, 182, 184, 200
From page 269...
... Federal Statistics for the 1980's, 51, 72 73 France, 195, 211-212 269 Freedom of Information Act, 4, 27, 37, 98, 109, 111, 112-113, 115-117 and organizations, 116-117, 130, 182-183 Functional separation, 4-6, 34-35, 50, 53-54, 73, 134, 135, 223 advisory body promotion of, 13, 217-218, 227 and organizational data, 189, 225 Future use of data, notification on, 9, 76, 220. See also Informed consent and notification G General Accounting Office, 113 General Education Provisions Act, 121, 122 General-purpose data sets, 1-2, 17 Geocoding, 87-88, 149 Germany, 211, 213 Grantees, statistical activities, 18 Great Depression, 48 Great Society programs, 48 Guidelines for Federal Statistical Activities, 208, 217, 227 H Hawkins-Stafford amendments, 121, 122, 137 Health and Retirement Study, 69 Health Care Financing Administration tHCFA~, 18 Medicare lists, 172, 178n How the Census Bureau Keeps Your Information Strictly Confidential, 86 I Identity disclosure, 23, 143-144, 145, 153.
From page 270...
... See also Freedom of Information Act; Computer Matching and Privacy Protection Act; Income Tax Act; Paperwork Reduction Act; Privacy Act; Public Health Service Act; Tax Reform Act agency-specific, 117-136 on data sharing, 6, 98, 99, 192 on external use, 7, 1 14-1 15 on organizational data, 182-183, 189, 196, 225, 226 Licensing agreements, 7, 38-39, 94, 96, 100, 101, 102-104, 123, 200 microdata, 168-169 Linkages of records, 8, 40-41, 52, 5355, 74, 111, 159-163 and informed consent, 9, 65, 67. 70 in microdata files, 94 Lists of respondents, 37, 95-96, 119120, 171-173 business, 6, 95, 128, 190-196, 203, 225-226 Local government, 21, 182, 183 Longitudinal Research Database, 38, 154 Longitudinal Retirement History Survey (LRHS I, 68-69, 73, 96, 206 Lotus Marketplace: Households, 87 Louis Harris and Associates, surveys, 55, 82-83 Luxembourg Income Study, 150, 166-167
From page 271...
... , 121 271 National Center for Education Statistics INCEST, 2, 15, 20, 21, 31, 40, 110, 121-123 CD-ROM encryption, 94, 167, 201 data policies and statutes, 136, 137, 205, 206 restricted access, 38-39, 102, 165, 168-169 National Center for Health Statistics INCEST, 15, 20, 21, 30-31, 43n, 70, 95-96, 172 cognitive research, 55, 82 data policies and statutes, 4, 28, 110, 123-127, 204-205 informed consent procedures, 70 National Death Index, 68, 172 National Educational Longitudinal Study, 40 National Health Interview Survey THIS) , 95-96 National income accounts, 29, 170 National Institute for Occupational Safety and Health, 128, 164, 172 National Institute of Standards and Technology MISTS, 165 National Institute on Aging (NIA)
From page 272...
... 272 confidentiality rulings, 69, 73, 96, 198, 199 disclosure limitation research, 11, 155, 224 Off-site data access, 96, 100, 102, 123, 168-169 Oil company data, 34, 129, 185-188 On-line data access, 7, 92, 166-167, 200 On-site data access, 7, 96, 101, 173 Organizations, 16, 21, 52, 54, 62, 181 182 access to data on, 7, 51, 57, 116 1 1 7, 199-202, 226 and confidentiality, 2, 5, 18, 23, 51, 57, 62, 64, 75, 182, 188-190, 219, 225 as data collectors, 15 informed consent of, 8, 184, 197 lists of, 6, 95, 128, 190-196, 203, 225-226 proprietary data, 57, 1 16-1 17, 182 183, 184 related legislation, 182-183, 189, 196, 225, 226 waivers, 197-199, 226 p Panel Study of Income Dynamics, 102 Paperwork Reduction Act, 4, 109, 111 Passive consent, 77, 78, 80, 81, 203 Permanent Census Act, 46 Personal Privacy in an Information Society, 50 Personal records, see Administrative 88, 220 records ~ Pledges of confidentiality, 5, 10, 34, 37, 40, 55, 66 and data users, 104, 105 interpretation of, 80-82 Policy and program analysis, 3, 15-16, 25-27, 32, 92, 96, 99 and data quality, 26-27, 31, 56 historical overview, 48 by outside researchers, 52, 53, 97, 99 and subject notification, 74, 78, 79 80 INDEX Privacy, definition of, 22 Privacy Act, 4, 24, 35, 37, 41, 48, 62, 109, 111-115, 132-133, 135, 137, 139n, 211 informed consent under, 8, 64-65, 69-70, 75, 219 and organizations, 122, 135, 182 Privacy Protection Study Commission 5, 35, 49, 50-51, 140n Private sector data collection, 15, 2930, 31, 35 government maintenance of, 115-116 risk of privacy violations, 9, 8 7-88 use of government data, 87-88 Professional organizations, 17, 65-67, 97-98, 105, 107, 209-210, 222 Project Metropolitan, 54-55, 212-213 Proprietary data, 57, 116-117, 182-183, 184 EIA collection of, 34, 129, 185, 191, 193 Protected enclaves, 51, 73 Providers of data, 9, 16, 20-21, 22, 2829, 35, 35-36, 46, 56-57, 57, 6162, 62-63 See also Cognitive research; Informed consent and notification; Mandatory participation; Organizations; Pledges of confidentiality; Proxy respondents; Voluntary survey participation; Waivers Proxy respondents, 22, 74, 203 Public Health Data, 43-44n Public Health Service Act, 28, 124 Public information activities, 36, 56, about privacy violations, 10, 86-89, 221 Public opinion on data activities, 35, 55, 61, 82-86, 206, 220 Public-use microdata files, see Microdata files Q Quality improvement initiative, 49, 181, 196 President's Reorganization Project for Query restriction, 151, 200 the Federal Statistical System, Questionnaires, notification state 48, 140n meets, 70
From page 273...
... , 37, 191-192, 193 State governments, 21, 182, 183 cooperation with federal government, 6, 18, 96, 164, 196, 198, 225 vital statistics data collection, 46, 175, 126-127 Statistical disclosure limitation, 10- 12, 39, 66, 147-149, 178n, 209 techniques, 144-149, 151-153, 179n user impacts, 11, 12, 99, 155-157, 209 Statistical Policy Office, OMB, 21, 196, 207-209 disclosure limitation research, 11, 155, 225 Statistical records, definition, 24, 113, 13911 Statistics Canada, 46, 194-195, 213-214 Statistics of Income Division, IRS, 82, 94, 127 Statistics Sweden, 54, 212 Statutes, see Legislation Summary tape files, 98 Surveillance, 3, 27 Survey of Fishing, Hunting, and Wildlife Related Recreation, 2021 Survey of Income and Program Participation, 149 Surveys and Privacy, 87 Swapping techniques, 146, 153. See also Statistical disclosure limitations
From page 274...
... 274 Sweden, 54, 194, 211, 212-213 Synthetic data, 146, 153, 154 T Tabulations disclosure limitation, 7, 10, 12, 48, 144, 146-147, 148 of early census data, 46, 48 organizational data, 197-198 Tax-exempt organizations, 57 Taxpayer Opinion Survey, 83-85 Tax records, 40, 47, 48, 62, 71, 83-85, 95, 127-128, 161, 164 and notification, 70 Tax Reform Act, 48, 95, 110, 117, 127128, 164, 170-171, 172 Telemarketing, 15 Telephone surveys, 37, 62, 70, 81, 204 Topcoding, 144, 162 Training of researchers, 105, 107, 222 U United Kingdom, 194 Unlawful disclosure, see Violations of confidentiality Users of federal data, 7-8, 16, 21, 35, 46, 91-93 denials, 7-8, 95, 96, 98, 100, 222 government interaction with, 35-36, 51, 52, 53, 58, 91, 97-98 INDEX legal and ethical responsibilities, 100-107, 222 sanctions against for misuse, 7, 57, 100, 101, 104 and statistical disclosure limitation, 11, 12, 39, 98, 99, 101, 155-157, 209, 224 V Violations of confidentiality penalties, 4, 7, 38 -39, 57, 100, 102, 104, 112, 135, 137-139, 157, 223 and public opinion, 8, 9-10, 87, 88, 138, 221 Vital statistics, 46, 96, 125 - 127, 172, 181 Voluntary survey participation, 28, 50, 52, 54-55, 57, 61, 62 and informed consent, 8-9, 36-37, 56, 63, 67, 71 Voting records, 71 W Waivers, 37, 68-69, 77-80, 96, 196, 197, 203, 220 by organizations, 197- 199, 226 Watergate scandal, 48 World Almanac, 21


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